Awareness and Advocacy
This forum is a place to discuss ways to stay informed and to inform others about pulmonary hypertension. Topics range from strategies to raise awareness and funds to ways to prepare for appointments.
- 17 minutes ago
This is a space to share about upcoming events in our community. Events include local support group meetings, phone calls, and medical conferences. Please post new events as you hear about them. You might also connect with other Forums members who plan to attend.
- 6 days, 11 hours ago
Dating and Relationships
Pulmonary hypertension inevitably impacts relationships, and sharing experiences can make that impact more positive. This is a forum designed for individuals with PH to discuss dating, relationships and marriage.
- 3 days, 10 hours ago
Diagnosis Information and General Questions
This forum is designed for newly diagnosed patients and their parents/caregivers who are looking for information about where to start in their PH journey. Ask basic questions about PH and help each other through the initial diagnosis stage.
- 5 days, 5 hours ago
Diet and Nutrition
Discuss healthy eating strategies and goals with other patients, caregivers and medical professionals. Please share tips that have been helpful for you and your favorite PH-friendly recipes.
- 1 week, 6 days ago
Exercising with PH
A forum to share which types of exercise work for you, your fitness goals, and challenges you face. Ask questions and encourage other patients who are exercising with pulmonary hypertension.
- 1 week ago
Transplantation may be an option for patients with severe pulmonary hypertension when all other treatment options have been exhausted. This forum is a space to learn more about lung transplantation and connect with patients and caregivers going through the process from evaluation to post-transplant life.
- 5 days, 12 hours ago
Mental and physical health are intertwined so maintaining good mental health is an important part of fighting pulmonary hypertension. This is a space to validate each other's challenges and offer support and encouragement to stay grounded and hopeful.
- 4 days, 13 hours ago
A forum for PH patients on supplemental oxygen. Ask questions and offer tips for living more comfortably and independently on oxygen.
- 14 minutes ago
PH Caregivers, Family Members & Spouses
This forum is a place for those caring for a loved one with pulmonary hypertension to connect. Share tips, ask questions, etc. Veteran parents and caregivers may help those with newly diagnosed children and spouses.
- 6 days, 10 hours ago
Research & Development
This group unites PH patients, caregivers, researchers and medical professionals in a platform to discuss the latest research and medical advances related to pulmonary hypertension. Information shared in this group is public.
- 2 months, 4 weeks ago
Side Effects and Symptoms
Shortness of breath, dizziness, and chest pressure are primary symptoms of pulmonary hypertension, but most patients experience the effects of the disease throughout their body. Treatments come with debilitating side effects that compound these symptoms. This forum allows patients and caregivers to ask questions and share about these effects and ways to alleviate them.
- 6 hours, 27 minutes ago
Teens and Young Adults with PH
A place for teens and young adults under 30 with pulmonary hypertension to connect, vent, share frustrations and ask questions. Get advice from your peers, and make friends your own age!
- 4 days, 11 hours ago
A forum to discuss approved therapies for treating PH and ask questions about the various options available. Find other patients and caregivers managing the same medications.
- 7 hours, 4 minutes ago
Working with PH
Though it may not be possible for some, many PH patients are able to work with modifications. This forum serves as a space to share success stories and information about workplace accommodations.
- 1 month, 1 week ago
This is a place to share upcoming procedures and to give updates. It is also where members can send messages of support to those about to go into surgery or to those recovering from one.
- 9 hours, 51 minutes ago
- Awareness and Advocacy