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Name

Sarah

Year of Birth

1956

Gender

Female

Location

California

Relationship

Patient

Short Bio

After many trips to the ER in the last 6 months, and referrals to cardiology and pulmonolgy, not one has been able to figure out why I cannot walk over 5 or 10 minutes without getting breathless, racing heart and angina.

If I don’t sit down, I am unable to breathe at all, followed by feeling dizzy as if I may faint and getting mental confusion. After having to sit on several floors and curbs in order to avoid fainting, I have had to buy a walker with a seat.

I was diagnosed with asthma and a few heart things and am taking meds for racing heart and unstable angina. No one can explain why I’ve lost 30 lbs. in the last 5 months.

Yesterday I noticed one doctor’s notes mentioned  my “ECHO has shown a minimally elevated PA pressure at 39mmHg. ” She sent me back to cardiology for a repeat echo, but reading this site I’m wondering if I should request the echo while I am exercising.

Diagnosis

I don't know

What PH therapies are you taking? Mark all that apply, including medications you are no longer taking.

Calcium Channel Blockers

Have you discussed lung transplantation with your specialist?

None of the above

Are you interested in participating in future clinical trials?

I don't know

How did you hear about the us?

PH News website

How long have you or the person that you are caring for had PH?

Waiting for specific dx.

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