Newly Diagnosed: You Are Not Alone on Your Journey

Whether you are a patient or a caregiver, it’s important to remember that you are not alone on this journey with pulmonary hypertension (PH) and that others have been in your shoes. Here’s a collection of our columnists’ words that they would like to share to help guide, inspire, and encourage you.

The Power of Persistence When Battling Health Insurance

Dealing with insurance can be a challenging part of managing any chronic disease. When her health insurance company denied coverage at her son’s medical facility, columnist Colleen Steele fought the decision. She urges others to speak up and be persistent when dealing with insurance.

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Medication Compliance and Patient Advocacy Are Big Pills to Swallow

Some people struggle with taking pills, but Colleen’s son Cullen learned to take them without complaint from an early age. His advice? “If they want to live and hopefully experience a better quality of life, then they need to get over it.” He shares some words of wisdom on what can be a bitter pill to swallow.

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Stepping Back From Work Does Not Mean I’m Letting My Illness ‘Win’

After months of working full time from home, columnist Eleanor Bird realizes the negative impact her job was having on her well-being. When she made the decision to take a step back and quit her job, the idea at first was daunting, but in the end, she mostly felt relief.

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Goal by Goal, I Climbed Out from the Pit of Despair

Once a frustrated and depressed setter of unrealistic goals, columnist Brittany Foster now thrives on pursuing the achievable. She transitioned to paying more attention to the “little” moments, especially the smaller victories throughout each day.

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Reminding Myself It’s Important to Unplug the Gadgets and Rest

Columnist Jen Cueva wasn’t really resting when she thought she was. After prompting by doctors, she’s learning to turn off her phone. She suggests unplugging for at least 30 minutes a day.

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An Open Letter to My Newly Diagnosed Self

Having recently attended his first PHA Conference, columnist Mike Naple shares a letter to his newly diagnosed self to help others with PH come to terms with their diagnosis. “You’re not on this ride alone,” he writes.

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Visit the Pulmonary Hypertension News forums to connect with others in the PH community. These forums are designed for patients, caregivers, and medical professionals to discuss issues, ask questions, and share experiences.

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