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  • Rosemary,
    Thank you for this information. I am on Opsumit also and I forgot about this being a rare side effect. I am going to get my CBC done because of your notification. I think I am alright, but I want to be sure. So far, the only side effect I am aware of is water retention. I gained several pounds once I started on this medication and was…[Read more]

  • Jan McCrory posted a new activity comment 1 year, 10 months ago

    Thank you, Brittany!!

  • Jan McCrory posted a new activity comment 1 year, 10 months ago

    Hi Brittany,
    I, too, love Pilates. I do them in a group a couple times a week. Or should I say, when I can get there. I have been working a lot lately and my work schedule hasn’t fit by Pilate schedule. However, I just solved this last weekend. A friend of mine sold me her brand new Pilate machine. It has basically everything that the machines…[Read more]

    • Jan,
      Even if you can’t get to it every day, it’s still amazing that you are finding time and some strength during the week to do this and work on being the best YOU possible ! That’s the most important thing is to take it day to day and do what you can do comfortably and feel okay about it. I agree that there definitely are lots of medicines out…[Read more]

  • Jan McCrory's profile was updated 1 year, 10 months ago

    • Hi Jan,
      I just read through your profile and your story is very motivating to others who will read it. I know how scary it is to have this diagnosis and know the emotional toll that it takes on us. I was so afraid to even do any sort of exercise after being put on oxygen, but slowly have learned what I can and can’t do for exercise comfortably. I…[Read more]

      • Hi Brittany,
        I, too, love Pilates. I do them in a group a couple times a week. Or should I say, when I can get there. I have been working a lot lately and my work schedule hasn’t fit by Pilate schedule. However, I just solved this last weekend. A friend of mine sold me her brand new Pilate machine. It has basically everything that the machines…[Read more]

        • Jan,
          Even if you can’t get to it every day, it’s still amazing that you are finding time and some strength during the week to do this and work on being the best YOU possible ! That’s the most important thing is to take it day to day and do what you can do comfortably and feel okay about it. I agree that there definitely are lots of medicines out…[Read more]

  • Is anyone on Opsumit 10 mg? I started it a few weeks ago, but now I am experiencing my feet and stomach to swell. Does anyone else have these symptoms?

    Thank you!

  • I was diagnosed with PAH a few months ago and was put on Viagra. It made my blood pressure so low that I was dizzy all the time and it caused excessive head sweating that I could not tolerate. So, I am now on Opsumit 10 mg. I seem to be tolerating it ok except for retaining fluid in the feet and my stomach. I had an old Rx. of Hydrodiurill 25 mg,…[Read more]

  • Jan McCrory posted a new activity comment 1 year, 11 months ago

    Hi Kathleen,
    Thank you for reaching out to me.
    For now, I have no questions other than how everyone in this group is coping with having PAD.

  • Jan McCrory became a registered member 1 year, 11 months ago

    • Hi Jan! So great to have you here. You have an amazing story to share. I’m located in San Francisco, California – maybe we can meet in person sometime! Let me know if you have any questions. I look forward to reading more of your posts.

    • Hi Kathleen,
      Thank you for reaching out to me.
      For now, I have no questions other than how everyone in this group is coping with having PAD.

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