• I’m following this, because oxygen delivery has been my biggest hurdle. Some mention “raised diaphram”, what is that and what are the symptoms. Anyone have stomach bloating related to food and breathing issues?

  • Thank you all, for all the information. I have a home concentrator and travel with E tanks, 8-10L and 15 with movements.
    It has been a bit much. If it wasn’t for friends and family, I don’t know where I would be, they will carry tanks so we can go outside and play. At times, I don’t want to go out, because of the hassle of getting ready to go…[Read more]

  • I’m interested, can you forward the information.

    Thanks Brittany

  • Cynthia posted an update 1 year ago

    Been through so much. I have 3 diagnosis working here, it apparently was started with autoimmune disease, but I have been denial throughout it all. I thought I was getting the best care, I tried it their way, but it was money and experimental driven. I went back to my doctor who first diagnosed me, and I’ve been healthier and happier. My ph…

    [Read more]

    • Hi Cynthia,
      I know that you aren’t alone with autoimmune disease being an initial diagnosis. I know of othera who have RA or other types of autoimmune diseases like Lupus that end up impacting their breathing and contributing to PH. Do your doctors work well together to create a good care plan for you that takes all of your conditions into…[Read more]

  • My feet used to hurt to walk/stand, so I bought birkenstocks, which helped me. Strange but true, this was the only thing that helped me. This forum is awesome, I just realized I’m not alone. Thank you all

    • Hi Cynthia,
      I’m so happy that you found the forums and are already replying to some of our topics and noticing the support that we have for one another. That is great to know about those shoes ! A lot of my teacher friends (when I taught) just loved those shoes too and found them so helpful especially being on our feet all day long as a teacher!…[Read more]

  • Cynthia posted an update 1 year ago

    Thank you for having me!! I was diagnosed in 2009 with pulmonary hypertension.
      • Hi Cynthia,
        Welcome! As Kathleen said, we are here for you and this forum is a great place for support. I can see that you have had PH for about 10 years now. Do you find that your treatment plan has improved since then! I’m sure you have seen a lot of changes (hopefully positive changes with different meds and new advances in the last 10 years!)…[Read more]

    • Cynthia's profile was updated 1 year ago

    • Cynthia became a registered member 1 year ago

      • Welcome to our forums, Cynthia! What is your connection to PH? I hope you will continue to fill out your profile and tell us more about yourself. Let me know if you have any trouble using the site – I’m here to help!

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