Base
Name

Pah Gary

Year of Birth

1960

Gender

Male

Location

Florida

Relationship

Patient

Short Bio

I diagnosed with PAH in December 2015. I was started out on Adcirca, and Letairis, which worked up until about February 2018, I started have worsening symptoms. April 2018 I failed a 6 minute walk test, and was put on O2, and increased my Letairis. May 2018 I had an echo, and then in June I had another Right heart cathe. I stayed out of the hospital until the after the PHA Conference, I checked into Florida Hospital the following Monday after the event and was put on Remodulin IV. I started at 0ne nanogram and crashed at three nanograms. I am now at 23 nanograms, moving up .5 nanograms every four days. My target is 35 nanograms. and then another echo, and possibly another RHC in February.

I have been married to my wife for over twenty years now, who also has a rare disease called Addison’s disease. It is like diabetes, except instead problems with sugars, she has issues with steroids, as her body does not produce any . She is constantly having issues keeping her blood pressure up, as where I have issues keeping my blood pressure down.

Diagnosis

Group 1: Pulmonary Arterial Hypertension

What PH therapies are you taking? Mark all that apply, including medications you are no longer taking.

Adcirca, Letairis, Oxygen, Treprostinil

Have you discussed lung transplantation with your specialist?

Not eligible for transplant

Are you interested in participating in future clinical trials?

Yes

How did you hear about the us?

Column post

How long have you or the person that you are caring for had PH?

3 years

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