Pulmonary Hypertension Testimony: Shani’s Story

by Marta Ribeiro | July 5, 2016

Pulmonary hypertension is a respiratory disease characterized by high blood pressure in the arteries of the lungs. Being a rare and progressive disorder, it may be lonely to suffer from pulmonary hypertension. In this video, 25-year-old Shani shares her story of pulmonary hypertension, a disease she was diagnosed with when she was just nine months old.

Shani has already been featured in one of Pulmonary Hypertension News articles. Read more about her 10 tips on how to travel safely with pulmonary hypertension.

Shani has been dealing with the chronic condition since infancy and admits there were struggles, “I just knew that I was ill all the time and I wasn’t like other kids, and I couldn’t do most activities that other kids could, until I was about nine and I came out with a new treatment that improved my quality of life,” explain Shani in the video shared by The Medical Record on its YouTube channel.

“Everyone is different and you can’t compare yourself to another person with pulmonary hypertension because everyone reacts differently to all these medications.” Despite the fact the disease changed her life, Shani believes she is not so different from other people, and for her, the most important tool to fight the disease is being positive. “The positive mentality is what really brings the will power,” she adds.

Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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About the Author

Marta Ribeiro Marta graduated from Universidade Fernando Pessoa in Porto with a degree in Communication Sciences and a Masters degree in New Communication Technologies. She has experience in social media, worked with several media channels, and has also worked as a freelance photographer and a graphic artist for almost 10 years.