• It’s crazy to look at Brittany and not honestly believe she is not unique and here for a reason. Look at the inspiration she has brought to numerous people that have ph on this site. I wish all you NON-COMMENTATORS would join us and just say something about our PH or Illness or even the sports you enjoy. It would be so great to hear from you. This…[Read more]

  • I am just generally pissed off when a caregiver that comes in from Medicare and says “YOU DON’T LOOK SO BAD” another one is ” you should not sit in that chair, get up and move around you will feel better”. I told the lady the other day to GO HOME AND READ UP ON PULMONARY HYPERTENSION, AND DO NOT COME BACK UNTIL YOU UNDERSTAND THE DAMN DISEASE AND…[Read more]

  • Dear Brittney, I just had and Idea, when I was in the hospital for 46 straight days alone with only Marines visiting me from Camp Pendleton, California, I had a pleasant surprise. I had a little Shih Tzu named Oreo, black and white. I asked a neighbor lady to watch over Oreo when I was gone. This was remarkable, one evening when it was late, the…[Read more]

  • My Dear Friend Brittany, I knew you were in the hospital again and had been feeling very bad, ongoing about you. I saw that so many people were writing. I would wait. Of course, we have never met. I wish I could visit and bring you a beautiful bouquet of your favorite flowers for your bedside. When I am down and hurting, you’re my inspiration, and…[Read more]

  • Hello Everyone,
    I have not been on lately, I feel my PH is worsening. I am weaker, so much more tired. I was given a gift by the STATE OF TEXAS. I have a wonderful woman coming in 3 days a week for 5 hours each day, cleaning, changing the bed, laundry, and some cooking which for me is a Godsend.

    I have developed little tricks with Hand sanitizer,…[Read more]

  • I want to thank Jen for the letter she wrote to Brittany with that beautiful song embedded in her message. The song, the words are a guide to Brittanny’s recovery, believe, God said that, believe, and it will all be guided for you; you will have nothing more to do. The people that love you will carry the load until your stronger

    Thanks, Jen, it…[Read more]

  • My Dear Friend Brittany,
    You were right there when I first discovered I had PH. I came home from my Initial meeting with the Doctors scared, and wondering just what was happening to me. I was told to sign up for this site to stay on top of this disease and share it with others. The Minute I was online, I met Brittany as I wrote a short note to get…[Read more]

  • I hope this is related. I am 78 yrs old and on the outside I look passable but when these Medicare, and recently Medicaid people come in to see or evaluate me they say ” you look good, we might be able to get you some modest assistance, (because I live alone with no family in a strange area, I lost my home and possessions in hurricane Irma”.) They…[Read more]

  • Brittney, they are a new company and with your situation, you might get one for free as a national spokesman for the product. ( I am always thinking)

    Ron Cole

  • Dear Brittney,
    They just came out with a PORTABLE Oxgeonater that you can buy, and I think for you possible you could get insurance to pay if you work with the company and your doctor. There are three types, all with levels up to 4 forms 1-4. It is a shoulder unit, about 3 lbs, and as you know it makes oxygen out of the air. It comes in a…
    [Read more]

  • I have had 2 open-heart surgeries, 1 in 1999 when I was 49, the other in 2012 when I was 72, the second one at 72 I had a leaky Aortic Heart valve so that had to be replaced. It was a very long, life-threatening surgery. I was in the hospital the second time for 40 days and then had to return a weak later for 7 days. They could not get the heart…[Read more]

  • ronald cole posted a new activity comment 5 months ago

    OH, Brittany, I feel so terrible, I wish I could just make you all better you sweet thing. I am not going to write the usual get well crap, because I m in this with you and you’re situating actually brings tears to y eyes. You so deserve to catch a break in this life, some real TLC, and a nice vacation out in the wide-open spaces, away from…

    [Read more]

  • ronald cole posted an update 5 months ago

    @brittany-foster HELLO MY LITTLE WARRIOR, THERE IS NOT A DAY GOES BY THAT I DO NOT THINK OF YOUR BRAVERY, MANY PEOPLE WRITE THAT AND ITS JUST THE THING TO SAY, BUT I TELL YOUR STORY ALL THE TIME, AS WHEN YOU WERE IN THE HOSPITAL, I LIVED IT WITH YOU AS THE LAST TIME I HAD OPEN HEART, THE SECOND ONE, AND A NEW AORTIC VALVE, I WAS IN THE HOSPITAL…[Read more]

    • Hi Ron,
      It is always so great hearing from you and listening to all that you have been through and overcome ! It gives people like me a lot of strength to hear the bravery of others and all that we are able to get through in a day. Thank you for always thinking of me and the words of encouragement while I was in the hospital. The surgery…

      [Read more]

      • OH, Brittany, I feel so terrible, I wish I could just make you all better you sweet thing. I am not going to write the usual get well crap, because I m in this with you and you’re situating actually brings tears to y eyes. You so deserve to catch a break in this life, some real TLC, and a nice vacation out in the wide-open spaces, away from…

        [Read more]

  • ronald cole posted an update 5 months ago

    @jenc hELLO Jen, I READ WHAT YOU SAID ABOUT THE LIFE EXPECTANCY ABOUT WHAT YOUR dOCTORS SAY THEN YOU LOOK IT UP YOURSELF.
    YES MY DEAR JEN, THE LAST TIME I HAD MY 3 MONTH CHECK UP, THE DR. SAID “RON, YOU LOOK BETTER THAN WHEN I FIRST SAW YOU A YEAR AGO. HE LISTENED TO MY HEART, THEN SAID “IT ALL SOUNDS GOOD” WELL JEN, I WEN INTO THE APPOINTMENT,…[Read more]

    • Me. Ron, I appreciate your comments and humor. Thank you and blessings to you as well. I hope that you are staying cool and hydrated.
    • I certainly understand the good PH day and the other days ( bad) Ph day. We all plow through all days, but it feels so go on good days to be able to think straight and get some things done. I think, for me, a good ph day is after I have gone into rem sleep, and had a great previous night. When I have tried the PH, along with sleep deprivation,…[Read more]

    • ronald cole posted an update 6 months ago

      @brittany-foster Hello My sweetheart, I am soooo happy your home and doing well. I had two open-heart surgeries as you know and a new Aortic Valve. Trust me, the recovery at the beginning is incredible, so I cannot imagine your pain. I am going to say, I missed you here my dear, and so happy your back. I had my 3-month Checkup today and the Doctor…[Read more]

      • Thank you so much for the words of encouragement, Ron! I know what you mean by the recovery being really hard at the beginning. I recently have had my share of some setbacks but it looks like I will be followed closely by a good team that is all part of one of my surgeon’s group of doctors. It is great when they are all able to coordinate. I have…

        [Read more]

    • Dear Brittany, I appreciate your short but recent Post. I was going to write daily but knew you were not going to be able to read all of them. We all missed you and your literary Genius in welcoming the newcomers and calming us down when our minds been playing tricks on us. Did you notice that you are an Honorary Member of THE UNITED STATES…[Read more]

    • Load More
    Copyright © 2017-2019 All rights reserved.

    ©2019 KLEO Template a premium and multipurpose theme from Seventh Queen

    CONTACT US

    We're not around right now. But you can send us an email and we'll get back to you, asap.

    Sending
    or

    Log in with your credentials

    or    

    Forgot your details?

    or

    Create Account