• I have had two experiences with Prednisone taken both for exacerbations. The first was back in 2014 when they did taper the medication. My latest experience was just a week ago when they prescribed even doses of two pills for five days and that’s it. It is a miraculous med. It cleared up mucus and reduced swelling. It and the antibiotic also…[Read more]

  • Dawn Alexander posted a new activity comment 1 year ago

    Hi Kathleen. Thanks for welcoming me. Yes, I was not sick enough, but I needed to get stronger and, ideally, lose a little weight. Then, I was diagnosed with breast cancer, so it all became moot. Now, I have certainly lost enough weight. In fact, I’m struggling at 120 to keep it on. My meds and oxygen continue to help me breathe. BiPaP helps me rest.

    • Oh my goodness, that’s quite the double-whammy. We have some topics in our Diet and Nutrition forum about gaining and keeping weight, which is a problem I struggled with when I had PH. My doctors kept recommending (disgusting) protein shakes, but my mom was most successful getting me to drink ice cream shakes – plenty of calories in those, and…[Read more]

  • Dawn Alexander became a registered member 1 year ago

    • Hi Dawn. I’m thrilled you’ve joined our forums and look forward to having you weigh in on discussion topics. I’m one of the moderators on the site and had PH for 16 years so I am here to answer any questions you have. I had a heart-lung transplant 2.5 years ago, but before that I went through evaluation a couple times and wasn’t listed. I know it…[Read more]

      • Hi Kathleen. Thanks for welcoming me. Yes, I was not sick enough, but I needed to get stronger and, ideally, lose a little weight. Then, I was diagnosed with breast cancer, so it all became moot. Now, I have certainly lost enough weight. In fact, I’m struggling at 120 to keep it on. My meds and oxygen continue to help me breathe. BiPaP helps me rest.

        • Oh my goodness, that’s quite the double-whammy. We have some topics in our Diet and Nutrition forum about gaining and keeping weight, which is a problem I struggled with when I had PH. My doctors kept recommending (disgusting) protein shakes, but my mom was most successful getting me to drink ice cream shakes – plenty of calories in those, and…[Read more]

    • Hi Dawn and Kathleen,
      Late to the conversation but wanted to welcome you Dawn. I am another forum moderator getting back from my hospital stay ! Glad to be able to connect with you here. You certainly have been surviving through your share of medical drama ! I know how it feels to be in that zone where you are losing weight and finding it…[Read more]

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