This topic contains 9 replies, has 4 voices, and was last updated by  Brittany Foster 3 weeks, 4 days ago.

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  • #18579
     Brittany Foster 
    Keymaster

    Some doctors will advise against certain diet plans or meal plans, especially if they require elimination of certain foods. Before starting a diet plan, especially if you are living with a chronic illness, it is important to have a conversation with your medical team.

    Recently, one of our members was curious if people have tried the “keto diet” . Here is a link to an article published by Harvard Medical that explains the keto plan and some of the risk factors involved. Diet plans and eliminating certain foods is not for everyone and is not always safe for everyone.

    Have you tried a diet plan like Keto? Were you advised by your medical team to do this? Did you bring up a change in diet to your team? What plans have seemed to help you with losing or maintaining weight and a balanced lifestyle in the past

  • #18585
     Colleen Steele 
    Keymaster

    As a caregiver and not a PH patient….I’m laughing because I’m actually about to start the Keto diet. A friend recently recommended it. I’m just really not sure whether this would be a good one for someone with PH. As you mentioned Brittany, discuss a diet with your doctor before starting one. That is very important.

    • #18626
       Brittany Foster 
      Keymaster

      Hey Colleen,
      I do know plenty of people who are on it or on a modified version of it that just isn’t as strict as “no carbs at all” and high fats. I feel like I would go WILD with the high fat content. I’d be spooning peanut butter onto literally anything. Probably just eating it right out of the jar hahah! I know that’s not exactly how it works, but still you can picture it for a good laugh. Let me know how it goes for you and what types of benefits you notice! I’m sure it takes weeks/months to really notice the benefits and changes that might happen! Looking forward to hearing about your progress. Are you doing it for health reasons?

  • #18592
     Ally 
    Participant

    Ok I will discuss it with my doctor’s. I have tried Keto tho and it works but you can’t go crazy with butter and sour cream like I did lmbo

    • #18594
       Stefan Jones 
      Participant

      If you don’t have a milk intolerance why not?

  • #18593
     Stefan Jones 
    Participant

    Hi Brittany, I have done a keto diet for a few years. In fact 80% of the time it’s zero carb, or carnivore as it is called online these days. I original did keto solely because I had pretty bad digestive issues, but zerocarbing was the only way I can get perfect digestion; likely due to a lack of fibre.

    However, I would need to write an essay to explain all of the surprise health improvements that I also got. For example, energy levels, mental clarity and stability (despite not actually having any particular issues, mentally/emotionally, I still felt an improvement ), sleeping pattern, migraines/light sensitively, weight stability (I lose weight very easy) and more. Unfortunately, I couldn’t say it helped my PAH directly in any way, but certainly helped soften the burden.

    The big one for me though was aches and pains. Whenever I needed extended periods of inactivity/rest I had to see a physio and force my self to walk and stretch due to getting pains/aches in the hips, shoulder blades and lower back. This year I’ve spent about two months+ in hospital, 3-4 weeks of which where on complete bedrest and I haven’t had a single issue. Which I won’t lie, even I was surprised; thought I’d be almost crying after a week.

    • #18608
       Ally 
      Participant

      I don’t need all the fat

    • #18627
       Brittany Foster 
      Keymaster

      Hey Stefan,
      Thank you for sharing all about your journey with this type of diet with us. it’s so interesting to hear from other people and get their perspective on how it has helped. Was this recommended to you by your doctor or was this something that you wanted to try? I find it so awesome that your memory and your energy levels even improved ! Personally, eating too many carbs in general just makes me feel so tired and worn down. I could see how cutting back on that would be beneficial, especially if the body has to work too hard to break it down like if people have things like a gluten intolerance. My friend was gluten free because of celiac and just that shift away from whole grains and certain carbs really made a huge difference. It’s harder to stick to when going out to eat. How do you accomodate for when you go out to eat?

    • #18636
       Colleen Steele 
      Keymaster

      Stefan, I’ve heard a lot of good things about this diet, many that you have mentioned. I’m guilty of putting off starting it though. My friend keeps nudging me to give it a try. Brittany, I need to lose some weight and am just trying in general to take better care of myself.

      • #18642
         Brittany Foster 
        Keymaster

        I’d love to hear about what you think of it and how it is helping you. From Stefan’s comment, it seems like some people could really get benefits from this ! Worth a shot for sure ! And if it helps get your health back on track then it’s an added bonus.

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