Research & Development

@valeriekv Susi was having technical issues posting but to this topic but I don’t know what she had to share about it. @s-steppins if you still can’t post to this private message me what you want to share and I will post it for you…then reach out to tech again for help.

Hi @valeriekv, No problem. I enjoy learning while helping others when I can. Nothing is too difficult here. Post your thoughts and questions at any time. That is how we learn and help one another.

How are you feeling?

Thank you all for responding!
I know I’ve brought up a difficult topic. Jen, thanks for the link, I haven’t heard of” Mitochondrial Diseases ” yet. I will definitely read about it. Your friend is very cool! When we look for answers, we become real detectives!
Colleen, do you know that Susi knows something about this topic? It would be very nice to…[Read more]

I read the articles, and I must say this is quite interesting to me. I had a PHriend for a short time who was also an MD. They thought that she had PH for some time. She did her own research and found that she did not have PH, but she had mitochondrial dysfunction.

She was telling me that to be sure that I have this ruled out because some of the…[Read more]

@s-steppins let me know if you are still having problems responding to this topic. I know Valerie would appreciate hearing what you have to share about it.

I love this, @valerie! I want to read a bit more about this research. The last neurologist I saw mentioned metabolic syndrome to me. I am quite interested and will save this to read as I have more time and process my thoughts to share afterward.

It is crazy how a “lung” disease affects so much more, and I don’t think they still know what areas…[Read more]

You’re welcome, @jenc. 😊

Thanks, @mamabear007, for sharing this helpful resource and tips on using it. I am certain many will find your helpful tips as simple to follow.

I had forgotten that PHA offered that, too.

I hope that you are doing well this week and staying safe and warm.

Pulmonary Hypertension Association has a clinical trial finder. You can search according to your desired criteria (by zip code and how far you’re willing to travel, your age, your gender, whether you’re a healthy volunteer or a PH patient, whether you want an observational or interventional trial, which trial phase you’re willing to be in, and…[Read more]

Thank you, @colleensteele for posting this. They are still looking for PHolks to participate.