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@dawnt wow, this is big news for you! Awful that you have had a raspatory infection this whole time but at least you finally have an answer and best of all, treatment! Needless to say, you are very much in my thoughts and prayers!

@jenc I’ve neglected to mention how happy I am for you that your new therapist seems to be a good fit for you! I know…[Read more]

@brendad53 @jenc @mamabear007 @deetweedy thank you all so much for being just as excited as we are for Cullen! I will let you know how the scholarship search goes. I think I have convinced him to share his story. He has the grades, now tell them all you have gone through while achieving them!

Hi all! Colleen, what a wonderful thing to get to report! Congrats to Cullen, and remarkable that he did hear back in such a short time. That is the first hint that this is meant to be. I wish him well in getting scholarships/assistance and that he will use whatever is at his disposal to pursue all the help he can get.

Scholarships really helped…[Read more]

Cullen has “fight” built into him. He was sick from childhood, and it’s just been his nature and his constitution to hang on, to fight, and not to be afraid to take next steps when those steps present themselves as possibilities for improving his future. (I mean, come on! A heart/lung transplant?!!!!) So I think he should use that inborn AND…[Read more]

Dawn, that lung infection thing sounds horrendous! I trust that the treatment to clear it won’t be as bad, in the end, as having to live every day with the infection. Here’s remote <<hugs>> and energy coming your way to help you weather the treatment and come out on top.

Hi @dawnt, sending you lots of extra hugs, love, and prayers for Thursday’s appointment with the infectious disease doctor. I know the treatment may be time-consuming and rough, but as you said, it will be worth it when you can breathe better.

Thanks for your support as I start this new journey with my new therapist. Your support means more than…[Read more]

I’m posting this response and update from @dawnt. She had trouble posting and messaged me so I could share her update.

Dawn says, “Hi @Jenc. Glad to hear you feel comfortable so far with your new therapist. I’ve been doing well with my new therapist as well. I think having my therapist talk with her to give some background made it easier. I…[Read more]

Wow, @brendad53! I’m in tears after reading your update about @mamabear007 reading your blog, and helping to validate why you have so much medical PTSD.

This must have been an enormous gift, as your gift of protection has been for your family. Thank you for sharing with us.

Shout out to mama bear for being the one who validated and helped you…[Read more]

Hi @debbie, Thanks for sharing your rehab experience with Brenda. I hope she will also benefit from learning the breathing exercises.

I’ve known many who enjoy rehab and continue after they graduate. They either continue to go to the center or work on the exercises and breathing techniques they learned at home.

Please do let us know how things…[Read more]

@brendad53, I meant every word. 💜

@colleensteele, please tell Cullen I said CONGRATS!

I’m with @brendad53 and @jenc, Cullen needs to use every angle in applying for scholarships. If he can turn a negative (his illness) into a positive (a college scholarship), I think he should go for it!

Hi @colleensteele, yes. You shared Cullen’s big news! I was so excited when you told me. It was speedy to be accepted after he applied. I was surprised by how fast it happened. I know y’all were, too.

I agree with @brendad53; it’s time to play any cards he can. Cullen doesn’t like to talk about health, but I know he needs to for college, and he…[Read more]

I’m thrilled for Cullen! Way to go! Now, for the scholarships, I suggest he play every darned card he might hold. Including health.

Prayers are with Cullen for a positive visit with his nephrologist today, @colleensteele. Please let us know how it goes.

Take care of yourself, too. Drink your water, eat, and rest. SBUX runs are also a mandatory break. 😉

Hi @cdvol3gmail-com, so grateful that you will see an ostomy nurse today. That “gatekeeper” tactic you use is pretty helpful.

Yes, thankfully, your March Madness is almost over. I hope you hear back soon about your kidney infection so that the next step can be decided.

Too funny that Zoe is also a cheese lover, so whatever I have that she can…[Read more]

Honestly, Colleen, I’ve written a blog about it. To be the initial blog for our “under construction” mPTSD website.

Right after cancer treatment ended, I wanted to die. I hated my doctors, my nurses, and the medical world as a whole. I hated them passionately.

And I hated myself even more. I hated that I couldn’t be the “nice” patient, the…[Read more]

Thanks, Debbie. I trust that I will get something good out of it. I asked to try it, so, hopefully……

@brendad53 Rehab is exercise and breathing techniques.  The exercise teaches you to be aware of your body and when to slow down and speed up.  For the breathing they covered a wide range of things from controlling your breathing when you go into an episode to when not to go outside.  I found it very helpful and rely on the knowledge I received ev…[Read more]

Thank you Colleen for your prayers.

I do not have a kidney doctor specifically. Mine died a few years back and I have not had any issues for a long time. Would you be comfortable in giving me Cullen’s doctor’s name?

Having more blood work done tomorrow to see where I am.

My prayers and best outcomes for Cullen tomorrow. Big hugs to you both!

@brendad53 @mamabear007 inquiring minds want to know what you two have been up to! Nah, you don’t have to say. It’s nice to hear about members helping each other beyond the forums!