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I’m continuing to pray for @jenc.

I received a message from Jen this morning that she got home last night! I’m hoping she gets lots of rest this weekend. You know how exhausting hospital stay can be.

Thank you for this post! @brittany-foster I have big problems with reflux and my doctor wants me to have an endoscopy done – which I keep procrastinating on scheduling. I’m on prescribed pantoprozole and down tums, especially at night. I have to be vary careful what foods I eat close to bed time. Even drinking too much water before bed can give me…[Read more]

@auntlizzie really good point about the gastric reflux! I had worsening of this when I would lay down at night when I was having really bad GI issues and the bipap seemed to aggravate this. Something that I learned to do is sleep with pillows and more propped up. The beds that adjust the height of the head really are super expensive. There are…[Read more]

@irene I was treated for sleep apnea and had central and obstructive combined. Something that really helped me was my BIPAP machine which is slightly different from the cpap that most use with apnea. The BIPAP acts more like a ventilator providing support for both the inhale as well as the exhale. My breathing ended up getting to the point where…[Read more]

Hello Liz,
Thank you for replying I appreciate it!😊
Yes I am on Timolol for glaucoma ,I don’t know what’s causing my nausea ?
I take coated 81mg Bayer aspirin.
I have hypertension its been at least 20yrs.It’s somewhat under control I take METROPROLOL 100 mg 2×a day and Losartan with a diuretic in it…I still have some swelling .
I also have…[Read more]

Hi from wintry Australia. I am a 78 year young female. Irene my main concern would be that your blood pressure is under control. I was diagnosed with severe PH in 2012 but am thankfully stable. However my blood pressure is labile and can shoot up or down for no reason, so I have to take meds for that. Silly as it may sound, when it goes up,…[Read more]

Hi from sunny Arizona. Irene sorry to hear about all your problems. You sound like many of us on this forum. I have PH, GERD, PTSD, sleep apnea, peripheral neurophy, hearing aids, tinninidtis dentures,. I have been on oxygen about ten years, full time going on 5 years. The sleep apnea exam is pretty straight forward. You get wired up, you are on…[Read more]

Hi Jen. I’m sorry you had to be admitted to the hospital. I will keep you in my prayers. Stay strong.

@jenc, Jen hang in there PHriend! Man, this journey makes us WARRIORS. Sending you all my strength and prayers for a quick recovery. We are with you!

I have read through all of your messages and I’m knocking wood that so far, my son hasn’t had any major teeth or gum issues. It surprises me because he was on oxygen for so long and taking diuretics both post and pre-transplant. To be honest he doesn’t really take as good care of his teeth as he should yet his brother who is obsessive about it,…[Read more]

Thank you everyone for the sweet comments to Jen. I know she will appreciate them.

@shannon4jk it’s good to hear from you. How are you doing? I hope you are feeling a lot better.

Thank you Colleen for putting that out there, I have studied all I can, but not much out there, I really hope someone has some experience to share, (Although I hope no one else has to deal with this)

Thinking of you…we have you and you got this….

Hey Jen!! You can handle anything that comes your way. You have lifted me up a few times with your kind words. You are super strong and are a true fighter. Push through this so you can get home and enjoy your family.Feel better soon!