• Shannon posted a new activity comment 5 days, 15 hours ago

    Sorry for responding so late. I have a bad case of Bronchitis and it’s keeping me down. But yes it was pill form that I stopped taking. I had extended release tablets that I was taking every 12 hours and straight morphine tablets for break through pain. I also had liquid morphine for coughing at night. So it was an extreme amount. I was so n…

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  • Well I have a list like always. Something new is I have several ingrown toenails that are being removed on January 15. Never had any problems with my feet before I normally get a pedicure once a month. But now I can hardly walk or wear sneakers. So hopefully this gets cleared up. Who knew ingrown toenails could be so painful? Lol I also need to…[Read more]

    • Hi Shannon,
      When you were stopping to morphine did they titrate you off of it or is this something that you just stopped cold turkey? Are you on any other medications for pain management that are helping you? When I feed myself at night with my tube feeds because of all the distention and swelling that it causes me, I end up having to take a…[Read more]

      • Sorry for responding so late. I have a bad case of Bronchitis and it’s keeping me down. But yes it was pill form that I stopped taking. I had extended release tablets that I was taking every 12 hours and straight morphine tablets for break through pain. I also had liquid morphine for coughing at night. So it was an extreme amount. I was so n…

        [Read more]

  • Congrats!!!! That’s wonderful! I am so happy for you Brittany. Planning a wedding is so much fun. I loved planning mine and decorating. I made a lot of things myself to save money. And I had the best food and party afterwards. People still talk about it and this was in 2008! Lol It definitely is nice to help take your mind off of health issues. A…[Read more]

    • Thank you so much! I really appreciate it a lot. It definitely is something that I now have to look forward to and save for hahahaha! I didn’t realize how expensive it all is going to end up being but I will be saving my butt off in the next year and a half preparing for this ! Lots to celebrate so far this year and I hope to stay as healthy as…[Read more]

  • My doctor prescribes me suppositories, of phedadrine ( not sure hot to spell it)or Zofran. I can also take it through a IV if my nurse is with me or in the hospital. For some reason taking it as a suppository is the easiest way for me. It works quickly and I am able to eat. Your Son probably wouldn’t like that method of treatment for nausea. Lol I…[Read more]

  • Brittany, I am sorry to hear that recovery is painful. Nothing is worse then being in pain and uncomfortable. Take it day by day and hopefully you will bounce back and be able to get the nutrition you need to stay strong. I am positive in a few weeks you will be feeling so much better and stronger with your new tube. Stay strong.

  • Brittany, I am sorry to hear that recovery is painful. Nothing is worse then being in pain and uncomfortable. Take it day by day and hopefully you will bounce back and be able to get the nutrition you need to stay strong. I am positive in a few weeks you will be feeling so much better and stronger with your new tube. Stay strong.

  • Hi Margie! I didn’t realize I could use 2 home concentraters at once? That’s great but must be loud? And yes using oxygen is very hard! And wow I never realized how difficult it can be just to breath some days. I also go low , into the 60s within a few minutes without oxygen. Do you have Intersital Lung Disease? I do and they think along with tha…[Read more]

  • Hi Brittany! Yes it is a lot to carry around and they are heavy. Some days I can’t lift them. This is where having a lot of kids comes in handy for me. Lol but my tank holder that I put my E tanks in, holds 4 E tanks. And then my wheelchair had a basket that I put some in when shopping or whatever I am doing at that time. But yup anytime I am g…[Read more]

  • I am on 10 at home and 15 when walking, I use E tanks. And I also use M60 tanks. They are huge are very heavy! But they last a few hours. Only my Sons can lift them. I keep about 20 tanks around me at all times. Yes even in the car. I have to have continuous flow of oxygen or I will pass out. And waking back up is taking longer and longer. I have…[Read more]

  • Hi Jen!! Thank you! And I hope you and your family have a great holiday season. And that it’s relaxing. Merry Christmas!

  • Oh and a big place for support is the Salvation Army! They have some of the most kindest, caring people who are willing to help. Sorry but I can’t believe I forgot to mention them! Lol they also have great church services. And offer monthly cooking classes. They even pick me up. In case you can’t tell, I am eating real food again and am always hungry. Lol

  • I found local support groups through my Doctors office and Clinic. They had signs posted up for oxygen users support group. It’s mostly people with COPD. But still a good group to meet and talk to people. Most of the time I have noticed people don’t ask for help or tell anyone that they are lonely. I do this myself sometimes. I would rather sta…[Read more]

  • Hello. I feel like I am on every forum today . Sorry if I am being excessive. But anyway lol my daughter has had a pacemaker since she was born. She was born with Complete Heart Block. She now is on her fifth one. And needs a new one implanted within the year. Her battery is dying out. She does well with it. She hasn’t had a new one since 4th g…[Read more]

  • Sorry to hear that your not able to eat Brittany. That really sucks. For a few months I could only eat soft foods. I ate would cook big batches of egg custard, if you like eggs it’s really good. It has nutmeg and cinnamon in it. It’s packed with protein . It doesn’t taste like eggs. It’s also made with milk. I can give you the recipe if your in…[Read more]

  • Hello! I get my blood work done every week by a home nurse. Traveling is hard for me. So this works out the best. She also checks my vitals, my medicine, and making sure I am eating. She also will give me meds through my port or IV, if I need fluids or any additional meds. It took awhile to get use to this arrangement. I felt like I was being…[Read more]

  • Thank you everyone for your information about Adempas. I appreciate it very much. Makes me feel better starting it knowing most of you are doing well on it. Thank you

  • Well I mentioned somewhere else where I was thankful my hair is growing back. I lost all my hair over a year ago and was completely bald, because I went through high doses of Cytoxin ( chemo) it was horrible, to say the least! But it did help me to get better. Anyway losing all my beautiful long hair, it was down to my waist. Caused me to mentally…[Read more]

  • Hi Colleen! Ok thank you! And yes I am crossing my fingers that I won’t have to many side effects. Sometimes the side effects are worse then my symptoms! Makes me research and get all the information I can before I try anything new.

  • I am getting ready to start taking Adempas and am wondering if anyone has any advice about it? Any Side effects, did it help with your symptoms? I am always scared to try a new medicine. Any information I would appreciate it. Thanks!

  • I am actually very thankful that my hair is growing back and it’s healthy and full! Silly I guess but I hate wearing wigs and I love to style my own hair. I am also thankful that I am feeling better and eating real food again! So I am a lot better then I was last year at this time. It’s hard when your sick to give thanks. But I have learned to pus…[Read more]

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