• Forum
    • Topics
    • Posts
    • Freshness
    • Awareness and Advocacy
      This forum is a place to discuss ways to stay informed and to inform others about pulmonary hypertension. Topics range from strategies to raise awareness and funds to ways to prepare for appointments.
    • 15
    • 40
    • 1 month ago

       Kathleen Sheffer

    • Community Events
      This is a space to share about upcoming events in our community. Events include local support group meetings, phone calls, and medical conferences. Please post new events as you hear about them. You might also connect with other Forums members who plan to attend.
    • 1
    • 10
    • 2 days, 17 hours ago

       Andrew Strunk

    • Diagnosis Information and ​General​ ​Questions
      This​ ​forum​ is​ ​designed​ ​for​ ​newly​ ​diagnosed patients​ ​and​ ​their parents/caregivers​ ​who​ ​are​ ​looking​ ​for​ ​information​ ​about​ ​where​ ​to​ ​start​ ​in​ ​their PH journey.​ Ask basic questions about PH and help each other through ​the​ ​initial​ ​diagnosis​ ​stage.
    • 51
    • 332
    • 2 days, 5 hours ago

       Brittany Foster

    • Diet and Nutrition
      Discuss healthy eating strategies and goals with other patients, caregivers and medical professionals. Please share tips that have been helpful for you and your favorite PH-friendly recipes.
    • 8
    • 52
    • 2 days ago


    • Exercising with PH
      A forum to share which types of exercise work for you, your fitness goals, and challenges you face. Ask questions and encourage other patients who are exercising with pulmonary hypertension.
    • 14
    • 120
    • 5 days, 6 hours ago

       Vanessa Vaile

    • Lung Transplantation
      Transplantation may be an option for patients with severe pulmonary hypertension when all other treatment options have been exhausted. This forum is a space to learn more about lung transplantation and connect with patients and caregivers going through the process from evaluation to post-transplant life.
    • 13
    • 39
    • 3 weeks, 3 days ago

       Pulmonary Hypertension News Moderator

    • Mental Health
      Mental and physical health are intertwined so maintaining good mental health is an important part of fighting pulmonary hypertension. This is a space to validate each other's challenges and offer support and encouragement to stay grounded and hopeful.
    • 31
    • 142
    • 8 hours ago


    • Side Effects and Symptoms
      forumShortness of breath, dizziness, and chest pressure are primary symptoms of pulmonary hypertension, but most patients experience the effects of the disease throughout their body. Treatments come with debilitating side effects that compound these symptoms. This forum allows patients and caregivers to ask questions and share about these effects and ways to alleviate them.
    • 19
    • 114
    • 2 weeks, 3 days ago

       Brittany Foster

    • Treating PH
      A forum to discuss approved therapies for treating PH and ask questions about the various options available. Find other patients and caregivers managing the same medications.
    • 25
    • 95
    • 2 days ago


    • Working with PH
      Though it may not be possible for some, many PH patients are able to work with modifications. This forum serves as a space to share success stories and information about workplace accommodations.
    • 4
    • 9
    • 1 month, 1 week ago

       Brittany Foster


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