• kathleen-sheffer

    Member
    July 5, 2018 at 10:53 am

    Hi Terry, where are you getting this term? I think you asked before about episodic pulmonary hypertension. “Episodic” usually relates to symptoms like shortness of breath (dyspnea), but is not used in conjunction with a diagnosis like pulmonary embolism. You might have a pulmonary embolism that is causing episodic dyspnea. Untreated pulmonary emboli can cause a form of pulmonary hypertension called CTEPH. I’d advise you ask your doctor more questions about the diagnosis he or she is giving you.

  • terry-d-blissett

    Member
    July 5, 2018 at 12:19 pm

    My pulmonologist marked this as my diagnosis and referred me to a specialist. I can’t find much info on it and was wondering if someone else had this diagnosis or knew more information on it.

    • kathleen-sheffer

      Member
      July 5, 2018 at 12:21 pm

      I’m not sure it’s a real diagnosis. I hope you are able to see the specialist soon.

  • terry-d-blissett

    Member
    July 6, 2018 at 7:41 pm

    Great news! I met with my cardiology specialist and she said that I DO NOT have pulmonary hypertension. I forgot to ask about episodic because I was so glad that I didn’t have PH. However she is still concerned enough about my symptoms to test me for CTEPH. So I’m guessing this is treated the same but is not terminal. Please let me know.

    • kathleen-sheffer

      Member
      July 6, 2018 at 7:54 pm

      I’m so glad you don’t have PH. CTEPH is not necessarily treated the same way, but such questions should be directed to your doctor, and not this forum. We can offer validation and support on topics related to living with pulmonary hypertension (CTEPH included), but our site is not a substitute for professional medical advice. It’s wise to write down all your questions before an appointment. Read more tips here: How to Prepare for an Appointment.

  • terry-d-blissett

    Member
    July 6, 2018 at 8:00 pm

    Great! Will do! Thanks.

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