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Name

Barbara Starace

Gender

Female

Location

New York City

Relationship

Caregiver, Spouse of patient

Short Bio

I have been my husband’s caregiver for some time as he is also on dialysis 3 times a week and I go with him due to his having ph and is on oxygen 24/7. Right now he is doing as well as can be expected but I do get overwhelmed with the burden of his care and I do not have any time to do anything for myself. I know I must take care of myself but I keep losing weight due to the stress and having to care for him and also our home et.  My children are of some help but they have their own lives and we try not to be a burden on them. Thank you for listening to my tale of woe, but basically I am just happy to be here with him every day. Barbara

 

Diagnosis

Group 5: PH due to Associated Diseases

What PH therapies are you taking? Mark all that apply, including medications you are no longer taking.

Oxygen, Adcirca

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