• Ellen Johnson posted a new activity comment 4 months, 4 weeks ago

    Dear Brittany, Thank you for responding. My PH may be due to my other diagnosis,Myelodysplastic Syndrome (bone marrow cancer). I also have regurgitation from all heart valves. I have chest pain,weakness and fatigue. I don’t tolerate heat well. I was diagnosed from a heart cath last month. Am not receiving any therapies so far. I…

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  • Ellen Johnson became a registered member 4 months, 4 weeks ago

    • Hi Ellen,
      I wanted to welcome you to the forums. I see that you are a PH patient. I hope that the therapies have been helping with some of your symptoms. How long ago were you diagnosed? What symptoms were you experiencing that led you to seek out a diagnosis? I am one of the forum moderators here and also have PH due to underlying…

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      • Dear Brittany, Thank you for responding. My PH may be due to my other diagnosis,Myelodysplastic Syndrome (bone marrow cancer). I also have regurgitation from all heart valves. I have chest pain,weakness and fatigue. I don’t tolerate heat well. I was diagnosed from a heart cath last month. Am not receiving any therapies so far. I…

        [Read more]

    • Welcome Ellen to the PH Forums! I read in your profile that you were just diagnosed with PH and have co-existing conditions. You probably feel overwhelmed but I’m certain that you will receive lot’s of support and information here plus help others based on your own experience. Let me or our other Forum’s Moderator, Brittany, know if you…

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