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  • Randolph Reynolds posted an update 2 years, 1 month ago

    CTEPH may be getting worse. I where I live I know of no support groups or people who are battling with this ailment. Each day is a challenge.

    • Hi Randolph,
      have you asked your PH doctors or pulmonary doctors if there are any support groups that they know of? Sometimes our doctors can be a good place to inquire about this. If not, I’m sure there are others in your town with something similar or the same as your condition. I would get the word out there if there isn’t something like a support group and see if your doctor would be interested in helping you start something. As always, feel free to share anything you would like on here and just vent if you need to. I know we all have difficult days and can relate to how you are feelings on a personal level. The forums are a great place to find support and compassion from those who understand. We are here for you!

    • Good idea, maybe I need to do that in the Iowa City area. I have never dealt with a group like this, never participated in forums, etc, but I think I will learn a lot here (IF I can navigate thru the computer/internet etc!!).
        • Welcome, Barb, it’s pretty simple. Please let us know if you have any questions or need help. Here is what I found in Iowa City, there is z support group. I’ll send you the link.

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