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Do You Encourage Other Caregivers To Seek Support?
If you are a caregiver and PH forum member, it’s probably because you already know how much you need support from people who understand the disease and the circumstances. But at first, people often feel alone when a rare disease strikes. They can feel blindsided with no idea that there are supportive communities they can join.
Have you encouraged other caregivers to join the PH News Forums and social media platforms? How do you describe the PH community to others? How has made connections with other patients and caregivers helped you?
Here is an excellent column on this topic written by Muscular Dystrophy columnist, Prudence Jones.
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