• Hello,
    New to group but not the condition, diagnosed about 7 years ago. Just recently returned from a Maine trip that included a lot of walking with the family (spouse plus 4 young children) and it’s incredibly hard. Our kids know daddy gets tired, and the older three kind of know, but the daily effort albeit with my wife’s incredible support,…[Read more]

  • Paul posted a new activity comment 8 months ago

    Thank you. Being diagnosed six years ago, life has been an adjustment and responding well to the medications. With four young children (ages 3, 12, 14 and 15) not much time for rest! Looking forward to contributing and learning.

    • Wow Paul,
      You certainly have your hands full with your children! I’m so glad you have responded well to the medication.

  • Paul became a registered member 8 months ago

    • Hi Paul,
      I am one of the moderators of the forums and I just wanted to welcome you to the group. I’m glad you became a registered member and I know that this forum will be a great resource for you and place of support. How have your treatments been working for you? I hope you are doing okay! We are looking forward to connecting with you more here ūüôā

      • Paul replied 8 months ago

        Thank you. Being diagnosed six years ago, life has been an adjustment and responding well to the medications. With four young children (ages 3, 12, 14 and 15) not much time for rest! Looking forward to contributing and learning.

        • Wow Paul,
          You certainly have your hands full with your children! I’m so glad you have responded well to the medication.

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