• Forum
    • Topics
    • Posts
    • Last Post
    • Mental Health
      Mental and physical health are intertwined so maintaining good mental health is an important part of fighting pulmonary hypertension. This is a space to validate each other's challenges and offer support and encouragement to stay grounded and hopeful.
    • 202
    • 1,795
    • 4 days, 2 hours ago


    • Oxygen Users
      A forum for PH patients on supplemental oxygen. Ask questions and offer tips for living more comfortably and independently on oxygen.
    • 67
    • 867
    • 2 weeks ago

      Jen Cueva

    • PH and Co-Existing Conditions
      Pulmonary Hypertension is sometimes caused by another disease or it can influence the on-set of a new one. This forum is a place for those fighting PH with other diseases to share your experiences and find support.
    • 71
    • 770
    • 1 week, 3 days ago

      Jen Cueva

    • Research & Development
      This group unites PH patients, caregivers, researchers and medical professionals in a platform to discuss the latest research and medical advances related to pulmonary hypertension. Information shared in this group is public.
    • 130
    • 203
    • 3 months ago

      Carol Volckmann

    • Side Effects and Symptoms
      forumShortness of breath, dizziness, and chest pressure are primary symptoms of pulmonary hypertension, but most patients experience the effects of the disease throughout their body. Treatments come with debilitating side effects that compound these symptoms. This forum allows patients and caregivers to ask questions and share about these effects and ways to alleviate them.
    • 151
    • 1,860
    • 1 week, 4 days ago

      Jen Cueva

    • Teens and Young Adults with PH
      A place for ​teens​ and young adults under 30 ​with pulmonary hypertension to​ ​connect, vent,​ ​share​ ​frustrations​ ​and​ ​ask​ ​​questions.​ Get advice from your peers, and make friends your own age!
    • 48
    • 77
    • 1 week, 4 days ago

      Jen Cueva

    • Treating PH
      A forum to discuss approved therapies for treating PH and ask questions about the various options available. Find other patients and caregivers managing the same medications.
    • 155
    • 1,116
    • 1 month ago

      Jen Cueva

    • Welcome!
      New to the PH forum? This is the perfect place to share a bit about yourself and your PH journey. Patients, caregivers, and loved ones are all welcome to share. Let us know how PH affects your life. Our goal is to support all within the PH community. We look forward to getting to know you! 
    • 21
    • 256
    • 4 days, 9 hours ago


    • Working with PH
      Though it may not be possible for some, many PH patients are able to work with modifications. This forum serves as a space to share success stories and information about workplace accommodations.
    • 27
    • 234
    • 1 month, 1 week ago

      Jen Cueva

    • Lung Transplantation
      Transplantation may be an option for patients with severe pulmonary hypertension when all other treatment options have been exhausted. This forum is a space to learn more about lung transplantation and connect with patients and caregivers going through the process from evaluation to post-transplant life.
    • 51
    • 226
    • 3 months, 2 weeks ago

      Colleen Steele

    • Weekly Wins
      We realize that we may be limited. But, every week, let’s focus on the simple achievements. This may be something like, “this week I exercised”, or taking your medications on time. This could also be something unrelated to PH. What did you do this week that you did not do last week? Let us know what those “weekly wins” are for you. We cannot wait to read about your wins. Let’s celebrate them together!
    • 17
    • 192
    • 12 hours, 16 minutes ago

      Jen Cueva

    • Community Events
      This is a space to share about upcoming events in our community. Events include local support group meetings, phone calls, and medical conferences. Please post new events as you hear about them. You might also connect with other Forums members who plan to attend.
    • 15
    • 63
    • 8 months, 3 weeks ago

      Vanessa Vaile

    • ​Dating and Relationships
      Pulmonary hypertension inevitably impacts relationships, and sharing experiences can make that impact more positive. This​ ​is​ ​a​ ​forum​ designed for individuals with PH ​to​ ​discuss​ ​dating, relationships​ ​and ​marriage.
    • 40
    • 359
    • 1 month, 2 weeks ago

      Colleen Steele

    • Diagnosis Information and ​General​ ​Questions
      This​ ​forum​ is​ ​designed​ ​for​ ​newly​ ​diagnosed patients​ ​and​ ​their parents/caregivers​ ​who​ ​are​ ​looking​ ​for​ ​information​ ​about​ ​where​ ​to​ ​start​ ​in​ ​their PH journey.​ Ask basic questions about PH and help each other through ​the​ ​initial​ ​diagnosis​ ​stage.
    • 355
    • 3,107
    • 16 hours, 27 minutes ago

      Jen Cueva

    • Awareness and Advocacy
      This forum is a place to discuss ways to stay informed and to inform others about pulmonary hypertension. Topics range from strategies to raise awareness and funds to ways to prepare for appointments.
    • 120
    • 655
    • 4 days, 17 hours ago

      Jen Cueva

©2021 KLEO Template a premium and multipurpose theme from Seventh Queen


We're not around right now. But you can send us an email and we'll get back to you, asap.


Log in with your credentials


Forgot your details?

Create Account