Last summer I was teasing my dog with one of those chuck it sticks with a ball in it. I was making him jump up for it and he landed on my Remodulin line and pulled it out at the green connector. Landed me in the ER with flash pulmonary edema. Transferred to to the cardiac ICU for a couple of days of “fun”. Cleared itself up quickly, but I am…[Read more]
Brittany for @ripple76,
I have been on Remodulin for 7 years in all of it’s forms. SubQ, Inhaled, and currently IV delivered via Hickman port. I am also taking Revatio and Opsumit. Similar to Graydon, I could not walk up a single flight of stairs without feeling like I would pass out right before starting the infused Remodulin. Since m…[Read more]
I started Uptravi in March 2016. At the time I was taking Revatio (20 mg X 4, 3 times daily), Tyvaso (10 breaths, 4 x daily), Opsumit (10 mg daily), and my PAH was advancing. The plan was to eliminate Tyvaso by titrating down while titrating up on Uptravi. When I got to 800 mcg X 2 daily of Uptravi, I experienced headaches and…[Read more]
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