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  • Grace Olive Collins posted an update 1 year, 10 months ago

    Dear Brittany ref changes both mental and physical after my prognosis of IPF Vasculitis And Pulmonary Hypertension, certainly huge changes to my whole lifestyle .After all the mind and body work together.
    I am on oxygen 24/7 and have been thinking of it as “my lifeline medication” together with steroids and Morphine when required,the oxygen being my main medication.
    I have already past my expected prognosis date by six months.I have a very positive mindset on this! I am feeling better daily .At Christmas I could not shower comb my own hair or walk! Now I can do all of that The walking is very slow with my walker to carry my mobile oxygen as the weight hinders my breathing.I need to stop after maybe ten or more steps to recover from the effort .I know that any quick move maybe a disaster for me.I exercise very wisely, as a Retired MCSP I am well aware of what I can manage! With exercise in mind I have some very strong thoughts on posture MSK and daily body use Especially for those that suffer with lung and Heart pathologies! We need the ‘space’ around our fibcage for maximum breath. I have written out a short Posture programme which I am happy to share should anyone be interested Very Brest wishes to you Brittany and all participants on this much appreciated
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