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Colleen Steele replied to the topic
Let’s Discuss The Metabolic Basis of Pulmonary Arterial Hypertension in the forum Research & Development 3 days, 3 hours ago
@valeriekv Susi was having technical issues posting but to this topic but I don’t know what she had to share about it. @s-steppins if you still can’t post to this private message me what you want to share and I will post it for you…then reach out to tech again for help.
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Jen Cueva replied to the topic
Let’s Discuss The Metabolic Basis of Pulmonary Arterial Hypertension in the forum Research & Development 3 days, 3 hours ago
Hi @valeriekv, No problem. I enjoy learning while helping others when I can. Nothing is too difficult here. Post your thoughts and questions at any time. That is how we learn and help one another.
How are you feeling?
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Valerie replied to the topic
Let’s Discuss The Metabolic Basis of Pulmonary Arterial Hypertension in the forum Research & Development 3 days, 5 hours ago
Thank you all for responding!
I know I’ve brought up a difficult topic. Jen, thanks for the link, I haven’t heard of” Mitochondrial Diseases ” yet. I will definitely read about it. Your friend is very cool! When we look for answers, we become real detectives!
Colleen, do you know that Susi knows something about this topic? It would be very nice to…[Read more] -
Jen Cueva replied to the topic
Let’s Discuss The Metabolic Basis of Pulmonary Arterial Hypertension in the forum Research & Development 1 week, 3 days ago
I read the articles, and I must say this is quite interesting to me. I had a PHriend for a short time who was also an MD. They thought that she had PH for some time. She did her own research and found that she did not have PH, but she had mitochondrial dysfunction.
She was telling me that to be sure that I have this ruled out because some of the…[Read more]
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Colleen Steele replied to the topic
Let’s Discuss The Metabolic Basis of Pulmonary Arterial Hypertension in the forum Research & Development 1 week, 4 days ago
@s-steppins let me know if you are still having problems responding to this topic. I know Valerie would appreciate hearing what you have to share about it.
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Jen Cueva replied to the topic
Let’s Discuss The Metabolic Basis of Pulmonary Arterial Hypertension in the forum Research & Development 1 week, 4 days ago
I love this, @valerie! I want to read a bit more about this research. The last neurologist I saw mentioned metabolic syndrome to me. I am quite interested and will save this to read as I have more time and process my thoughts to share afterward.
It is crazy how a “lung” disease affects so much more, and I don’t think they still know what areas…[Read more]
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Valerie joined the group
Research & Development 2 weeks, 4 days ago
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Terry joined the group
Research & Development 3 weeks, 2 days ago
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V.R. Peterson replied to the topic
Are You Familiar With Any Clinical Trials for PH? in the forum Research & Development 1 month, 1 week ago
You’re welcome, @jenc. 😊
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Jen Cueva replied to the topic
Are You Familiar With Any Clinical Trials for PH? in the forum Research & Development 1 month, 1 week ago
Thanks, @mamabear007, for sharing this helpful resource and tips on using it. I am certain many will find your helpful tips as simple to follow.
I had forgotten that PHA offered that, too.
I hope that you are doing well this week and staying safe and warm.
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V.R. Peterson replied to the topic
Are You Familiar With Any Clinical Trials for PH? in the forum Research & Development 1 month, 1 week ago
Pulmonary Hypertension Association has a clinical trial finder. You can search according to your desired criteria (by zip code and how far you’re willing to travel, your age, your gender, whether you’re a healthy volunteer or a PH patient, whether you want an observational or interventional trial, which trial phase you’re willing to be in, and…[Read more]
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john huebner joined the group
Research & Development 3 months ago
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Carol Volckmann joined the group
Research & Development 3 months ago
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Jen Cueva started the topic
Check Out the Latest Advances in PH in the forum Research & Development 3 months, 1 week ago
I found this short video informative and hopeful for us all in the PH community. Staying up to date on these recent advancements can help us with our PHight. We may be a candidate for a specific trial. If one interests you, certainly ask your PH team. Let them know that you are interested in the results of these studies.
I am forever grateful to…[Read more]
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Barbara Thompson replied to the topic
Opportunity To Participate In A Marketing Research Survey in the forum Research & Development 4 months, 1 week ago
Thank you, @colleensteele for posting this. They are still looking for PHolks to participate.
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Barbara Thompson joined the group
Research & Development 4 months, 1 week ago
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Colleen Steele started the topic
Opportunity To Participate In A Marketing Research Survey in the forum Research & Development 4 months, 1 week ago
Forum member @barbarainmemphis asked me to share this information with you.
🦓 This company is looking for PAH’ers & Caregivers to PAH’ers to do a marketing research survey. We can all use $100 especially this time of year. 🦓
LaGrippe Research is currently working on a project on the topic of Pulmonary Atrial Hypertension (PAH). We are loo…[Read more]
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mike bennett joined the group
Research & Development 5 months, 3 weeks ago
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neda amanpour joined the group
Research & Development 6 months ago
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Debbie Vass joined the group
Research & Development 6 months, 1 week ago
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