Activity

Although this is new for me, I am looking forward to jumping into this important live event on Instagram this evening. Please follow Pulmonary Hypertension News on Instagram if you plan to join us.

Again, we look forward to seeing many of you there as we do a behind-the-scenes theme for 30 Days of PH. See y’all there.

Although this is new for me, I am looking forward to jumping into this important live event on Instagram this evening. Please follow Pulmonary Hypertension News on Instagram if you plan to join us.

Again, we look forward to seeing many of you there as we do a behind-the-scenes theme for 30 Days of PH. See y’all there.

Hi @traceyaustralianmigration-co-za, I’m grateful that you did reach out to your cardio. Yes, PH and lupus would most likely be the most common cause, but if they aren’t seeing anything there, I mentioned the sodium and drop-in regular (systemic) blood pressure.

I’m happy that you have some help, although I know that doesn’t come cheap. But,…[Read more]

I hope you and Manny are feeling better now. Sorry we missed you.

We will be at the same campground as before. We will be free the evening of Jan 4th and again on Jan 26th. Hopefully, you guys will be around one of those nights.

Hi @jenc. I appreciate you checking in on me. I’m actually doing better. I realized I wasn’t being totally honest with myself about how much my depression was acting up again, have been having more video appointments with my therapist and things are doing much better. I can be so hard on myself at times, it gets me into trouble with my depression…[Read more]

Thank you Lesa for sharing with me. I sometimes feel so alone in this because I live in a tiny village and while everyone has been very concerned and understand that I’ve had open heart surgery, I can see their eyes glazing over when I try to explain the heart issue, or the PH to them. I almost get the feeling that people are thinking ok get…[Read more]

Hi @wheeldog, this is an awesome weekly win or lifetime win, in that matter! I am so happy to read that you look much better in person and are doing better than they thought.

Hopefully, you can have that procedure done to drain the fluid if needed. It sounds like maybe that will not be an ongoing issue for you. Plus, not requiring that infusion…[Read more]

Hi @lsworsham, thank you for sharing your experience with this same procedure with Tracey. I know that she will find some comfort and hope from your support.

How are you doing now, four years post-surgery? Did you experience an increase in dizziness post-procedure, as she describes?

@traceyaustralianmigration-co-za, never forget how strong…[Read more]

Good to hear that your oncologist thinks that Omnicron will be mild. I hope so, too. That’s great that he already has a plan if you were to test positive.

Well said, @wheeldog; I know that worry doesn’t do us any good. It’s tough on our already stressed bodies. Your points about a stroke, heart attack, etc., offer a better perspective. I will…[Read more]

Like you, I had not seen many others in a long time besides my immediate family. One of my neighbors would come over to my house, and we conversed across the driveway at times. Thankfully before we moved, I could spend her birthday with her and hug her again. So I can relate to that hug and human touch again, @darlarayne. Doesn’t it feel so good?…[Read more]

Been having a good couple of weeks. Got my lung drained on Nov 23rd. There was only 1 liter of fluid. It has steadily gone down every month from 2 liters. The doc asked if it is getting old getting it drained every month. “YEAH!!!…..what do you think”?? He said they can put a deal in so I can drain it myself. After talking to my oncologist today…[Read more]

Had a Dr appointment with my UCSD oncologist. We had a conversation about it. So far this new variant seems to be mild. However it is so new, that nobody knows for sure what it’s going to do. He did say that none of his CLL patients who have caught COVID have died. He is a firm believer in Regeneron and told me to contact him if I ever test…[Read more]

Hugs for you Tracy.  What you went through is an ordeal. It will take time to heal. Be patient. I had the same operation four years ago and was in the hospital four weeks and on dialysis three months. It took about a year for full recovery. Keep on truckin and I’ll keep on praying for you.

Oh my goodness, Tracey, may God speed you on this journey.

Rickie

I expect we will go though most of the Greek alphabet until we just put it with our annual flu vaccine. This virus loves to adapt and change and its not going anywhere.

I have cancer, on chemo and have now 3/5 stage PAH. So my booster is in January, flu shot done. I mostly stay at home except medical appointments. I stay away from crowds, wear a…[Read more]

Well said, @cdvol3gmail-com. You make some important points.

We get the flu shot each year and have no clue which flu will spread. That is how we need to start thinking about COVID, too. That and education is key. There is so much mixed and misinformation going around.

All we can do is educate ourselves, get vaccinated, and keep taking…[Read more]

Oh no, @traceyaustralianmigration-co-za, I’m so sorry to hear about pneumonia and hospitalization. I knew that you were having some difficulties with your last post. I had a note to check on you today, so I appreciate your update.

I hate to hear that the surgery isn’t effective, or maybe it needs more time? Like you, I wish the cardio would have…[Read more]