Jen Cueva

Yes, I, too, am a worrier @colleensteele. You were concerned about your son and this transition. I am so happy that they were so accommodating. This all will fall into place when this is over. At least you have everything ready. It sounds like that y’all just needed to go in and meet the new team.

Try and relax some during this “break.”

@brittany-foster, thanks for a laugh! I just spit my tea out! -Hehe

I am certainly happy that that gyne appointment was not virtual. I understand how you feel about appointments. I usually have at least 1 every week, so it is a considerable change. I am going to have to go for labs within the next 2 weeks, so I will mask up and go in early and…[Read more]

@shannon4jk, how are you doing today? I am sure that mentally and physically you are drained. We are here for you. Thinking of you and keeping you and the family in my prayers.

@cdvol3gmail-com, you are so thoughtful and supportive. I am happy that you are feeling better. Thanks for the support, I am sure that Shannon is appreciative.

@dinky1952, It sounds like you are taking the precautions needed to protect yourself. It is worrisome for everyone. I can understand your concerns.

On a positive note, I am happy that your sister had is now home. My sincere apologies that she had to endure so much for kidney stones. Hopefully, since she is at home and taking her medications, she…[Read more]

I do see my eye doctor every year at a minimum. I have a horrible time with dry eyes. Like @alfredjohn, I have prescription eye drops that I use several times per day. I think that helps a for a tad. But, I was told that the oxygen levels, as well as blood flow to my eyes, is not the greatest. I am also on Revatio(sildenafil) and have been for 15…[Read more]

Hey @colleensteele, You and I plus a ton will be in line to get our salon services. That and a mani-pedi sounds fantastic today. But, first, see my kiddos and other family members that I can hug. I so am missing that touch. Family dinners will be on my list as we try to do this weekly.

Next, although it sounds strange, is to go to the grocery…[Read more]

Hey @cdvol3gmail-com, you are so kind. My pain management doctor mentioned an implanted pump. She said this may be something that we consider later.

How are you feeling? Are you ready to give that oxygen back?

We are grateful for the love and support he in the forums. It goes both ways. Sending you air hugs from Texas.

@jimi, you make an excellent point! People do tend to “social distance” themselves from us once we are diagnosed with PH. Yes, afraid of the unknown, just as my last column discussed. Great tips!

I like that y’all are making plans and doing things that you have been too busy to do. May I ask you if you can share a few of your plans with us? What…[Read more]

Thanks, @colleensteele, this is a perfect topic and excellent idea about the movie for those apart. My husband is still working, he does use a separate bathroom and shower, but that is all. Friday night, my daughter sent me a pic of her and my “son-in-love” on date night. They picked up a curbside meal for under $20 and were on a blanket in a…[Read more]

Hi @shannon4jk, I can certainly understand why you are concerned. I am sorry to hear that you are feeling so bad. I am sure that it is not easy when your kids are working. My hubby is also an essential worker, and I wipe down everything daily, too. He is still so nervous that he will bring something home.

I am happy that you have spoken to your…[Read more]

Excellent win, @colleensteele! I am happy to hear that you can rest knowing that his pediatric team will follow him until you can make this transition. This is so important, and I am sure that you can breathe a little better now.

It sounds like they were caring and supportive, which was a huge relief for you and your family. Thanks for sharing!

Hey @brittany-foster, so excited for this! This is a massive win for you and your overall health. I am happy that you plan to have the port placed on Friday. Awesome job on advocating for yourself! I hope that the infusions today helped some until you can have that port placed. Keep us posted.

Wow, @brittany-foster, that is so much for one family to deal with. Y’all are some strong women!

I do suffer from chronic back pain. Mine is more related to my kidney disease, so they say. That is usually the lower part of my back. I also tend to have pain in my upper back and shoulder areas, and this is more related to PH, I was told. For me,…[Read more]

@brittany-foster and @colleensteele music does help. I listen to music almost daily. It seems to depend on my mood. I have started writing about that, too.

Colleen, I only have seen Tik Tok videos that others have posted. I will have to check yours out, did you post them? It is funny that the boys are appalled. My daughter is not always happy…[Read more]