Jen Cueva

This is horrible, @colleensteele! I know how much you prepared for this transition. e. My PH doctor of 10 plus years was leaving my insurance a few years back. We had to have my hubby’s HR team get involved. Even after all of that, they ended up only granting me a 3-month extension to see home. That was to give me time to transition. I called and…[Read more]

Wow, it is interesting that most experienced shortness of breath as their first symptom. @mamabear007, having pneumonia so often would be horrible. Your poor son. I would be ticked off too that the doctor failed to notice your son’s, enlarged heart. But missing that and seeing arthritis in his spine, that would tick me off more. I am happy that…[Read more]

Yes, @dawnt, my plans allow every 6 months, too. I try to do that. But, most of the time, it is stretched out a bit more, especially the years that I had so many hospitalizations. I am grateful that the last year or so has been better. This is one thing that I feel like I need to focus on.

This is an excellent conversation, and I appreciate all…[Read more]

Thank you, @colleensteele, I appreciate you and your kindness. Knowing you in this short time, I indeed say persistent, as I know that you have had to be for Cullen. I also think soft-spoken, gentle, and amazing, as well as strong-willed are a few that I think of when I think of you. Supportive, would not be left out!

You are gentle and always…[Read more]

@colleensteele, now you and @margie-novak have me craving a good Philly hoagie. I can picture it. I do not know what WAWA is but I bet I would like it, hehe.

Hi @sue-bouse-team, Yes, often, some of the foods that we need are a bit more costly. It also sounds like you explore options and know what you need for your body. That is amazing! I plan to check out that market. I will also share it with my daughter, who is a registered dietician, I am sure she has not heard of it, or she would have told me.

I…[Read more]

I am often told that caring, empathetic, hope, and passion are words that describe me. While I think that is accurate, I think of PHight that most often. But, some days, I feel like I would use the words quite and reserved to describe me. Does that surprise y’all at all? I am actually the “quite” one in my family, most often.

Wow, @colleensteele, I have to think hard on this one. It has been on my mind all day since reading it this morning. I love this and excited to hear from others,. too.

@dawnt, I love, “should have quit but didn’t”- sounds like you from what I have learned already! I love that! Keep that attitude!

Hi @traceyaustralianmigration-co-za, just wanted to pop in and see if you had updated us. I am thinking of you and hoping that you were able to have the angiogram done to see if that offers you some relief. We are here when you are up to update. I am sending you hugs and prayers.

sorry to hear about the sudden crash @alfredjohn. When that happens it does not offer much time for us to process this. As you say, it just is what it is. Carrying things over about 5 pounds is what my previous PH doctor told me to stay under. But, lifting my arms above my head, bending over simple things often “do me in”. I am grateful that I am…[Read more]

Thank you, @dawnt, I love that you remind me to think about how I feel when I help others out. I need to do this as I do tend to be the helper in my extended family, too. It can be humbling to know how much others want to help and just have no clue how to help. I am often reminded of this part when I have therapy.

This and resting and knowing…[Read more]

Thank you, @colleensteele, for your support as always! I had to laugh when I read about your hubby asking why you didn’t ask for help. I am so like that and hear that all of the time. I find that working on thee things in therapy is helping, but I continue to feel guilty more often than not.

Just earlier this week, I felt like I had pushed…[Read more]

Hi, @cdvol3gmail-com, that is a great way to look at it. I do agree. I do not find others asking for help as weak. I find that I am grateful to be of help in any way. I am working on this, too. I am unsure if this will get easy for me. Easier, I am hopeful, taking responsibility, and making myself a priority is what I have been working on in…[Read more]

Hi @alfredjohn, yes, this must be frustrating and difficult for you as you notice that you need more help. I find that most nurses would not be running a race and should slow down. I often see at my PCP appt, when the MA comes to get me, she is like 5 mins ahead of me. I often remind those who do not slow down that I am slow. This cue will often…[Read more]

Hi @rclark, wow, a farm must be a ton of work 24/7. Do y’all have help? I have another PHriend who lives on a farm, and she shares many pics on Instagram. I am in awe of all that she manages to do. It is a small farm but still looks busy. Is this farm something that y’all have always done?

I can imagine how “I need rest” is on you when you watch…[Read more]

Thank you for sharing your RHC experience, @cathyhayes. Going to an accredited PH center where the doctors are trained to know what they are looking for is always the best option if that is available. I am happy to hear that you had your heart cath there without issues. Do you know when you will have another one?

Hi @alfredjohn, thanks for sharing your experience. I love watching it as they go through with the cath. I usually start shaking and trembling from it being so cold, and they add the heaters to my bed, which almost put me to sleep. Have you used those yet?

Wow, @colleensteele, the best in the nation! I am impressed already, well until Cullen came through, hehe. JK, I am grateful that he was OK, and nothing came from that spasm. I love that Cullen has that attitude, nothing he couldn’t handle! My late Pawpaw always said, “ain’t no biggie,” and I still think of that and him when I am going through…[Read more]