• Ally posted a new activity comment 10 months, 3 weeks ago

    Hi Amy, welcome to the forum. My name is Ally and I’m one of the forum moderators. I hope that this community can be a source of information and support to you going forward. Is there anything in particular you’d like to know more about or talk about with other community members? Looking forward to getting to know you more. Please let me know if…[Read more]

  • Ally posted a new activity comment 10 months, 3 weeks ago

    Hi Tom, welcome to the forum! My name is Ally and I’m another one of the moderators. What brings you here? Is there anything in particular you’re looking for from this community? Really looking forward to getting to know you more. Welcome!

  • Ally posted a new activity comment 10 months, 3 weeks ago

    Hi Mimi, welcome to the forum! I’m Ally, another one of the moderators. What brings you here? Are you looking for anything in particular from this community? (i.e. info on specific topics, support, etc.?) I would love to hear more from you. Welcome!

    • Thank you all for your responses. I was diagnosed with IPAH in 2002 and I am doing well due to the great care I receive from the team at the University Hospital of Colorado. It is helpful to read others comments such as the current one on the effect of changing weather. Look forward to learning more.

  • Thank you, Brian! That’s good to hear. 🙂

  • Ally posted a new activity comment 10 months, 4 weeks ago

    Hi Jennifer, welcome to the PHN forum! I’m Ally and I’m one of the forum moderators here. If you have any questions or suggestions about the forums, please feel free to reach out to me or Kathleen. Thank you for joining the community. I hope you find it helpful for connecting with other patients and finding information. Are there any topics you’re…[Read more]

  • Thanks, Denny. If I come across anything that I think might be helpful to you, I’ll be sure to share it, and hopefully our other members can chime in with suggestions as well. Good luck in your search. 🙂

  • Thanks for responding, Brandon. You bring a really unique perspective to the community and I’m looking forward to hearing from you more! Glad you’re enjoy the content so far, too. 🙂

  • Hi Brandon, welcome to the PHN forum. My name is Ally and I’m one of the moderators. This is a really interesting topic. I don’t have PH either but I’m learning a lot from this community. Where does your interest come from? By the way, if you have any questions or suggestions about the forum, please let me know. 🙂

  • Ally posted a new activity comment 10 months, 4 weeks ago

    Hi Elaine, wow, that’s a difficult situation. Has your doctor explained why it won’t work? Have you discussed different options for getting the kidney stone removed? I’ve heard those can be quite painful and I’m sorry to hear you’re experiencing that.

  • Ally posted a new activity comment 10 months, 4 weeks ago

    Hi Elaine, thank you for joining the Pulmonary Hypertension News forum! It’s great to have you here. My name is Ally and I’m one of the forum moderators. I’m available if you have any questions or suggestions about the forum. Welcome!

  • Ally replied to the topic Adempas, anyone? in the forum Treating PH 11 months ago

    Hi Liz, you might want to check out this archive of articles about Adempas on PulmonaryHypertensionNews.com: https://pulmonaryhypertensionnews.com/tag/adempas/ There may be information there for you that can help in your decision-making.

    Welcome to the forum!

  • Thanks for sharing, VK. Is adoption something you’re looking to pursue in the near future? I don’t have PH but I have considered adoption as well and I’m curious to hear about another family’s experience.

    I’m Ally, by the way, one of the forum moderators. I’m here if you have any questions or ideas for discussion topics. Thanks for being part of…[Read more]

  • Thank you for sharing your experience, VK. I’m sure that’s made life very different for you. Have you found any coping strategies or medications that help?

  • Ally replied to the topic Foot Pain in the forum Side Effects and Symptoms 11 months ago

    Hi Julie, thank you for sharing your experience with the other members. My name is Ally, and I’m one of the moderators of this forum. What brought you to the PHN forums? What do you want to talk about most with other people who live with PH?

    If you have any questions, or suggestions for topics, please let me know. Thank you for being here! 🙂

  • Hi everyone,

    I live in Toronto and I’ve noticed lately that the days are definitely starting to get shorter. The sun doesn’t rise until almost 7am and it’s starting to set awfully close to the time when I leave the office. I sometimes struggle with feeling blue in the winter because of the lack of sunlight, and I’m trying to think ahead about…[Read more]

  • Ally posted a new activity comment 11 months ago

    Welcome to the PHN Forums, Kathy! I’m Ally, one of the moderators. If you have any questions or suggestions about using the forum, please let me know. We’d love to know more about you and what brought you to this community, too. Are you a patient or caregiver? Ho has PH impacted your life?

    Your cat is very cute too, btw!

  • That’s awesome, Vanessa! Thanks for sharing the Twitter boot camp link, too. I’m a heavy Twitter user but I know several people who would benefit from seeing this and I’ll share it with them. Cheers!

  • Ally replied to the topic Foot Pain in the forum Side Effects and Symptoms 11 months ago

    Thanks for sharing your experience, Ron. I would be curious to hear if things improve with your new shoe inserts.

    P.S. I’m Ally, one of the new forum mods — nice to meet you!

  • Hi Robin, thanks for responding. My name is Ally and I’m one of the new forum moderators. Brittany will be away for the next few weeks so I’m filling in. I’m sorry to hear your patients aren’t as open-minded or receptive to you using supplemental oxygen. Have you ever tried talking to them about it and explaining your diagnosis? Have you…[Read more]

  • Thanks for responding, Randolph. I’m glad to hear you have learned coping skills that are helping you and that you’re also under excellent care for PAH.

    As a forum moderator, my role is to answer questions and support members in being engaged and connected to each other. If you have any suggestions as to how to make the forums better, please let…[Read more]

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