How do you describe PH to others?

[Colleen]

Thank you for this important topic, @cullen, and for sharing this excellent column by @JoliefromThePHlip-side

The PH Assoication used to offer free PH Information business cards to keep in your wallet to handout when people asked about PH. It offered basic bullet points about the disease. I don’t see it on their website anymore. Does anyone know if they are still available. They were a great resourse we used when Cullen had PH.

[JoliefromThePHlip-side]

Thank you for your appreciation of the column. It was also shared on the Pulmonary Hypertension News Knowledge Sharing Platform.

I am so happy I wrote it and feel like I need to write more about PH and how it affects us. I can break that up some and just talk about one thing at a time, maybe task(s) at a time. I’m not sure, but my wheels are spinning because many people have responded so appreciative.

I will be writing about this in my next column, and I ask that people ask questions, which I can answer in the column for everyone to read. It breaks my heart that people don’t know what’s happening to them, and why.

Thanks, Colleen!

https://ph-ksp.com/how-to-explain-the-complexities-of-pulmonary-hypertension-to-others-jolie-lizana-pulmonary-hypertension-news-january-30-2026/

ph-ksp.com

How to explain the complexities of pulmonary hypertension to others, Jolie Lizana, Pulmonary Hypertension News, January 30, 2026

A powerful piece by patient advocate Jolie Lizana recently published on Pulmonary Hypertension News tackles a crucial but often overlooked challenge: how to explain pulmonary hypertension to others…

[JoliefromThePHlip-side]

Thank you for sharing this, Cullen!

It troubles me that people don’t understand what is happening to them, and why. I will be writing more on this subject!