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      Colleen Steele

        There are some odd awareness days. I think the one on March 9 is one of them. It’s called, “National Get Over It Day”. I’m sure the entrepreneur who started this day when he was having trouble getting over his ex-girlfriend, meant well. But I think suggesting that someone needs to “get over” something comes off insensitive. No matter what someone is going through, “get over it” is not exactly wholesome advice.

        Has anyone ever made you feel or straight out tell you that you need to get over the emotional effect of PH?

        As many of you know, my son no longer has PH since transplant, yet I still have strong feelings about the disease and continue to advocate for it. I sometimes feel self-conscious when I share my column to social media or tell people what I do for a living. When my son had PH and I was spreading awareness all the time. I know there were people who got tired of hearing about it, so I imagine some might feel that way even more now that Cullen is PH free.

        In my column this week I share why I can’t “get over” PH and why I won’t stop advocating for those still fighting this disease.

        I hope you will share your feelings too.

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