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Here are increasing numbers of men, children and babies that have been diagnosed with PH. Some have Lupus or other immune diseases. I often wondered if my exposure to numerous chemicals caused my daughters Lupus and my PH.

Parahypothyroidism, caused from PH and kidney issues, been on medication for 8 years and it changes frequently.

I am glad to know there is a safe place to learn and get to share everything concerning PAH.Thank you.

@alfredjohn my son use to get a lot of leg pain too and we always thought it was a side-effect from one of his medications. But now that you mention it, low sats might have been contributing to the problem too. My heart goes out to you and your wife. I know how hard dealing with the limitations caused by PH can be. I’m sure you both feel…[Read more]

Hi from sunny AZ. If my oxygen gets low my legs hurt bad, whole body tells me stop, and sit down. I am on 4 continuous on concentrator. I use a cpap at night with 4 from concentrator. I can only walk a small distance before I go low, can not talk which wife has a problem with. She does enough for both of us. My low is 85 good is 90. I haven’t…[Read more]

Libby, Hi from sunny AZ. I have serious leg pain when standing for a few minutes. I do have peripheral neuropathy especially active in left leg. My left leg swelled up with edema about 5 years ago and I mean big. They did an ultra sound and no blockage found. Had MRIs, cat scans, x-rays, nothing doctors found. I just had three epidermal steroid…[Read more]

Thank you Colleen . Yes I am newly diagnosed with both and want to learn all I can .

@kelli-paige it sounds like a PH episode and unfortunately, seemingly minor activity like playing with a dog can sometimes trigger an event. The sweating concerns me a little because that could be heart related too. For my son both his heart and lungs were always struggling. It’s a good sign that the O2 helped you.

If you haven’t already, make…[Read more]

I’ve never had anything like this & was outside with my husband playing ball with my dog when all of a sudden everything started spinning so quickly & I thought for sure I was gonna fall. I’m so grateful my husband was there, he basically held me up while taking me to a bench. I felt like I was drunk & couldn’t walk straight & my hands were shaki…[Read more]

There are 2: http://www.HeirloomsByChuck.com & https://www.bonanza.com/booths/Weddingmeister

@libby now that we can comment again I hope members will jump in and discuss. How are you doing? Any improvement?

Now that we can comment again I want to bring this topic to the top. Do any of you have hypothyroidism and PH? @la66reyes would like to discuss.

@ripple76 I wish I had statistics to share but I don’t. I do know that PAH tends to strike females more than males and I’m not sure why. Does anyone have information on that?

My son had PAH and ALL of his close PH friends were female. He is 21 now and post-transplant. If you ever have any specific questions you would like me to ask him I would…[Read more]