• If you don’t have a milk intolerance why not?

  • Hi Brittany, I have done a keto diet for a few years. In fact 80% of the time it’s zero carb, or carnivore as it is called online these days. I original did keto solely because I had pretty bad digestive issues, but zerocarbing was the only way I can get perfect digestion; likely due to a lack of fibre.

    However, I would need to write an essay…[Read more]

  • Hi Kathleen

    Meeting new roommates would certainly bring up a few anxieties for me as well.

    My main experiences are as living as a student. Hollywood movies are my only reference to what university life in North America is like, so naturally I have no idea how it compares to the UK. In the UK we spend are freshers year in Halls, which are…[Read more]

  • Took the words out of my mouth Vanessa

    If I want an update on my prognosis I take the dog for a brisk walk

  • Stefan Jones posted a new activity comment 1 year ago

    Hi Kathleen
    I did have a sneaky peak at your profile before registering and was amazed at the similarities. Given I am born near the end of December (20th) and was diagnosis in November of 1999, I doubt I’m even quite a year ahead! And now I learn we also share a love for crumpets. What an overwhelming day!

    I’m glad to hear you’re visiting the U…[Read more]

    • Stefan! Sorry I missed this.
      I was diagnosed February 2000 and born April 13th so you are right we are not even a year apart.
      That’s great that oral medications have helped you! I never tried inhaled therapies, but it didn’t sound like fun. Sildenafil was a super drug for me and I was so lucky to go on it when I did – kept me off the transplant…[Read more]

  • Stefan Jones posted a new activity comment 1 year ago

    Thank you for the welcoming, it’s most appreciated!

    I was pleasantly surprising to see some of the profiles on this form. It’s been a long time since I have met people of a similar age with this condition.

    Yes, I also have congenital heart disease. It is interesting that they tried to correct your defect, as they never saw mine as an iss…[Read more]

  • Stefan Jones became a registered member 1 year ago

    • Hi Stefan!
      welcome to the PH forums ! I love you “tell us about yourself” part of your bio. I can’t say that I have ever had a crumpet but I bet they are delicious ! I’m glad that you are part of these forums and became a member. It is always a good thing to have others that are around the same age as me (I am 27) who have this condition. We can…[Read more]

      • Thank you for the welcoming, it’s most appreciated!

        I was pleasantly surprising to see some of the profiles on this form. It’s been a long time since I have met people of a similar age with this condition.

        Yes, I also have congenital heart disease. It is interesting that they tried to correct your defect, as they never saw mine as an iss…[Read more]

    • Wow, Stefan, it’s amazing to e-meet a long-term survivor like you. I was born in 1993 and diagnosed in 2000 so you are just one year ahead of me in everything! Crumpets are amazing and I am going back to England (London) in January (just booked my flight 30 minutes ago!)…maybe you can recommend a good spot to eat them?
      Were you on any other PH…[Read more]

      • Hi Kathleen
        I did have a sneaky peak at your profile before registering and was amazed at the similarities. Given I am born near the end of December (20th) and was diagnosis in November of 1999, I doubt I’m even quite a year ahead! And now I learn we also share a love for crumpets. What an overwhelming day!

        I’m glad to hear you’re visiting the U…[Read more]

        • Stefan! Sorry I missed this.
          I was diagnosed February 2000 and born April 13th so you are right we are not even a year apart.
          That’s great that oral medications have helped you! I never tried inhaled therapies, but it didn’t sound like fun. Sildenafil was a super drug for me and I was so lucky to go on it when I did – kept me off the transplant…[Read more]

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