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@scollin @s-steppins @rgiustin and @Terry I sent you all a direct message. Please take a look at it when you get the chance. Thank you!

I don’t know about you, but as the weather changes it sometimes has an effect on my mood. Autumn especially makes me feel nostalgic and with that comes some memories of both hope and despair.

So, I thought I would bring this topic up again. What are you despairing about these days and what is giving you hope?

Thank you, @colleensteele. I will be here for quite awhile, as I really love the place.🤗

@ripple76 I hope I don’t jinx you by pointing this out, but I am so happy to see you finally posting without issue! What you share is always kind and helpful and when you need support, we want you to be able to ask for it.

On that note, how are you doing?

@mamabear007 as long as we will still see you here once in a while. We would miss you terribly if you left us.

Yes, @wheeldog has contacted me and would like to participate. As we know, there appears to be more woman then men diagnosed with PH so it’s very valuable for men to share their PH stories. Would any of our other male PH members, whether patients or caregivers, like to participate?

Hi Tracey,  So glad to hear you are ok.  You’ve been on my mind every day.  Such a dual time for you, crazy glad the surgery is over.  Long hard road ahead to recovery.  We are here for you every day.  Smile brave girl.  You did it.  You will do the rest.  Best, Sally

Thank you, @jenc. I do plan on sticking around for quite awhile. 😊

Certainly, @wheeldog, I will PM you the information to contact Elizabeth to schedule an appointment.

I am excited that you will share your story in the 30 Days of H this year.

You are too funny, yes, the luxury cars and their elegant lunches are what I always joke with my doctors about.

I know that you will be happy to get that extra fluid…[Read more]

Thanks, ladies, @cdvol3gmail-com, and @mainegal. I also think that @wheeldog is interested, @colleensteele. I look forward each year to this event. It is such an emotional experience to watch take-off and the excitement each participant has to share their unique perspective.

Oh, that’s why I have been missing you even more. I do hope that you will continue to be a part of our forums, @mamabear007. You have such excellent tips and support for me and the others.

I am happy to hear that your son and DIL are doing well. Staying busy, I bet as mine do, LOL.

PM me on the PH dept and I’ll get with them. My oncologist has all my records. I need to get with him too to see what will work best.

I emailed Coleen for more information on the 30 day thing. I’ll see what I can do.

Once they get this fluid stopped, I am good to go. Then I can cool it with the doctors appointments and let someone else make…[Read more]

I’m so excited that so far @cdvol3gmail-com and @mainegal have offered to participate in “30 Days of PH”! I emailed both you ladies back so check it when you have the chance.

That leaves 28 more spots available so please consider it! Everyone who has participated over the past 2 years found that sharing their story in this form was very…[Read more]

I haven’t been posting much, and I’m no longer on Facebook, so you won’t see me there.

My son and his wife are doing well.

Thanks to you all who did this simple step to help spread awareness. On September 30, PHA’s Virtual Advocacy Day was successful.

Below is part of the email from Jeager, the advocacy and treatment access coordinator.

Thank you for making the Pulmonary Hypertension Association (PHA) ‘s virtual Advocacy Day a success! On September 30, pulmonary…[Read more]