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    While a patient at Mayo Clinic, Rochester, MN, If had to change my site. As usual, the first 8 days felt like 2 knives digging into me! I was given a cream made only my Mayo during the first few days that lessened the pain by 85%. That was a year ago. I was told IF Mayo would give me a…[Read more]

  • Today is Monday. Last Friday I had to start a new Sub Q site. For almost 2 years, I would be in great pain for about 8 to 10 days…as so many of you have also experienced. This time I cleansed the new area; applied the “glue” wipe in the blue package; inserted the new site and then applied CBD cream around the new site. I let it “dry” a few…[Read more]

    • Mary,
      That is such WONDERFUL news to hear! I’m so happy for you that you found something that is helping with that awful pain. I can only imagine how difficult that must have been to deal with for you. This sounds like a really safe and effective way to manage the symptoms you were struggling with before. I know others will be able to…

      [Read more]

  • New site pain is common for Sub Q using Remodulin and it lasts 4 to 8 days. DON’T CHANGE THE SITE….. live thru the pain and it will lessen to no pain and the site should be good for 30 to 40 days! The old site will “tell you” when it is time to start a new site after a month +. The pain is from the strong Remodulin entering a new area of the…[Read more]

  • Mary R. Thoen's profile was updated 1 year, 10 months ago

    • Hi Mary,
      Just was taking a look at your profile! I use oxygen as well as one of my treatments. We have a forum for oxygen users if you wanted to check that out in your free time 🙂 I see that you were a college professor too. I was a teacher but for middle school special education . I miss it a lot and stopped when I had to go on disability.…[Read more]

  • Mary R. Thoen became a registered member 1 year, 10 months ago

    • Hi Mary,
      Thank you for becoming a registered member with us at the PH forums. There are a lot of different forum topics that we have already posted to look through. If you don’t see a topic but are interested in learning more about something or hearing what others have to say, you can always post a topic yourself and other members will be able to…[Read more]

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