• This was sent to me by a PHriend that is on my personal PHight page.

    “Hey i just wanna let u know that everything you have done for me has been amazing ur guidence through this process has been great not knowing that my time is drawing near and learning to expect it moving forward and not giving in im very thankful that you have helped me in so…[Read more]

  • “You don’t look sick” and my response is raising my shirt and saying “you see this pump it’s a Remodulin subq and I don’t have it in my stomach for looks or for fun, it’s keeping me alive along with two pills I take.” They always say oh and that’s it. I also donthis when people get mad for me parking in handicap.

    “How can you be sick if you’re…[Read more]

  • When ever the seasons change, my body feels it even if I’m not outside. I do great I’m the spring and summer.Heat is my friend but when fall and winter come around my breathing gets harder and I feel more weak and have less energy.Whenever the wind blows no matter the season my breathing is hard as well. I dread when winter comes because I feel…[Read more]

  • Aubrey became a registered member 4 months, 2 weeks ago

    • Hi Aubrey,
      I am one of the forum moderators along with Colleen Steele so I just wanted to reach out and welcome you to the forums. I see that you have been a patient for almost 10 years. I’m sure getting this diagnosis right around your 30th birthday was scary and surprising to say the least. I am glad that when you started educating…

      [Read more]

    • Welcome Aubrey to the PH Forums! I’m certain that you will receive lot’s of support and information here plus help others based on your own experience. Let me or our other Forum’s Moderator, Brittany Foster, know if you have any questions using the forums. I look forward to learning more about your personal journey.
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