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    • #17392
      Colleen Steele
      Keymaster

      Whether it be symptoms from your PH or just ordinary aches, pains, colds, lack of energy and other human issues, you might be tempted to reach for an over-the-counter medication to help. However, you have to consider whether it is safe for you to take so consulting with your doctor should always be your first step! You need to know if it might interact with your PH medications or effect any of your PH symptoms? PHA shared a consensus statement regarding over the counter medications that you might find helpful in understanding your doctor’s advice on this topic.

      https://phassociation.org/medicalprofessionals/consensusstatements/otc-meds/

    • #17399
      Jen Cueva
      Keymaster

      Yes, well written and great information!
      This should be a top priority for all of us!

      Thanks Colleen.

    • #17438
      Jimi Mcintosh
      Participant

      I check medication web sites, ask
      My pharmacist, read the labels. If still uncertain , call my doctor

      • #17445
        Brittany Foster
        Keymaster

        My pharmacist has been such a huge help with all of the medications. Especially the possible interactions between the medications that doctors may or may not (usually they don’t in my experience) catch. It is always best to ask for their opinions and get their input into different symptoms especially ones that are a rare complication or side effect. I had this experience when taking a SSRI medication for anxiety plus beta blockers.

        • #17464
          Jen Cueva
          Keymaster

          Brittany , I find that my Pharmacist as well as the Specialty Pharmacy Pharmacist can both be very helpful with catching any interactions. I know often the doctors forget and may not be aware of some interactions. I’m glad you’ve found them helpful for you as well.

    • #17456
      Margie Novak
      Participant

      Lucky for me I have three relatives who are I the medical profession that I can ask. My sister is a pharmacist so that is really good. And, yes, I do take over the counter drugs nothing major (aspirin, sleep aide) and I never ask the doctor. I know that is probably bad but I feel he has more important things to do than deal with my OTC medicine! But, as mentioned I am pretty well covered if I am taking something I shouldn’t.

      • #17465
        Jen Cueva
        Keymaster

        Margie, Colleen makes a great point, your doctors would most likely want to be aware of all of your meds. I understand you have many medical professionals to help but there may be something in your chart and your condition that they may not be aware of such as test results, etc which your doctor is aware of.

    • #17457
      Colleen Steele
      Keymaster

      As Brittany and Jimi mentioned, pharmacists are a good go to person if you have questions about an over the counter medication. Margie,you are fortunate to have relatives in the medical field who can also help you, that’s great! I can understand about your not wanting to bother your doctor with over the counter medication questions but I do think they would rather you ask then take a risk. For example, post transplant my son can’t take ibuprofen and recently, out of desperation, I double checked with his doctor about cough medicine. They where glad I double checked and had no problem enforcing the answer of, “No”. It’s sounds like we all are doing what we need to in order to make sure that we are taking, even if it’s over the counter, is safe for us.

      • #17466
        Jen Cueva
        Keymaster

        Colleen, yes, double checking on those meds and I’m sure pre and post transplant, certain meds have been added and/or changed quite a bit! Anytime we have a change in our medical status and a change or increase in meds, etc., double checking is the safest thing to do.

        You’re an awesome caregiver ! Your son is fortunate to have you .

    • #17480
      Colleen Steele
      Keymaster

      Thank you @jenc, I am lucky to have him. He’s a great young man and an inspiration to me.

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