A place for teens and young adults under 30 with pulmonary hypertension to connect, vent, share frustrations and ask questions. Get advice from your peers, and make friends your own age!
If you’re active on the Internet, particularly in groups and forums related to chronic illness, you’ve definitely noticed the term “spoonie” being thrown around.
Spoonie is a term coined by a chronic illness blogger, who used spoons to demonstrate how much energy a person with a chronic illness has each day, and how much is used up doing simple tasks like washing or getting dressed.
I love the spoon theory! I wrote a column post about how it relates to my life: “Life with More Spoons”. It’s such a simple way to explain pulmonary hypertension and associated fatigue to my friends without going into all the details of the diagnosis.
I agree! Something that is easy to explain to others instead of getting into all the medical terms that would most likely go over my friend’s heads lol! I also talk in terms of how much battery is left for the day or fuel. Like for example I’ll say something like “I’m running on E right now” and they get the hint that I’m completely wiped !
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