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Yeah….there is a number I can call if things get serious.

Just wondering if folks on here can wear a N 95 mask and still function. I know I can’t….get too short of breath. Even my wife has a hard time with one.

The other thing that makes me go hmmmmmmmm, I see people on oxygen wearing a mask. They are getting their air from a machine. Does…[Read more]

I probably won’t hear from them till Monday. They know about the leak problem as I left a message. If it was serious, they would have let me know.

Found some gauze the right size, bandages etc that work. I use plastic wrap to cover everything. Still waiting on the pharmacy to call. I would call them, but don’t know which one. I’ll get it resolved…[Read more]

Hello everyone!
I think your classes are very useful! Many computer games develop the brain, don’t they? Caring for horses and reading books is just great and very useful!
In addition to pleasant but useful activities (for example, reading), I also do not very useful ones. I used to like drawing pictures by numbers. Now I like to paint wooden…[Read more]

Colleen, that’s very nice to hear! I hope you will have many more happy moments this year. I’m trying to stay safe, too.

Jen, oh, that’s a great idea! A little sun from San Diego right now would be very welcome, lol. No one knows when the snow will end. But there is so much of it that it will melt in three to four months, I think (maybe sooner? My ultrasound doctor has been waiting for me for a long time).
I don’t always drown in snow on my way to the store. Much…[Read more]

I don’t have any of the lung symptoms like Brenda is experiencing.  I’ll probably ask for a referral to a cardiologist in El Paso.  What I’ve got may not be a serious problem.

Hi Jen,
The UCSF PAH support group meets once a month. People attend from The SF bay area north to Sacramento. We have a guest speaker several months per year(usually a MD in the field) and when there is no speaker scheduled we have an Open Forum. Everyone with PAH(or their caregiver) can raise an issue, ask a question of the group or seek solace…[Read more]

@valeriekv we really do care about each other here. I’m doing ok and so is my family. Just trying to stay safe and well. Thank you for asking.

@dawnt I couldn’t help but let out a little snort at your “people” comment! I can relate!

@jenc, the games I play are online. I don’t do apps on my phone. I just do a search for ‘free online find the difference games’ or whatever I’m looking for.

@colleensteele, I never feel that time I spend with any animals is a waste of time. I can’t always say that when it comes to spending time in person with people – HA!

Hey, @jenc, yes I do know that feeling of things feeling ‘lighter’ after bringing up a topic that is particularly difficult. I also get having difficulty, feeling like you’re saying something negative about your parents. I’ve often dealt with that in therapy, because I loved my mom so very much and still do even though she passed away 17 years…[Read more]

Josh, your post caught my eye because I have a similar question. I’d welcome feedback from anyone who has the same kind of experience or who knows of someone in my situation. Here it is:

I’m 68, WF, and suffering from steadily worsening symptoms for about 10-11 years that all suggest I have some form of pulmonary hypertension (possibly CTEPH). I…[Read more]

Hi @colleensteele, I think the home tests can be less accurate than at a clinic. But I would like to have the home tests if they are our only option.

I’m grateful that they want to send the N95 masks but also worry that the healthcare providers may run out depending on how many they send each household. Do you have any concerns about this?…[Read more]

Hey @jumprun3, welcome to the forums. As Colleen mentions, a good cardiologist who treats PH would be the best option based on your symptoms. What area in Texas are you located in? I recently relocated from TX to CA. But, my PH specialist is a cardiologist at Houston Methodist. I also know others who go to a PH center in Dallas.

Advocating and…[Read more]

Oh no, @valeriekv, I’m so sorry to hear about all of that snow and the issues it’s causing you. I can’t imagine! Shall I send a little San Diego sunshine your way o help melt it? Maybe by the month ends, you will have a break in the snow. When does it usually stop there?

Is there anyone who can help you get to the store and the appointments…[Read more]

Hi @mgnorwood, I’m so happy to hear about your treatment by such a well-versed expert at the PH center. That truly does make a difference.

I’m also interested in learning more about this mental health support group. This is something that I haven’t heard a lot about at the PH centers and wish we had more of. I would guess that has an impact on…[Read more]