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  • Hi Jen and Colleen and everyone else who has left a message. Thank you for thinking of me and my kids. My Son is now home and doing well. He never needed to be on a life support. We have learned he has diabetes and high blood pressure and Doctors think that played a big part in why Covid-19 made him very sick. But he’s learning to manage his h…[Read more]

  • Thank you everyone for thinking of me and praying for me. At this time I am still at home. Waiting to be retested to make sure I am negative. Unfortunately, 2 of my kids have been hospitalized. And I have not seen them since they left here in a ambulance. They are only 19 and 20. Both aren’t doing well. I am beyond exhausted, scared and mentally n…[Read more]

  • Hi Jen. Good morning. Yes I am on top of talking to my Doctor and my daughters team of Doctors at Penn Star Children’s Hospital. I have also talked to Doctors through the Health Dept and Disease Control? More Doctors then I can keep track. All through phone calls and video chats. We will ride this out in our apartment until told otherwise or we g…[Read more]

  • Hi Jen. Thank you for asking about me and thanks to everyone else for your kind words. They mean a lot to me. I found out last night that I am positive. I think I got it on March 15 so it took about 2 weeks for me to start showing symptoms. I am still at home and maintaining. My cough is so much worse, my ribs feel cracked and probably are. This…[Read more]

  • Hello. Thank you everyone for your support and kind words. I still haven’t heard back from my test yet. But I am hanging on. I feel like I have a bad case of Bronchitis. I am still running a fever and having extreme fatigue. I also have a headache that comes and goes and some sharp chest pain around my lungs. I am still at home and have been t…[Read more]

  • I had a video appointment with my Doctor last night. I got tested this morning for the virus. I should receive the results next week. The test doesn’t hurt. It takes about 30 seconds and it’s a long cotton swab that goes deep inside your nose. They do ask a lot of questions. Who I live with, where everyone works and places I have been. I hav…[Read more]

  • Good luck Brittany and I hope it all goes well for you. I am sure it will be fine. I have a Hickman and the first one I had put in was leaking (that did hurt) and it had to be replaced. My Doctor did a good job with pain control. At first I was given to much diladidued (not sure how it’s spelled), I felt to medicated. Then before coming home t…[Read more]

  • For me personally I feel a lot better when I can eat good food. Such as fruit and vegetables and low fat meats. I always have more energy and look better when eating properly. But unfortunately I can’t afford it. Food is so expensive. A lot of food that I eat contain tons of salt, so I normally have to eat half of it (and always feel hungry) or n…[Read more]

  • Hi Brittany. I am on Zanax 1 mg as needed. I normally take one before bed it helps with sleeping. Also I take one if I am overthinking something or start feeling agitated. It’s not fast acting. It normally takes about a half hour before I notice a difference. But it has helped calm me in situations where I really wanted to yell and scream at s…[Read more]

  • Hi. I can understand what your saying Colleen. I feel bad about the worlds problems but I can only handle so much. I try not to watch the news, if so only a few minutes and then I find myself getting agitated, so I quickly turn it off. I have my daughters upcoming pacemaker surgery to a new one and it’s all I can think about right now. I am u…[Read more]

  • Hi Tricia! PH is awful isn’t it? Some days are really hard. They do have treatment available to slow the progression of the disease. I am currently on 2 different meds trying to find what works best for me. Have you seen a Pulmonologist? I think that would be your next step. And then normally a heart catheter is needed to see what level of PH y…[Read more]

  • This is a great topic! I really hope people jump in and give some positive outcomes. I am at the end of my rope and could really use some advice or feedback on what is working for other people with PH. I understand everyone is different but I need some positivity. My PH is kicking my butt! Or I guess it’s kicking my lungs! Lol

  • Hi Ally. I am glad to hear it seems to be helping with your breathing. How did you handle the headaches? They are horrible! And I never get headaches so I don’t even know how to handle them. Besides Excedrain. I have gone back down to 400 mcg twice daily and still having headaches. So I am hoping they lessen or go away completely soon! I don’t not…[Read more]

  • Good luck Brittany. I pray everything goes well. I think it would be best if they kept you overnight, give your body a chance to wake up and to make sure you are eating and drinking. Of course depending what kind of insurance you have , they might rush you out the door. They always do that to me. I keep my running shoes in one hand and my oxygen…[Read more]

  • Hi Jen! I hope all is well with you. Thanks for responding. So you take Uptravi and your on the Flolan pump are the same time? That must be a lot? How long were you taking Uptravi before you noticed any improvement in your breathing? That was good advice in saying take Uptravi at a different time the rest of my meds. I was taking all with my…[Read more]

    • Shannon,

      I am so sorry to read this about having to stay in bed. As always, you can come to the forums and chat with us here any time of day and we will always do our best to get back to you pretty quickly. I usually do other work for BioNews during the day so I am on for a few hours here and there through the day but try my hardest to get…

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  • Good morning Brittany. Sorry to hear about your achy legs. Keep a eye on it. When my legs start to really ache and I have stabbing pains it’s normally right before I pass out. That’s the first warning that I get. So I normally sit right away or I have learned to fall side ways so I land on my side. I am sure your legs are just fine but I tho…[Read more]

  • Joyce thank you for responding. I didn’t realize they could tell pressure rates through special blood work? If so does that replace a heart catheter? I learn new information everyday about PH. It’s a lot more to it then I ever thought. It’s overwhelming at times. I am sorry to hear that you have diarrhea as a side effect. That’s a very uncomfo…[Read more]

    • Hey Shannon,

      I know this post was for Joyce but I just wanted to respond too. Especially about the diarrhea while travelling and making sure to stay hydrated. Something that has helped me with restoring hydration is a combo of water and something with electrolytes in it like Gatorade. You have to make sure that you have the two in combo…

      [Read more]

  • Good morning Kevin and thank you so much for all the information. I found it to be very useful and reread it a few times. I am glad that the medicine is helping you and you seem to be doing well on it? That gives me some hope. I don’t look forward to jaw pain. That sounds like a common side effect for a lot of people. I also found the drug i…[Read more]

  • This can be a very hard topic to talk about for some people. I can understand why of course. I recently had to put my 8 year old bulldog to sleep on December 9th. One of the hardest things in my life to do. But he was suffering and it was time. And the Vet came to my Sons apartment which was comfortable and best for my dog. And as he peacefully…[Read more]

  • Hello. I hope everyone is well. I recently started Uptravia and I am having side effects. My shoulders ache, my head hurts, and I can’t sleep at night. I am not sure if not sleeping at night is a side effect or it’s just me. But it seems to be worse. I was hoping I would feel some improvement with this medicine but nothing has changed for the bet…[Read more]

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