Surgery for CTEPH

[Beverly Repouille]

I have CTEPH also but am not eligible. Good luck. Are you on Facebook? There are several groups/pages on there that deal with the PTE surgery. HUGS!

[Robin Frankel]

Hi, Beverly, I am not approved yet. I may have too much small vessel disease, the disease may be too extensive in general, or I may have an inherited the disease. My info is being sent to UC San Diego. Thank you for replying, but may I ask what ruled you out?

[Beverly Repouille]

For one thing, my weight. I’m working on that. The second is I think my pulmonologist said the clot residue was too far down to remove. But since I’m scared of surgery anyway, it was OK by me! LOL!

[Robin Frankel]

Thank you Beverly, and good luck to you!