• I am having a rough time with that also. Bronchoscopy result is sarcoidosis. Waiting for appt with new cardio re the PH and now my knee has given out. Going to ortho today. In between pcps so original cardio dr did paperwork for fmla for me but I hate missing time – using my pto up and it’s just a pain . Wish I could retire but not there yet but w…[Read more]

  • Lynn posted an update 2 weeks, 5 days ago

    Anyone else have a hard time posting here? I get a message that I used an inappropriate word all the time and I have no idea what word is wrong or why . Any tips on how to get a post to go through? Thanks

  • Lynn posted a new activity comment 1 month ago

    Bronchoscopy went fine yesterday . They said might cough up some blood but I had not until this afternoon. I guess still within normal but still unsettling to see now . Did that happen for you Brittany?
    • Lynn posted a new activity comment 1 month ago

      I will review soon. Bronchoscopy went fine . Thank you.
      • Brittany, will def be praying for you . I am so new to all of this I can’t answer any questions but just have faith and know that so many are praying for your swift recovery !

      • Lynn posted a new activity comment 1 month ago

        Just the bronchoscopy tomorrow. I really don’t know much about the PH yet. I was at the lung dr- Temple in Philadelphia- and he said he got a copy of the echo and I showed the PH. I never heard of it before then. He said I should be on a diuretic. I called the cardiologist right away and they put me on hydrochlorothyrazide . I only saw a n…

        [Read more]

      • Lynn posted a new activity comment 1 month ago

        Thank you so much for ur response. You made me feel a lot better and a laugh is nice too ! Knowing someone with PH had a bronchoscopy and got thru it helps. The dr said it’s high risk cause of the PH so I’ve been terrified. Looking forward to learning more about PH and all of you too ! Thank you!!
        • Lynn posted an update 1 month ago

          Hi all. I have had high blood pressure for awhile and dr ordered an echo . I also had a ct scan following a chest X-ray for bronchitis. 5 years ago was told following a ct had nodules and inflammation. Recent ct showed more so during the pulmonologist visit I was informed about the PH. It’s been an immediate kick in the pants to get my health t…[Read more]

          • @kylie2002 Thank you for sharing your story with us. I also have a few nodules on my lungs that they watch with xray and ct scan. I am sorry to hear that you have had those bouts of bronchitis. Have you been given a right heart cath to determine your pulmonary pressures or did they see the elevated pressures on the echo? I had a bronchoscopy…

            [Read more]

            • Lynn replied 1 month ago
              Thank you so much for ur response. You made me feel a lot better and a laugh is nice too ! Knowing someone with PH had a bronchoscopy and got thru it helps. The dr said it’s high risk cause of the PH so I’ve been terrified. Looking forward to learning more about PH and all of you too ! Thank you!!
              • Lynn replied 1 month ago
                Bronchoscopy went fine yesterday . They said might cough up some blood but I had not until this afternoon. I guess still within normal but still unsettling to see now . Did that happen for you Brittany?
              • @kylie2002 we can all sympathize with how frightened you feel. It sounds like your doctor is taking all the right steps. Is he/she a PH specialist? Will they be doing a right heart cath at the same time as the bronch? As questions and concerns come up please reach out so we can support you. I’m glad to hear that you are not symptomatic.…

                [Read more]

                • Lynn replied 1 month ago
                  Just the bronchoscopy tomorrow. I really don’t know much about the PH yet. I was at the lung dr- Temple in Philadelphia- and he said he got a copy of the echo and I showed the PH. I never heard of it before then. He said I should be on a diuretic. I called the cardiologist right away and they put me on hydrochlorothyrazide . I only saw a n…

                  [Read more]

            • Lynn posted a new activity comment 1 month ago

              Thank you.
              • Lynn posted a new activity comment 1 month ago

                Thank you.
                • Lynn became a registered member 1 month ago

                  • Hi Lynn ,

                    Just wanted to welcome you to the PH forums ! I am one of the forum moderators with Colleen Steele. This has been a great group of people and I am so glad to get a chance to talk with people from all over an share our experiences (both the good and the bad) of living with PH. Looking forward to having you here!

                    • Welcome Lynn, to the PH Forums! I read in your profile that you are recently diagnosed. I imagine you have lot’s of questions and concerns. I’m certain that you will receive lot’s of support and information here plus help others based on your own experience. Let me or our other Forum’s Moderator, Brittany Foster, know if you have any…

                      [Read more]

                  Copyright © 2017-2020 All rights reserved.

                  ©2020 KLEO Template a premium and multipurpose theme from Seventh Queen

                  CONTACT US

                  We're not around right now. But you can send us an email and we'll get back to you, asap.

                  Sending
                  or

                  Log in with your credentials

                  or    

                  Forgot your details?

                  or

                  Create Account