November 3, 2021 at 8:40 am #32327Kevin SchaeferKeymaster
In this 30 days story, Sally Hoffman writes about how her Mom has always been her inspiration. When Sally was diagnosed with PAH, her mother’s resilience and joyful spirit motivated her to keep going. Read the full story below.
Do you have any takeaways from Sally’s story?View this post on Instagram
Pulmonary Hypertension News’ 30 Days of PH campaign is publishing one story per day from someone who has been affected by the disease for PH Awareness Month in November. Read the full series for more stories like this, and follow us on Facebook and Instagram, using the hashtag #30DaysofPH.
November 3, 2021 at 11:40 am #32329Colleen SteeleKeymaster
Thank you @mainegal for sharing your story! I thought it was so touching that you dedicated this to your mother. Combining part of her story with yours has reached beyond PH patients.
I shared your story with a priest friend of my family. He is remission from Hodgkins Lymphoma. He commented, “Wow! What a story. I might not be here if her mother had not been brave enough to undergo early chemotherapy for Hodgkins lymphoma.”
I know PH patients sometimes shrug it off when people refer to them as brave, but honestly, I believe bravery is a big part of successful advocacy.
BTW – Someone on Instagram would like to know what medication you are on. If you can let us know here I will pass the information on to them.
- This reply was modified 7 months, 3 weeks ago by Colleen Steele.
November 4, 2021 at 2:50 pm #32354Jen CuevaKeymaster
Wow, @mainegal, I thoroughly enjoyed reading your story. Learning how your Mum inspired you always to smile and persevere is touching.
I hear many people in the PH community ad other rare disease communities share what inspires them. I often notice that the person sharing is also inspiring, and in your case, you certainly are. It sounds like you are just like your Mum.
Your story will continue to touch many lives and offer hope and inspiration. Thanks so much for sharing your PH journey.
November 5, 2021 at 11:09 am #32363
November 5, 2021 at 4:47 pm #32374Sally HoffmanParticipant
Hi Susie, Jen and Colleen,
Thank you for all your kind words. It helps us to be brave having a support system such you and all the others out there rooting for us.
November 5, 2021 at 5:18 pm #32376
November 5, 2021 at 6:09 pm #32380Sally HoffmanParticipant
Oh wow!! I am on Adcirca 40 mg daily and Uptravi 1400 mg 2x daily! I hope it works for everyone.
Uptravi is hard to tritrate up on, but be brave, I will always be there to sing you nursery rhymes if that’s what it takes.
November 8, 2021 at 5:29 pm #32394Jen CuevaKeymaster
LOL, thanks, @mainegal, for sharing your PH treatments. One of us will update those on social media who are asking about that. I appreciate you getting back to us quickly.
So true, Uptravi titration can be rough; it all depends on our bodies. I would have loved your nursery rhymes as I was titrating on it years ago, hehe. I enjoyed that you offered that to Debbie.
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