Jen Cueva

Thanks, Shannon,
You kind words mean so much, Today is some better so hoping the sleep and rest helped.

So true, often we need the sleep although we would rather do something fun.

Hugs back to you – enjoy the rest of your Sunday.

Brittany, my heart crushed as I just read your column. I knew you mentioned you were struggling while writing it. I cannot even imagine how very hard this was and is for you.

I cannot even attempt to imagine how you must feel when these comments come at you. I know that just mentioning a pregnancy test probably causes a ton of emotions.

Your…[Read more]

Hi Beverly,
Yay! I am so happy that you will be having your RHC this Friday. I hope and pray that it gives you and your doctors some answers.

As far as attitude, I usually wear work out clothes, something loose and comfy. I am not sure if they will go in the groin, neck, or wrist. I have had both the neck and groin.

Deodorant is fine. Make-up…[Read more]

Hi Beverly,
I am happy to hear that you will finally have the heart cath this coming week. I am hoping that they can start you on the best treatments for you. Some are able to continue working once they start their treatments. I am sure that teaching can be emotionally and physically draining.I hope that you are able to rest on the weekends as I…[Read more]

Yes, it is, Brittany. I learn daily as well. I think you share a great tip, to write things down that you can ask your doctor about. I need to start doing that. I have CRS and forget continuously, especially when it comes to appointments.

My thoughts and prayers continue to be with you and I hope there is some way that you will be able to get the…[Read more]

Wow, I am impressed and appreciate so much awesome feedback here. I have so many options and things to decide on.

I like the reusable heat packs that you speak of @robin-webster and @mamabear007. It remained of the ones that Colleen shared with us that used corn.

My hubby came home yesterday from Costco and said he almost bought me a weighted…[Read more]

I apologize y’all. I was dressed, went to eat and planned to take my #blue pics afterward. I ended up on the couch and in bed for the past two days. I do not know if it is PH, stress, or combination. I also think I am not quite recovered from a mini vacation. I have slept a ton, but emotionally and physically, I have not been myself.

Great topic, Brittany. Year’s ago, I would drink more than I should but I did OK. ” Sober ” by Pink was my soundtrack, lol

That was not much of an issue besides the ” paying for playing” part. My PH doctor said to drink ” in moderation”, 1-2 drinks. I think I made up back then and had up to 10 drinks over the weekend.

Then I started Prostacycli…[Read more]

It’s why we are here and try to support others. It’s touching in so many ways knowing that others care and also that something someone has been through could help.

I’ve said it and I will continue, in my 14 plus years, I really wish I had known about forums sooner. I’ve met so many in online groups and chats. I really am appreciative as we are…[Read more]

Thanks so much, everyone for sharing your thoughts and experiences. You’ve all added to my list of questions and thoughts.

I prefer it cooler to sleep because I do sweat but prefer a lightweight blanket and sheet all year, except my feet. I would think the cooling one could work. But, I also am sensitive to pressure on my legs at times. Yes, I…[Read more]

Oh yea, I forget you’re behind the scenes, too. I hope we get a notification soon to prepare. Hehe

Yes, Brittany, I SO get that! It’s not just you.

Oh, I bet, Colleen! Some of the support group meetings that I’ve attended can be scary and overwhelming for me. I’m sure newly diagnosed patients could easily be overwhelmed and terrified.

I think the SG leaders need to remember how it feels to be that newly diagnosed patient. That’s a great idea to have one specifically for the newly d…[Read more]

I totally read that and thought, Blizzard, as in DQ, ice cream- Maybe I am in need of a snack, Hehe

That is an important tip, @brittany-foster. I am also on a list with my local power company similar to that. we are total electric, so no gas, but an important tip that others may not be aware of. And, may make all of your neighbors like you more,…[Read more]

Hey Brittany and Colleen, Such clever ideas! Thanks for the laughs this afternoon. I need to up my game and start planning for Halloween, Hehe
It will be here sooner than I realize.

Brittany, I cannot wait to see all of the pics. We should have a Halloween party at BioNews. You should talk to Matt and others to make one. Maybe on a day when you…[Read more]

Welcome, Muriel,
I hope that your appointment goes well. You have been given some valuable tips from others here in this group. I wanted to add to that.

When I was transitioning to Uptravi, I had a home health nurse come out. She educated myself and family on Uptravi as she answered some questions on dosages, etc. She brought along some…[Read more]

Let me try this again, Brittany. I am so sorry that you were given such bad news yesterday, especially after all that you have been through. I hope that you were able to sleep some last night. Often, when learning bad news, I cannot rest.

Colleen offers some encouragement and truth with her words. I also relate something negative, especially…[Read more]

I bet, Brittany. As a kid, we are all so naive and innocence as you mention. I’m sure as you’ve gotten older, learning more about your body and illnesses certainly has changed. I’m sure knowing more isn’t always the best, although other times we want to know what to expect.

I often say the same as I worked in nursing. Some days, I think I may…[Read more]