Jen Cueva

Colleen, such a great question and topic to bring up. I know often it seems to our family and loved ones that PH is contagious. This is one of the first that I talk about. But, I also make it known that anyone sick, I rather keep a distance, to not only protect me but for themselves, too.

I love that your son is willing to listen and wants you…[Read more]

Oh Brittany, well we are in a totally differently category, we are more like Emmy Award winners, LOL

Brittany, this one did not stain my tub or my skin. I have used some in the past that have stained my tub, more than my skin and I hate that, too.

Thanks, Brittany, the people that share their stories do not have to be on IG, but if they are I can tag them when I share their story. I appreciate your help.

I know that is right, Brittany. I, tend to have a weird schedule as my hubby has his weekend starting on either on Wednesday or Thursday afternoons. He starts his week on Sunday. I try and rest on Wednesdays more so I am ready for “his weekend”. Some weeks, that does not work.

Today, I have had my coffee, still in PJs but did do powder and mas…[Read more]

Thanks, Brittany. I know the forums and social media are great. But, having some real life social interaction is important. There are so many local groups who can offer just a check in or short visits.

@carol-alexander, if you want help in your area, please let me know and I will see what I can find to help you.

I know on days when I feel like…[Read more]

So true, Brittany, It takes a toll when our health goes up and down. Funny, I am writing about this for my upcoming column, so stay stunned for more information, Hehe

I am certainly blessed, I have heard such horrible stories of what PH can do to relationships. Jay sounds like a great guy, too. Some days, I feel like my hubby derives an award for…[Read more]

Hey Brittany,
Yes, the bath bombs help me if I soak with them. They also have helped my hubby after a 60-mile cycling ride and other cycling days. They do have magnesium in them as well as peppermint and other essential oils. I have even used a half of one, kind of hard to do but the owner said to try. I did, it crumbled then I stored the other…[Read more]

Thanks, @brittany-foster, this is a PH News Instagram project and will be shared on the PH News website, too.

I appreciate that you want to help, but I am trying to show 30 faces of PH. I am trying not to use the columnists, but you could be on standby in case someone backs out. If you or @colleensteele know any PH stories that would add to my…[Read more]

Brittany,
I hate that the dreary weather is already there in RI. A week of rain and gloomy weather certainly can impact our moods. Between that and the physical effects, as you mention, migraines, can be difficult to live with. It is much harder to smile when you feel like crap and the weather just sucks. I totally get that!

I hope that some…[Read more]

Hi Carol,
I can certainly understand how the colder seasons can be tough on you. I know that when my in-laws lived in Ohio, going there was tough for me to get out in the air. It was hard to breathe as the cold air burned my lungs.

Mentally. I could see where some have an issue with isolation as those harsh winters keep you indoors. Do you call…[Read more]

Hi Kevin,
I can understand how the shorter days and seasons can give off that effect. I am so happy to hear of your “precious spouse” who offers you love and support. It certainly makes our PH journey easier to deal with a supportive partner.

I am blessed to say that my husband is a huge support and loves me unconditionally, even on my rou…[Read more]

Brittany,
I can’t wait to read your column about meeting Carrie Underwood.

The cooler weather which came in yesterday excited me, lol
But I’m hoping it is here to stay.

The holidays are always something I look forward too. Plus a cookie cake for my birthday, lol 😆

Btw, @colleensteele, I hope that you’re celebrating YOU all weekend since…[Read more]

Welcome, Vivian,
I do not have Eisenmenger’s Syndrome, but I do know a PH friend who does. Unfortunately, she’s not on SubQ Remodulin. She’s on oral meds. If you like I can connect you with her if no one here can help.

Hi Brittany,
I think that a PICC line would benefit you foR short-term. I had one in twice for IV antibiotics and iron infusions at home. I still have the IV pole and supplies if you need to borrow, lol – some days I use it for exercise, hehe

When I had mine and complained , I thought of all of the PH patients who deal with lines continuously.…[Read more]

I just wanted to check-in and see who may want to share their PH story.I know that we have such diversity in the types of PH we all have.

Let me know and I’ll send more details.

Happy Saturday Y’all!

Hi Todd,
Brittany and Colleen offer some important tips and suggestions. I just wanted to add to that that I’m so sorry you’re going through this, Because of the complexity of PH, most doctors have no clue. I know it must be beyond frustrating for you. I hope that you will use some of the tips to find someone who is more educated in PH.

We are…[Read more]

So true, Jimi, ” no pain, no gain”, certainly is relatable in our world.

I just had the dual heart caths earlier this year and it makes it tough when both sides are sore. Often, when they go in and ” irritate” things, I find it can cause soreness, pain, and palpitations a few days for me.

Hi Beverly,
I’m sorry that you had to endure so much pain from your heart cath. I am unsure of the water test, but I do know there is an exercise-induced stress rest for those who cannot do the treadmill. They inject a medication, like adenosine that affects your heart like exercising. This test can be very uncomfortable. I know the first one I…[Read more]