Research & Development

Hi @carol-alexander, that’s excellent news. I’m so excited for you, too, and can’t wait to hear how you like it better. It sounds promising, too.

How was your Echo? Did he say anything about that, or was this before the Echo? Thanks so much for sharing your exciting news with us. I’m sending you love, hugs, and prayers from San Diego.

Went to my appointment and will be trying the new Tyvaso Dpi

when they get it Iam really excited about it. I will be one of the first.

Hi @cdvol3gmail-com, I’ll say an extra prayer for your echo tomorrow. Please let us know how things go once you’re rested after a busy day. 💜

Hi Jen I go tomorrow at Temple Heart I had an eco so will  see it would be so much better if I could Iam on a 4hr secluded with the Tyvaso. He will have to discuss it with my pulmonary Docture she has me on Trellgy inhaler.

Hi @carol-alexander, you made me smile big as I saw your post. 😀

How are you doing? I know it must be challenging after losing your husband recently. I’ve been thinking about you, my PHriend.

When will you see your PH doctor again to ask about this new form of Tyvaso? I hope you and others can switch to it because it sounds much more convenient.

Yes Iam on Tyvaso  and I do plan on asking my Doc Iam going Wednesday to Temple this would be s much more convenient than taking the liquid and than an inhaler Iam excited about it.  Let you know what he says

For our members with CTEPH, PH News recently published this article about gut health links to this type of PH. For the last several years, gut health has been in the media, and I find it interesting. Although, I don’t typically do anything to better my gut health. What about you?

Check out this…[Read more]

Hi @aisha-abdullah, I am sorry, but if you read the link for the clinical trial, it offers more details. I have not used Tyvaso, so I am not familiar, nor have I been in that CT.

The pharma company that makes Tyvaso is United Therapeutics. Maybe this link about that treatment will offer some information on how to contact them. Unfortunately, I…[Read more]

How it Tyvaso can be used, I mean the process to be followed in using Tyvaso. Because it not available in Bangladesh. You are also requested to give me the contact details of the company from where I can get the medicine.

Hi @azad, thanks for your interest. Unfortunately, as of current, the CTs that I am aware of is here in the US. I can only imagine how much this would mean if your son was eligible for a CT here.

Also, having RV failure limits some of the trials. This is one clinical trial that I read about RV function. Tyvaso is an inhaled medication. What meds…[Read more]

I want to join in the clinical for my son. How can I join from Bangladesh? Could you please explain  elaborately about Bio news. How does it work specialty for the RV failure patient like my son. If any body help me in this regards I will be grateful to him/her.

regards

Azad

Bangladesh