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  • dan posted an update 4 months ago

    Thin Mint Girl Scout Cookies

  • dan posted an update 5 months ago

    Dear People – re : POCs – Does anyone know of a specific machine that produces continuous flow of 6 liters per minute ? thanks. dk

    • Hi Dan,

      As far as the POC goes, I only have the Inogen which is pulse flow and unfortunately not enough for me.Phillips had a brand that went up to 5 liters if I remember correctly, but the battery ran out pretty quickly and i felt like I always had to charge it. It also needed to be pulled and was too big to fit in a backpack style.

    • dan posted an update 6 months, 2 weeks ago

      Happy New Year almost ! 12/26/19 issue of NEJM has an article about HHT by Schotland et al . peace dk

    • dan posted an update 6 months, 2 weeks ago

      Remarkable person Brittany ! Want to wish you the absolute best of that, that is. May your pains be short , temporary and rapidly reducing in impact. peace dankane

    • dan posted an update 6 months, 3 weeks ago

      Hi ! Very pleased to report that yesterday i received from a compounding pharmacy, Rose Geranium and Sesame Oil, per Scott’s suggestion. This is a huge positive!! When i use my concentrator my nose is improved yet not great. Yesterday, was gone all day on tanks and my nose became very caked – will spare the details but breathing was clearly…[Read more]

      • That’s great, Dan! It’s very helpful when our forum members keep us updated with progress from suggestions shared, so thank you! Let us know if you get that ultrasonic humidifier and what you think of it.
      • dan posted an update 6 months, 3 weeks ago

        Pease know i sent the link to my Doc and am awaiting the reply. No compounding pharmacy within 50 miles however… and am unsure if is has an affordable cost. This seems a most reasonable option however. To all and SCOTT esp – Thanks. peace

        • Hoping that you were able to get some type of reply back, Dan! Keep us updated on how things are moving along for you. I know that this is probably a crazy time of year for pharmacies and hospitals especially nearing the end of the year. Looking forward to your update!
        • Hi- Interesting and as usual ,useful topic. Always learn something here…Thanks each and all ! RE: Nosebleeds- i occasionally have them primarily due to dry winter Minnesota air and O2 24/7 although my oxygenator has a water reservoir. Found that of the 6-8 products tried for dry/blood and caked nose, Arm and Hammer ‘Simply Saline Nasal Mist’…[Read more]

        • just wishing you the absolute best of that that is……… peace

        • dan posted an update 11 months, 2 weeks ago

          i do read select articles you kindly post. Thx !! A quick comment : When in the Peace Corps in 2005-06 i froze. This gave me CREST Syndrome which gave me an enlarged right heart and PH. On 02 for about three years… While terrific that there are medical benefits for Veterans- who i lived w/ in ’06 in DC for my first amputation, i mourn the…[Read more]

          • Hi Dan ,
            I’m really sorry that this is what contributed to/ caused your PH for you. I can imagine how difficult that is to have that as the cause. Is there treatment for you or anything that can improve some of the symptoms that you are going through? Have your doctors been in agreements that this is what is the cause of your PH? I am not…

            [Read more]

        • dan became a registered member 1 year, 3 months ago

          • Hi Dan,
            Welcome to the PH forums. I can see from your user profile that you heard about us through the Bio News website. Are you also a member of the Facebook group for PH News and do you read our columns? I hope that you can find these forums helpful. I know they have been a great support for me as well as many of our members and we are happy to…[Read more]

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