Activity

Excellent column @jenc. Honestly, I think your nailed the most important 10. The only other one I can link of is, “When people offer help, let them.” That is something that took me a while to learn and accept.

@vicki-kirkland-walker @cdvol3gmail-com @ann-walker and everyone who responded. It sounds like we are all thinking the same – wait out the vaccine and learn the side-effects first. Personally, I think the responsible thing the “deciders” on this vaccine should make, is that medically frail and people over a certain age shouldn’t received the…[Read more]

@mamabear007 that is awful! What a nightmare experience! I am so sorry that happened to you. I read your comment to my husband because he feels less suspicious of a vaccine they produce for Covid. He suggests we go with whatever Cullen’s doctors tell us to do. We haven’t discussed it with any of them yet but honestly, even if they tell us he…[Read more]

@jenc that makes total sense! I have the same concern. What might even turn out to be small or rare unexpected side-effects could be concerning for medically fragile individuals. I’m all for my family receiving the vaccine – after it’s been around for a while. We will continue to live cautiously until then.

Hi Ann, your news that you do not have fibrosis is good news! It is good that they are going to do a CT scan, will your doctor be able to call you with the results rather than wait for a month to see him? Are you taking a diuretic like lasix? As for salt – they(doctors) want less to nearly none in our diets, especially Pulmonologist and…[Read more]

my new/old pulmonologist read my old CAT scan of 2018 and did not see fibrosis, just infection. He believes I have a lot of fluid in my lungs to cause my breathing problems. I’m due for a CAT scan next week and will see him again in a month. In the mean time, I’m to cut my fluid intake in half and my salt intake. Isn’t this weird?

Thank you, @jenc. My family and I are doing well. My son is still working in his grocery store’s meat department, and my DIL is now working directly with COVID patients. I have to say that, right now, I’m more worried for her. We *know* she’s being exposed, though she does have PPE. As far as I know, my son isn’t. He stays mostly in the back and…[Read more]

Yes, we both get our “old peoples” flu shot and we’ve had the pneumonia booster, but probably need to have the pneumonia booster again (forget to ask for it and not given it automatically by the MD)

I have my on line pulmonary appointment today and am getting a little nervous about it. Will it be different from my other pulmonologist? or enough…[Read more]

Hi Jen, I believe if you are 65 and over and have health issues you should have a pneumonia booster every 5 years so I will get mine this Oct along with a flu shot. I think if you are under 65 but have health issues I would ask my doctor if I should get a booster for pneumonia. Stay safe everyone.

This is an older post but may offer some benefit for anyone trying to navigate the SSD process. We have many new members who have joined, and I wanted o share these experiences with y’all, too.

Is anyone trying to get approved for liability or have any questions about this process? What is the process like for those of you in other countries? Do…[Read more]

Thanks, @auntlizzie, for sharing your insights on Dr. Noah. I had not heard the humming tip before you but was unsure if you heard it from. I also tend to do the same when I am SOB or do not know the words. I tend to hum, hehe.

I like that you watch his sessions in your PJs while eating breakfast. Many great things come while in our PJs, hehe.

I…[Read more]

Hi @jimi, good to “see” you. How are you doing after your eye surgery? Do you see improvements? I am sure that adding the medical procedures and things this year with all else going on has been difficult.

I am with you; I would be grateful if 2021 is a bit less thrilling, hehe.

How is your family? Take care and keep us updated when you are up to it.

Hi @jbarry28, I am happy to hear that you are moving forward after your bypass. It sounds like you are working hard to gain some strength and, hopefully, some muscle back. Are you eating more protein? My daughter is a dietician, so she’s always telling me to eat more protein and more good fats by her, LOL.

I use protein powder and add to…[Read more]

That is fantastic news, @dawnt. I am so happy to hear your positive news after your TEE. That is always a win when the test was better than we thought it would be, right?

Thanks for sharing your experience with the TEE. I can understand how this would be irritating to your throat. I have never had a TEE.

Another positive win is your…[Read more]

Hi, @annefox, thanks for sharing your thoughts. We all make decisions based on our own circumstances. I can respect your decision about wanting the vaccine. You and your medical team will make the best decisions for you. I would rather wait a bit before I get one.

Do you and your husband both get the flu shot each year? What about the pneumonia…[Read more]

Hi @dawnt, thanks for bringing up an important factor. We do need to hear our doctors out, but ultimately the decision is ours, and we need to be sure that this is a time when we advocate for ourselves.

Hi @vicki-kirkland-walker, great job on getting your flu shot! I agree; I think this will be too fast, so I will be waiting with you. Do you also get the pneumonia boosters? I know many doctors tend to have confusion about how often this one should be done.

@cdvol3gmail-com, I am with you on waiting. How often do you tend to get your pneumonia booster?

Hi @mamabear007, I am sorry to hear that you developed Epstein Barr after the Swine flu vaccine. I did not remember that, but I did not get that one, either. I agree that I want the kinks to be ironed out and need to see that it is safe and will not harm than good. It is often such a debate to get these vaccines or not.

That is true about…[Read more]