PH Caregivers, Family Members & Spouses

Great topic Kathleen!
I got my flu shot late September! I didn’t have any reactions to it. I push all of my family members to get one (not sure if they have yet). My boyfriend is unfortunately someone who thinks that if I’m protected with the flu shot then he doesn’t need to get one. He ended up getting the flu pretty bad and was bed bound for a…[Read more]

Awesome, @brian-gilbert! I got mine at Walgreens. It’s a bit controversial and some years unclear if it’s actually all that helpful, but definitely not worth taking the risk. So glad you are covered!

I attempted to get mine around the 20th of October and every place I tried was out of stock. I finally got mine on November 5th. I was a little worried. @charlotte-gilbert was able to get hers at Duke since she’s a patient. She got hers early October. I usually skip the flu shot as I’m extremely cautious with hand washing, etc. and have been…[Read more]

Thank you, Brian! That’s good to hear. 🙂

Hi Ally! Happy to share. Unfortunately, I’m not aware of other support groups or hotlines specifically for caregivers. I’m sure in bigger cities, there are local support groups for caregivers, but my guess would be they will offer support for caregivers in general and not focus specifically on PH.

Hi Brian, thanks so much for sharing this resource! Do you know of any other support groups or hotlines for caregivers? What about any focused on grief/loss?