ronald cole

It’s crazy to look at Brittany and not honestly believe she is not unique and here for a reason. Look at the inspiration she has brought to numerous people that have ph on this site. I wish all you NON-COMMENTATORS would join us and just say something about our PH or Illness or even the sports you enjoy. It would be so great to hear from you. This…[Read more]

I am just generally pissed off when a caregiver that comes in from Medicare and says “YOU DON’T LOOK SO BAD” another one is ” you should not sit in that chair, get up and move around you will feel better”. I told the lady the other day to GO HOME AND READ UP ON PULMONARY HYPERTENSION, AND DO NOT COME BACK UNTIL YOU UNDERSTAND THE DAMN DISEASE AND…[Read more]

Dear Brittney, I just had and Idea, when I was in the hospital for 46 straight days alone with only Marines visiting me from Camp Pendleton, California, I had a pleasant surprise. I had a little Shih Tzu named Oreo, black and white. I asked a neighbor lady to watch over Oreo when I was gone. This was remarkable, one evening when it was late, the…[Read more]

My Dear Friend Brittany, I knew you were in the hospital again and had been feeling very bad, ongoing about you. I saw that so many people were writing. I would wait. Of course, we have never met. I wish I could visit and bring you a beautiful bouquet of your favorite flowers for your bedside. When I am down and hurting, you’re my inspiration, and…[Read more]

Hello Everyone,
I have not been on lately, I feel my PH is worsening. I am weaker, so much more tired. I was given a gift by the STATE OF TEXAS. I have a wonderful woman coming in 3 days a week for 5 hours each day, cleaning, changing the bed, laundry, and some cooking which for me is a Godsend.

I have developed little tricks with Hand sanitizer,…[Read more]

I want to thank Jen for the letter she wrote to Brittany with that beautiful song embedded in her message. The song, the words are a guide to Brittanny’s recovery, believe, God said that, believe, and it will all be guided for you; you will have nothing more to do. The people that love you will carry the load until your stronger

Thanks, Jen, it…[Read more]

My Dear Friend Brittany,
You were right there when I first discovered I had PH. I came home from my Initial meeting with the Doctors scared, and wondering just what was happening to me. I was told to sign up for this site to stay on top of this disease and share it with others. The Minute I was online, I met Brittany as I wrote a short note to get…[Read more]

I hope this is related. I am 78 yrs old and on the outside I look passable but when these Medicare, and recently Medicaid people come in to see or evaluate me they say ” you look good, we might be able to get you some modest assistance, (because I live alone with no family in a strange area, I lost my home and possessions in hurricane Irma”.) They…[Read more]

Brittney, they are a new company and with your situation, you might get one for free as a national spokesman for the product. ( I am always thinking)

Ron Cole

Dear Brittney,
They just came out with a PORTABLE Oxgeonater that you can buy, and I think for you possible you could get insurance to pay if you work with the company and your doctor. There are three types, all with levels up to 4 forms 1-4. It is a shoulder unit, about 3 lbs, and as you know it makes oxygen out of the air. It comes in a…[Read more]

I have had 2 open-heart surgeries, 1 in 1999 when I was 49, the other in 2012 when I was 72, the second one at 72 I had a leaky Aortic Heart valve so that had to be replaced. It was a very long, life-threatening surgery. I was in the hospital the second time for 40 days and then had to return a weak later for 7 days. They could not get the heart…[Read more]

I certainly understand the good PH day and the other days ( bad) Ph day. We all plow through all days, but it feels so go on good days to be able to think straight and get some things done. I think, for me, a good ph day is after I have gone into rem sleep, and had a great previous night. When I have tried the PH, along with sleep deprivation,…[Read more]

Dear Brittany, I appreciate your short but recent Post. I was going to write daily but knew you were not going to be able to read all of them. We all missed you and your literary Genius in welcoming the newcomers and calming us down when our minds been playing tricks on us. Did you notice that you are an Honorary Member of THE UNITED STATES…[Read more]