• Mandy replied to the topic Blue feet in the forum Side Effects and Symptoms 3 weeks, 4 days ago

    I have had the corners of my lower lip blue for many years.. someone told me this about 10 years ago and I brushed it off, recently a friend and I was lifting weight at the local YMCA and she said you better stop your bottom lip is blue this was prior to my diagnosis with PH and I just said it must be my iron level as I am a anemic and have sleep…[Read more]

  • Mandy posted an update 3 weeks, 4 days ago

    Wondering if anyone else suffers from blue lips… Mine is not really that noticeable and its only the bottom edge of my lips.. I also have low iron and low b12 due to gastric bypass… echo shows moderate mitral valve regur. mild LA dilating and moderate 41 RSVP for pulmonary hypertension and sleep apnea. I am going to a cardio friday that…[Read more]

    • That is a lot to go through Mandy ! I am glad that you are seeing a cardiologist that specializes in PH.I really hope that appointment helps to clarify some things for you. I would write out a list of symptoms (the blue lips included) I also get this but it is mostly around my lips and not the entire lips. Definitely looks more like a…

      [Read more]

  • I havent had the right catheter yet to see why I have PH but according to my hearth health I would think the doctor is going to say LHD. I have Mitral value prolapse, Mitral valve reg. but I also have low iron due to gastric bypass and sleep apnea which i just got my cpap machine yesterday. But any advise from PHer’s with LHD especially MVD and…[Read more]

  • Mandy posted a new activity comment 4 weeks, 1 day ago

    thank you… I just posted again! I feel so good today but very confused and scared! I see a cardiologist that specializes in this dreadful disease along with mitral value disease which I have. The things I am reading online is extremely scary even the newer released info on PH with LVD…. I feel like there i no hope right now and for…

    [Read more]

    • Hi Mandy, I remember all too well how frightening and emotional the diagnosis is and having so many questions. There are PH treatments out there that can improve quality of life. Personally, just finding the treatment that worked best for my son helped me regain a feeling of some control. Right now you might be feeling helpless but with help from…[Read more]

  • I am new here!

    I am scared and so confused over this new diagnois off of my Echogram.

    findings:
    moderate mitral valve reg.
    Mild LA dilation
    Mitral valve prolapse
    and moderate Pulmonary Hypertension

    also have these related symptoms, sleep apnea, low iron (anemia) on top of everything else so I have no clue what is causing the PH if it is LHD,…[Read more]

  • Mandy became a registered member 1 month ago

    • Welcome Mandy to the PH Forums! I am the forum’s moderator along with Brittany Foster. I read your profile and completely understand how frightened you are feeling. It sounds like your doctor is taking all of the necessary steps in learning more about where you are at in this disease. If he isn’t one, the next thing I would recommend is…

      [Read more]

      • thank you… I just posted again! I feel so good today but very confused and scared! I see a cardiologist that specializes in this dreadful disease along with mitral value disease which I have. The things I am reading online is extremely scary even the newer released info on PH with LVD…. I feel like there i no hope right now and for…

        [Read more]

        • Hi Mandy, I remember all too well how frightening and emotional the diagnosis is and having so many questions. There are PH treatments out there that can improve quality of life. Personally, just finding the treatment that worked best for my son helped me regain a feeling of some control. Right now you might be feeling helpless but with help from…[Read more]

    • Hi Mandy,
      As Colleen said, we are both the forum moderators and are here to help you ! This is really a great community of support and people who understand . I personally know what it is like to first have diagnoses of heart and lung conditions and it really is a terrible feeling, especially when reading so much online. I would recommend…

      [Read more]

  • Mandy‘s profile was updated 1 month ago

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