-
how is prognosis of PAH better with CHD
I keep hearing/reading that people with PAH and CHD combo are actually better off then people with just PAH. What is the logic behind this? 😛
-
7 Replies
-
Hi Libby,
I guess it would probably totally depend on the underlying congenital heart condition that is causing the pressures in the heart to increase. For some of us with CHD this has been our “normal”. For example, some with CHD have a normal oxygen level of in the 80s and it is no concern for their CHD doctor but if you went to an ER they would probably freak out about it. Our bodies have weird ways of adapting to things that would be “abnornal’or a cause for concern in the average person without CHD. Does that make sense ? -
Yes it does! It’s just weird that research articles state this but don’t say WHY.
-
I’m sure that’s definitely part of it. Also some conditions like the one I was born with which was a large VSD caused my pulmonary hypertension as a baby but when I had the hole closed it eventually went back to “normal” until I started having problems as I got older with other heart conditions and breathing conditions. So maybe that’s part of it too because when the defect is “repaired” it helps with the pressures.
-
-
Libby, can you paste the link to the research article you are referencing? I’d like to read more about this. I think maybe they mean that PH secondary to CHD is usually less severe than idiopathic PAH, but definitely want to check out the source and the data behind this claim.
-
Yes. I’d be interested in seeing the article too because originally my PH was caused by my CHD!
-
-
Here is a related article from PHA
https://phassociation.org/patients/aboutph/diseases-and-conditions-associated-with-ph/congenital-heart-disease/-
Thank you for the link Lisa. Were you able to read the article? What are your thoughts on it? I will have to give it a read too!
-
Log in to reply.