Jen Cueva

Hey Brittany, I think that getting the blood word routinely is a hassle but for me, it does help limit hospital visits. I go every 2 weeks. They check my blood counts, kidney function, and electrolytes. They also do the BNP monthly and a few others. They did say that this would be ongoing for me, it has been all year so far.

I think to help keep…[Read more]

Hi Ron,
It is great to see you posting. I love your comments about Brittany and the forums. We certainly can help and support one another. I think that many read the forums and may not comment. I am hoping that they will one day feel like they can share, too and they will. Often, some rather not share their stories until they are comfortable. No…[Read more]

Hi Beth, I am sorry that you are having a tough time navigating the site. I hope that you are getting familiar with t and it comes a little easier for you now.

I am sorry that you are dealing with so much anxiety. I, too suffer from anxiety. I take meds to help me. I often start fighting in the seat, my palms get sweaty and I can’t relax when…[Read more]

Hi Carol,
I hope that you enjoyed Thanksgiving with your family.

Hypercapnia is when there is too much carbon dioxide in the bloodstream. Often, lung disorders can cause this. I thankfully have not had an issue with this unless they did not mention it.

Were you told that you have hypercapnia? Now that you mention this, I want to check my labs.…[Read more]

Thanks, Brittany. I hate when my loved ones worry about me. I mean, I an happy that they love and care or me. But, the thought of the added stress at times, I hate to see them watching me on my bad days. I know you know what I mean.

Yes, 4 hours is a long road trip to me, Hehe
My legs swell and I am so uncomfortable. I usually fidget in my seat…[Read more]

Brittany, I know here we watch A Christmas Story on Christmas day usually with the marathons, hehe

So many funny movies to enjoy. I bet it is the most TV I watch during the holidays.

Colleen, I also love the shows and movies this time of year.

Wow, Rebecca! I am so touched after reading your story. It sounds like an amazing day and spending time with your grandchildren and their families. They lucked up with the cooking husbands, hehe

I hope that you are resting as I can imagine this was exhausting. I love that you want them to have “memories of dinners at Grammy’s”.

Hey Brittany, thanks for the kind words and support.

Too funny, your Dad texts back lie my Step-Dad. LOL
My Dad still has a flip-phone. He refuses to get a new one, he only uses it to make calls. He won’t leave a voicemail, either. That is so funny!

We had a great Thanksgiving. My hubby made reservations at Maggiano’s. I was nervous because it…[Read more]

Hi Colleen, I am sorry that you are still waiting to hear back. I hope that you will get in touch with them tomorrow and get some answers. I know that I take meds, colchicine for gout flare-ups. I took allopurinol daily for some time, but it did not help me for some reason to ward off the fare-ups.

It is tough to decipher the medications and…[Read more]

Hey Brittany,
My gout was after my kidney disease. Gout for me is because the kidneys are not flushing things out as they should be. I am glad that your team is keeping an eye on your kidneys and the cysts. The kidney pain ain’t for lightweights, that is for sure. It can be horrible.

Thanks for sharing, Mistylynn. I am not sure the long road trips would be a great idea. My hubby also reminds me at times when I cannot travel, he would not like to be away from me. Especially with PH and never knowing when it wants to start sending our bodies those symptoms and then the added side effects from the meds.

I think it would be fun…[Read more]

I totally agree with you both, Brittany and Christopher. Those websites can scare the heck out of someone. I am well past my “expiration” date. Like Brittany mentions, I have no plans to go anywhere anytime soon.

So happy that you are getting started on this med. I hope that you took it last night and do not have any negative side effects. I hope and pray this is something that will help you feel better overall. I know that you have been struggling for some time, now. You certainly need a break and fast!

Please do keep us posted on how things are going.

Thank you, Brittany and Colleen. I appreciate your support and kind words. It means so much. I appreciate each of you and together we Rock! I certainly could not have done this project without the help of so many. I have enjoyed working close on this project and spreading PH Awareness in a different direction than usual. I am learning more about…[Read more]

Brittany and Colleen, I love watching those funny Christmas movies. Christmas vacation is one that we often watch several times through the holiday season. I love watching the Home Alone movies, too. I like Bad Santa and Elf, too. What other funny ones can y’all think of?

Those are always fun to watch and laugh while enjoy taking food breaks…[Read more]

Hey Brittany, I cannot wait to see the pics of BB and his Thanksgiving attire! Too funny, love that shirt!

It sounds like when our GrandPup Rosie JoLeigh comes to visit, I get in trouble for giving her human food all the time, haha
She gets lots of treats at home but mostly puppy treats and a little human food.

I am sure that BB will love the…[Read more]

Great post, Brittany. Espescelliay with the holidays nearing so soon. I like that mention the dizziness from bending over to open the oven and check on things. I also have that issue. I also get really hot fast when baking lots.

I like the Oreo truffles, too. I also do a PB ball dipped in the melting chocolate which is super easy. I also like to…[Read more]

Hi Colleen, I am sorry to hear that Cullen is experiencing so much pain. I do also have Gout. I did not have any issues until my Kidneys were affected. I have meds to take that do help my gout. Although, as Kevin mentions, these meds can be tough stuff. I am only allowed to take it occasionally.

I am grateful that his heart and lungs are doing well.

Hi @purpleivy34, I know it is awful that they tend to treat the portable oxygen concentrator( POC) as a “luxury” item. That is crazy to me. I am hopeful that in the future this will change.

Are you a truck driver or a wife of one? My hubby is a diesel mechanic and we talk about how it would be interesting to be on the other side. I enjoy going…[Read more]