• Forum
    • Topics
    • Posts
    • Last Post
    • Lung Transplantation
      Transplantation may be an option for patients with severe pulmonary hypertension when all other treatment options have been exhausted. This forum is a space to learn more about lung transplantation and connect with patients and caregivers going through the process from evaluation to post-transplant life.
    • 34
    • 139
    • 1 month, 2 weeks ago

      Colleen Steele

    • Mental Health
      Mental and physical health are intertwined so maintaining good mental health is an important part of fighting pulmonary hypertension. This is a space to validate each other's challenges and offer support and encouragement to stay grounded and hopeful.
    • 139
    • 1,234
    • 20 hours, 23 minutes ago

      Shannon

    • Research & Development
      This group unites PH patients, caregivers, researchers and medical professionals in a platform to discuss the latest research and medical advances related to pulmonary hypertension. Information shared in this group is public.
    • 119
    • 162
    • 1 month, 2 weeks ago

      Colleen Steele

    • Side Effects and Symptoms
      forumShortness of breath, dizziness, and chest pressure are primary symptoms of pulmonary hypertension, but most patients experience the effects of the disease throughout their body. Treatments come with debilitating side effects that compound these symptoms. This forum allows patients and caregivers to ask questions and share about these effects and ways to alleviate them.
    • 110
    • 1,368
    • 3 days, 23 hours ago

      Mikaela Smiths

    • Teens and Young Adults with PH
      A place for ​teens​ and young adults under 30 ​with pulmonary hypertension to​ ​connect, vent,​ ​share​ ​frustrations​ ​and​ ​ask​ ​​questions.​ Get advice from your peers, and make friends your own age!
    • 43
    • 58
    • 5 months ago

      Colleen Steele

    • Treating PH
      A forum to discuss approved therapies for treating PH and ask questions about the various options available. Find other patients and caregivers managing the same medications.
    • 97
    • 612
    • 3 days, 5 hours ago

      Colleen Steele

    • Working with PH
      Though it may not be possible for some, many PH patients are able to work with modifications. This forum serves as a space to share success stories and information about workplace accommodations.
    • 16
    • 126
    • 1 month ago

      Vanessa Vaile

    • Awareness and Advocacy
      This forum is a place to discuss ways to stay informed and to inform others about pulmonary hypertension. Topics range from strategies to raise awareness and funds to ways to prepare for appointments.
    • 54
    • 379
    • 4 days ago

      Douglas Knuth

    • Community Events
      This is a space to share about upcoming events in our community. Events include local support group meetings, phone calls, and medical conferences. Please post new events as you hear about them. You might also connect with other Forums members who plan to attend.
    • 11
    • 52
    • 3 months, 3 weeks ago

      Brittany Foster

    • ​Dating and Relationships
      Pulmonary hypertension inevitably impacts relationships, and sharing experiences can make that impact more positive. This​ ​is​ ​a​ ​forum​ designed for individuals with PH ​to​ ​discuss​ ​dating, relationships​ ​and ​marriage.
    • 29
    • 262
    • 2 weeks, 2 days ago

      Brittany Foster

    • Diagnosis Information and ​General​ ​Questions
      This​ ​forum​ is​ ​designed​ ​for​ ​newly​ ​diagnosed patients​ ​and​ ​their parents/caregivers​ ​who​ ​are​ ​looking​ ​for​ ​information​ ​about​ ​where​ ​to​ ​start​ ​in​ ​their PH journey.​ Ask basic questions about PH and help each other through ​the​ ​initial​ ​diagnosis​ ​stage.
    • 211
    • 1,817
    • 1 week, 4 days ago

      Rockefeline Denis

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