Author Archives: BNS Staff

30 Days of PH: My Hopes While Living With PAH in Bermuda

Photo courtesy of Charlita Hayward Day 18 of 30 This is Charlita Hayward’s (@haywardcharlita) story: I am a 33-year-old mother of two sons, 11 and 9, and am engaged. I live in Bermuda, and have idiopathic pulmonary arterial hypertension (IPAH). I was diagnosed in August 2020 after…

30 Days of PH: I Work to Stay Busy and Active

Photo courtesy of Roger Bliss Day 16 of 30 This is Roger Bliss’s story: When I was getting short of breath several years ago, I thought it was just from being out of shape and older. I am 68 now. At first, I was treated for COPD. I…

30 Days of PH: The Key to Living Successfully With PAH

Photo courtesy of Lauren Janzen Day 15 of 30 This is Lauren Janzen’s (@supa_yoopa) story: Hi, my name is Lauren. I’ve been a member of the pulmonary arterial hypertension (PAH) community for nearly 12 years. I was diagnosed after fainting at a high-intensity exercise class in January…

30 Days of PH: I Received My Miracle

Photo courtesy of Sheila Ranftl Day 14 of 30 This is Tatiana Ranftl’s (@silvermami0531) story: After Christmas 2020, my condition had become terminal. My parents and I were told that I’d reached the end of the line. I fell apart hearing the words “heart failure.” I’d always been…

30 Days of PH: Don’t Procrastinate in Seeing a Doctor

Photo courtesy of Susi Steppins Day 13 of 30 This is Susi Steppins’ story: Hello. My name is Susi Steppins. I knew something was wrong for a long time before I received my diagnosis. In fact, I’d felt for years that something was off. I would have bad…

30 Days of PH: An Accredited PH Center Gave Us the Support We Needed

Photo courtesy of Irene Chipounov Day 12 of 30 This is Irene Chipounov’s (@irinachipounov) story: Our 8-year-old daughter, Karina, was born with a right-sided congenital diaphragmatic hernia (CDH). She spent the first six months of her life in the NICU at Rady’s Children’s Hospital in San Diego,…

30 Days of PH: Taking Back Control of My Life Has Empowered Me

Photo courtesy of Roxanne Giustini Day 9 of 30 This is Roxanne Giustini’s (@steelergirlrock) story: I was diagnosed with idiopathic pulmonary arterial hypertension (IPAH) in January 2016. This was not my first experience with a strange new disease. In 2002, after a year of terrible symptoms and…