• Hope Britannia is doing well. She is in my thoughts and prayers.

  • My mother was getting bigger and bigger by the day. She was visiting me from India. I got worried and had an appointment with a cardiologist as recommended by my primary care. She had no insurance. The day before her appointment she didn’t wake up and I had to call 911. They told me she had respiratory failure. I was shocked and we spent 3 weeks i…[Read more]

  • Hi Britannia, that’s a great idea. Let me try it with her. Thanks much 😊

  • yes my mom is also going through the same. Especially more during the winters as it really gets dry here but doesn’t look like humidifier helps her much. She also says she doesn’t know why her mind wanders when she is actually tired and wants to sleep.

  • If you are taking any blood thinners then you may have interactions but both these were fine to take with her medications which were Revatio and Bumex. Now Bumex is only if she needs it and she hasn’t needed it at all for a more than a year. We were told to take a tea made of
    2 tsp coriander seeds to reduce her discomfort and elimate excess w…[Read more]

  • Jay posted a new activity comment 5 months, 3 weeks ago

    Hi Kathleen, we are using alternate therapies and Ayurvedic therapy is working very well for her. It took sometime to see changes but now she is doesn’t even require diuretic as her weight has been stable for the last one year. She was hospitalized 3 years ago as she was getting bigger and bigger and couldn’t breathe. Her heart enlargement was so…[Read more]

    • I’m so glad you’re seeing some improvement, and it sounds like a lot of that is due to your own research and advocacy. Your mom is lucky to have you!

  • I am a caregiver and my mom has PAH. Her biggest issue used to be her stomach was always big but she is very tiny. She wouldn’t eat because it was be painful for her. I started to research on alternate therapies and Ayurvedic medicines are working very well for her. She is able to eat well and doesn’t retain salt and water at all. But it did tak…[Read more]

  • Jay became a registered member 5 months, 3 weeks ago

    • Hi Jay, thanks so much for joining the PHN forums. It’s really nice to have more caregivers on our site. I’m one of the patient moderators and I know having community has been really important for my parents throughout our journey with PH. I’m glad to hear your mom is stable right now. Have you tried any other therapies beyond oxygen and revatio?

      • Hi Kathleen, we are using alternate therapies and Ayurvedic therapy is working very well for her. It took sometime to see changes but now she is doesn’t even require diuretic as her weight has been stable for the last one year. She was hospitalized 3 years ago as she was getting bigger and bigger and couldn’t breathe. Her heart enlargement was so…[Read more]

        • I’m so glad you’re seeing some improvement, and it sounds like a lot of that is due to your own research and advocacy. Your mom is lucky to have you!

    • Hi Jay,
      Just wanted to introduce myself. I am one of the other moderators of the group and am back from a short leave of absence because I was hospitalized. Doing much better now. You are such a strong advocate for your mom and she is so lucky to have you. I don’t know where I would be without the dedication of those who love and care about me…[Read more]

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