Jen Cueva

Aww Chris, love it ! I have had several Mini Schnauzers, my previous one was my boy, he was salt and pepper, he was stolen, unfortunately years ago! My heart was broken as I had never been a huge animal lover and initially bought him for my hubby, he ended up being my sidekick, lol

About 4 years ago we decided to get a female , she was almost…[Read more]

Thanks Colleen, haha, don’t feel bad, I know you’re not the only me who hasn’t cleaned the filters. I still have my oxygen guy come out every few months to check my machine , but I DO clean the filters and was told we all should to be sure they are working efficiently.

I have an Invocare home-fill system , which is the concentrator on the botto…[Read more]

Aww thanks Colleen, I’m happy to be back with y’all !

Funny story on the car , we have been to non-smoking places and I tell my hubby, someone is smoking, later he finds a man smoking just outside the area we were in. Yes, can’t hide those smells ! Lol , yes that Vick’s is horrible and most people want you to use that when you’re sick, not this…[Read more]

Cris, Colleen is correct, that’s a great place to find PH Materials to hand out . Calling or emailing them at PHA and they can help you and are very friendly as well. Please let us know if you need additional help.

BTW, is that a Mini Schnauzer in your pic?

I use a HOC as well as a POC when I get out of the house for very long. I live on the Texas Gulf Coast, so it’s always hot and humid it seems. Neither of my oxygen machines do well with heat and direct sunlight so it can become challenging.

For my HOC, I put my concentrator in the next room, adding an extension connected to my cannula. I know n…[Read more]

Ohh JImi, I’m sorry you’re not getting much sleep even with the CPAP. That just be frustrating to say the least !

I don’t have Narcolepsy, but cannot imagine that on top of PH and everything else . Colleen offers some good suggestions as in my bedroom we do use the black out curtains.

@colleensteele, it breaks my heart that a pediatric PH ki…[Read more]

Wow, Christopher, you have a full plate, to say the least ! I’m so sorry you’re having these issues as I know for myself, I need as much “ beauty rest “ as I can get most days. I can’t even begin to imagine how you function, my grogginess is definitely not close to what you experience, I’m sure!

It sounds like you have a well experienced…[Read more]

Great way to find solutions, Jimi! You are so correct as those strong and pungent smells are the worst!

Is the Pet Fresh Carpet you’re getting a neutralizer, not scented ? Thanks for sharing .

I seem to have such a keen sense of smell since PH, Colleen! I find that cigarette smoke is definitely a huge one, my Stepdad smokes and smells like it , he knows I rarely spend too much time around him as he cannot stop the smoking for more than like a few hours. Just sad!

Mostly things like Vick’s and strong odors seem to affect my b…[Read more]

That’s so sweet Wilma. I just wanted to let you know that @colleensteele made a new forum, called Upcoming Procedures and you’ll find more updates there .

It’s also for all members who are having tests or hospitalizations so that we can offer support and encouragement as well as stay updated .

Thanks again..bear hugs are always good.

So thoughtful and true, Ron!
She’s one strong Warrior and huge inspiration to us all!

I continue to keep Brittany in my thoughts and prayers. I know she has a long road of recovery but I also know she’s one Mighty Warrior and will get through this , one day at a time!

I am in awe at the huge support for Brittany! She continues to improve and I know she’ll feel the love when she’s able to be back on.

She’s one mighty warrior!