Columns

Phaware Podcast: Victor Test, MD (Part 2 of 2)

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…

Are Endorphins Part of a PH-Balanced Breakfast?

At the start of pulmonary rehabilitation, I was asked to write out a goal to work toward throughout the three months of sessions. Without realizing how unrealistic it sounded, I jotted down that I would like to run a 5K race. At this point, I was newly diagnosed…

Phaware Podcast: Victor Test, MD (Part 1 of 2)

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…

Phaware Podcast: Ashley Schroeder

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…

I’ll Take Life-saving Treatments for $1,600, Alex

“If you’re paying out-of-pocket, Mr. Naple, that will be $1,600 for the one month of sildenafil. Is that something you will want to pay today?” the pharmacist inquired over the phone. You probably know my answer. Sildenafil is one of three medications I take to keep my pulmonary hypertension…

Phaware Podcast: Brian Hanna, MDCM

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…

An Interview with Charity Tillemann-Dick, Part 2

Editor’s note: Charity Tillemann-Dick, soprano, former PHA spokeswoman, and two-time double-lung transplant recipient, reflects on her upcoming book, the writing process, and looking forward. This Q&A is a continuation of her interview ahead of the release of her book, “The Encore: A Memoir…


A Conversation With Rare Disease Advocates