Public Group
active 3 weeks agoThis group unites PH patients, caregivers, researchers and medical professionals in a platform to discuss the latest research and medical advances related to pulmonary hypertension. Information shared in this group is public.
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Jen Cueva replied to the topic
Breaking News: Tyvaso DPI Approved For PHA and PH-ILD in the forum Research & Development 3 weeks ago
Hi @carol-alexander, that’s excellent news. I’m so excited for you, too, and can’t wait to hear how you like it better. It sounds promising, too.
How was your Echo? Did he say anything about that, or was this before the Echo? Thanks so much for sharing your exciting news with us. I’m sending you love, hugs, and prayers from San Diego.
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Carol alexander replied to the topic
Breaking News: Tyvaso DPI Approved For PHA and PH-ILD in the forum Research & Development 3 weeks, 2 days ago
Went to my appointment and will be trying the new Tyvaso Dpi
when they get it Iam really excited about it. I will be one of the first.
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Jen Cueva started the topic
Way of Diagnosing PH in Common Heart Test Gets FDA Support in the forum Research & Development 3 weeks, 3 days ago
Anumana’s ECG-based algorithm for the early detection of PH has been designated a breakthrough device by the FDA.
The highlights from the article shared on PH News as it came out on Friday, May 27, 2022, are below.
**AI-powered algorithm electrocardiogram (ECG)
**Quick and accurate early detection of PH
**Non-invasive test
*…[Read more] -
Jen Cueva replied to the topic
Breaking News: Tyvaso DPI Approved For PHA and PH-ILD in the forum Research & Development 3 weeks, 5 days ago
Hi @cdvol3gmail-com, I’ll say an extra prayer for your echo tomorrow. Please let us know how things go once you’re rested after a busy day. 💜
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Carol alexander replied to the topic
Breaking News: Tyvaso DPI Approved For PHA and PH-ILD in the forum Research & Development 3 weeks, 5 days ago
Hi Jen I go tomorrow at Temple Heart I had an eco so will see it would be so much better if I could Iam on a 4hr secluded with the Tyvaso. He will have to discuss it with my pulmonary Docture she has me on Trellgy inhaler.
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Jen Cueva replied to the topic
Breaking News: Tyvaso DPI Approved For PHA and PH-ILD in the forum Research & Development 3 weeks, 6 days ago
Hi @carol-alexander, you made me smile big as I saw your post. 😀
How are you doing? I know it must be challenging after losing your husband recently. I’ve been thinking about you, my PHriend.
When will you see your PH doctor again to ask about this new form of Tyvaso? I hope you and others can switch to it because it sounds much more convenient.
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Carol alexander replied to the topic
Breaking News: Tyvaso DPI Approved For PHA and PH-ILD in the forum Research & Development 3 weeks, 6 days ago
Yes Iam on Tyvaso and I do plan on asking my Doc Iam going Wednesday to Temple this would be s much more convenient than taking the liquid and than an inhaler Iam excited about it. Let you know what he says
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Carol alexander joined the group
Research & Development 3 weeks, 6 days ago
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Sarah Beth Shingler joined the group
Research & Development 1 month ago
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Jen Cueva started the topic
Breaking News: Tyvaso DPI Approved For PHA and PH-ILD in the forum Research & Development 1 month ago
Yesterday a PH News article shared some exciting news. he FDA has approved the Tyvaso DPI formula for PH and PH related to interstitial lung disease (ILD). Tyvaso DPI is the only dry powder formula.
You can read the article here. Some of the highlights are below.
* Only dry powder formula
* Smaller inhaler
* Fits in the palm of…[Read more] -
Natalie Elizabeth Jacobs joined the group
Research & Development 1 month, 1 week ago
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Jen Cueva replied to the topic
Specific gut bacteria may be linked to PAH in the forum Research & Development 1 month, 2 weeks ago
For our members with CTEPH, PH News recently published this article about gut health links to this type of PH. For the last several years, gut health has been in the media, and I find it interesting. Although, I don’t typically do anything to better my gut health. What about you?
Check out this…[Read more]
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Jen Cueva started the topic
Are You Interested in Learning How PH Medications Are Made? in the forum Research & Development 3 months, 4 weeks ago
I found this interesting section on the PHA website. We all are familiar with some type of PH medication. But do you know how these treatments come about through clinical trials? Have you participated in any clinical trials?
Check out these informative videos that walk us through this process. What takeaways do you have after watching? Was there…[Read more]
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Shaler joined the group
Research & Development 4 months, 1 week ago
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Welcome Shaler, to the PH forums. I’m so glad you found us! I co-moderate the forums with Jen Cueva.
I read that you are in the process of being evaluated for PH. Has a doctor mentioned a right heart cath.? That is the best way to diagnose. We are here to support you as best we can so please feel free to share your journey and ask q…
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Jen Cueva started the topic
Top 10 Pulmonary Hypertension Stories of 2021 in the forum Research & Development 5 months, 3 weeks ago
Our PH News team did an amazing job sharing the Top 10 Pulmonary Hypertension Stories of 2021. If you missed these, here they are in one post, which I found convenient.
Which stories interest you the most? What takeaways do you have after reading through these top 10 PH stories? Let’s talk about this.
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Jen Cueva replied to the topic
So Excited To Introduce BioNews Clinical in the forum Research & Development 9 months, 1 week ago
Hi @aisha-abdullah, I am sorry, but if you read the link for the clinical trial, it offers more details. I have not used Tyvaso, so I am not familiar, nor have I been in that CT.
The pharma company that makes Tyvaso is United Therapeutics. Maybe this link about that treatment will offer some information on how to contact them. Unfortunately, I…[Read more]
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Md. Abul Kalam Azad replied to the topic
So Excited To Introduce BioNews Clinical in the forum Research & Development 9 months, 1 week ago
How it Tyvaso can be used, I mean the process to be followed in using Tyvaso. Because it not available in Bangladesh. You are also requested to give me the contact details of the company from where I can get the medicine.
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Jen Cueva replied to the topic
So Excited To Introduce BioNews Clinical in the forum Research & Development 9 months, 1 week ago
Hi @azad, thanks for your interest. Unfortunately, as of current, the CTs that I am aware of is here in the US. I can only imagine how much this would mean if your son was eligible for a CT here.
Also, having RV failure limits some of the trials. This is one clinical trial that I read about RV function. Tyvaso is an inhaled medication. What meds…[Read more]
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Md. Abul Kalam Azad replied to the topic
So Excited To Introduce BioNews Clinical in the forum Research & Development 9 months, 1 week ago
I want to join in the clinical for my son. How can I join from Bangladesh? Could you please explain elaborately about Bio news. How does it work specialty for the RV failure patient like my son. If any body help me in this regards I will be grateful to him/her.
regards
Azad
Bangladesh
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Md. Abul Kalam Azad joined the group
Research & Development 9 months, 1 week ago
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