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Well I went on this high protein low fat low carb medical diet and they have protein bars and shakes with 15 g of protein any flavor imaginable and pudding too I loved the pudding the best and no artificial sweeteners with around 5-10 carbs or sugars health wise was one brand name and one website is a lot cheaper than the rest.. I will get back to…[Read more]

Hi Brittney,sometimes when I feel so much pain, feel so worn down and feel like I am at the bottom of a well and no where to climb out I see a rope but no one thers to pull me out – I tie a big knot in the rope and just hang on and rest there. It works! I find the energy, I see my husband and slowly climb out of the pit. Hang in there Brittany…[Read more]

I’ll send you my email address but there’s always FB Messenger too. A project or event tag is always a good idea — waiting to hear what tag you create for this project. I’ll use it tweeting as well as on IG. PS ~ waiting for your column about the project to share too.

Day or Month of … (anything) is a timely reminder about something that…[Read more]

I still am able to do some stuff for breakfast but usually it involves throwing up at least twice during my day. Some days are definitely worse than others for sure, but when I can eat I try to eat good foods for my body and things that are smaller in size but will help to keep me feeling full at least a little. I hate feeling hungry, it has to be…[Read more]

Thank you so much, Jen. I am always here if you ever need a vent session too. It definitely is hard with the tube, especially because I’m not using it for nutrition because I just can’t tolerate the level of discomfort that it causes me. I wish it wouldn’t cause pain or else I would feel a lot more nourished and a lot less worn down. I’ve been so…[Read more]

Wow that is so amazing that they went to bat for you like that with the insurance company !! I know how hard it can be to work with certain insurance companies especially when it comes to getting medical equipment approved. I’m glad they are so understanding and can switch some of his days around when he needs it. And yes, my mom usually goes to…[Read more]

Brittany, Yes, Boston has some amazing food. Italian is great, for sure. I love most foods. Hehe

I traveled to Boston frequently when I saw Dr. C. I hate that I did know you back then. We could have definitely met and enjoyed some yummy food.

Speaking of eating, are you still able to enjoy brunch and ice cream most days? Or, is every day different?

Brittany, I certainly hope that you will get to that “happy medium” soon. I am hoping that once the infections are cleared and the site has adequate time to heal, you will find some relief. That is what I am hoping for you. I know that since you had it placed, it really has not had time to heal because of the infections, etc… Please know tha…[Read more]

Thanks, Brittany. My hubby usually switches his off days if he can on my PH appointment days. His company has been awesome with anything that we need. I am appreciative of them in so many ways. They also went to bat with the insurance and covered a part of my Inogen POC. That was a huge contribution, for me. We still had to pay but they fought for…[Read more]

Jen,
Boston is the best for Italian food and live music like that. I love so many spots in Boston. It isn’t far from me and I usually (back when I didn’t have much trouble eating) would find a cute spot to have lunch with my mom after my appointments when they were there. If you’re ever in Boston again you will have to let me know and we can have…[Read more]

Hi Colleen,
I haven’t experienced anything like this personally, but I have a friend who had trouble with her red blood cell count and her doctor’s said that it was because of her oxygen use. She had to get frequent infusions to help with balancing out her levels because she needed to be on oxygen. Also , I remember my oxygen supply company…[Read more]

Hey Rebecca,
Does your daughter enjoy using it? I know that for some people with different pain conditions they either like it or they don’t. Personally, I like to feel some type of weight and pressure when I am feeling pain, even slight pressure from something like a weighted stuffed animal or something to press against an area of my stomach…[Read more]

Jen,
Thanks so much for the encouragement ! It has been hard with this infection because some days are better than others. I think that’s probably just how it is with the tube in general. Some days it feels easier to manage and I can do the things I want to do more comfortably, and other days I can barely move from bed. I wish there was some kind…[Read more]

That’s great that he can go to the appointments with you. For me, my boyfriend is usually working so unless it’s an emergency and he has to get out of work for it then I usually either just drive myself or let my mom or dad no in advance so they can take me. My sister has only been to a couple appointments with me so it’s not like she goes to a…[Read more]

Hi Rebecca,
It’s a great idea if you can try your daughter’s out first. It is like a ” try before you buy”. Hehe

Please do let us know how you like it. I’m still debating for me.

Funny that you said you’re going to try your daughter’s. I’ve been thinking about getting an air fryer for awhile. My daughter has one and rarely uses it. I need to…[Read more]

Kevin, what a beautiful song by Frank Sinatra. I don’t think I’ve heard that one. It beautifully portrays Vermont. Thanks for sharing. My hubby and I have listened to Sinatra many times.

One year while visiting Boston, we are a small local Italian spot. They happened to have a guy singing Sinatra music as we dined. It was so romantic. The…[Read more]