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    • #32327
      Kevin Schaefer
      Keymaster

      In this 30 days story, Sally Hoffman writes about how her Mom has always been her inspiration. When Sally was diagnosed with PAH, her mother’s resilience and joyful spirit motivated her to keep going. Read the full story below.

      Do you have any takeaways from Sally’s story?

       

      Pulmonary Hypertension News’ 30 Days of PH campaign is publishing one story per day from someone who has been affected by the disease for PH Awareness Month in November. Read the full series for more stories like this, and follow us on Facebook and Instagram, using the hashtag #30DaysofPH.

    • #32329
      Colleen Steele
      Keymaster

      Thank you @mainegal for sharing your story! I thought it was so touching that you dedicated this to your mother. Combining part of her story with yours has reached beyond PH patients.

      I shared your story with a priest friend of my family. He is remission from Hodgkins Lymphoma. He commented, “Wow! What a story. I might not be here if her mother had not been brave enough to undergo early chemotherapy for Hodgkins lymphoma.”

      I know PH patients sometimes shrug it off when people refer to them as brave, but honestly, I believe bravery is a big part of successful advocacy.

      BTW – Someone on Instagram would like to know what medication you are on. If you can let us know here I will pass the information on to them.

    • #32354
      Jen Cueva
      Keymaster

      Wow, @mainegal, I thoroughly enjoyed reading your story. Learning how your Mum inspired you always to smile and persevere is touching.

      I hear many people in the PH community ad other rare disease communities share what inspires them. I often notice that the person sharing is also inspiring, and in your case, you certainly are. It sounds like you are just like your Mum.

      Your story will continue to touch many lives and offer hope and inspiration. Thanks so much for sharing your PH journey.

    • #32363
      Susi Steppins
      Participant

      Hello @mainegal .

      I love this story.

      How brave your mother was and how wonderful that she taught you to be brave as well.

      You sound like you have a beautiful soul and I can feel that smile in the words you write.

      Thank you for sharing this.

    • #32374
      Sally Hoffman
      Participant

      Hi Susie, Jen and Colleen,

      Thank you for all your kind words.  It helps us to be brave having a support system such you and all the others out there rooting for us.

      Best, Sally

       

       

    • #32376
      Colleen Steele
      Keymaster

      @mainegal your story has touched so many. A few on Instagram asked what medication you are on. You can either respond to them directly there or if you want to share the information here I will get back to them. Thank you so much!

    • #32380
      Sally Hoffman
      Participant

      Oh wow!!  I am on Adcirca 40 mg daily and Uptravi 1400 mg 2x daily!  I hope it works for everyone.

      Uptravi is hard to tritrate up on, but be brave,  I will always be there to sing you nursery rhymes if that’s what it takes.

      Sally

    • #32394
      Jen Cueva
      Keymaster

      LOL, thanks, @mainegal, for sharing your PH treatments. One of us will update those on social media who are asking about that. I appreciate you getting back to us quickly.

      So true, Uptravi titration can be rough; it all depends on our bodies. I would have loved your nursery rhymes as I was titrating on it years ago, hehe. I enjoyed that you offered that to Debbie.

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