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When the Caregiver Is The Patient
As caregiver/family member to someone with PH, how well do you handle becoming a patient yourself? I have had some health issues over the years, most recently kidney stones. I experienced a small taste of what my son goes through while dealing with the excruciating wait at the ER, having to explain my symptoms numerous times, and undergoing uncomfortable tests and eventually surgery.
What I found to be the most difficult is being constrained to a hospital bed and at the mercy of others. As a mom to a PHer and transplant recipient I have spent a lot of time in the hospital with him, but at least I could get up and move around. I could take a walk to the cafeteria or step out to make a phone call. I had a good understanding of what it has been like for him but my eyes were opened wider after experiencing health issues of my own.
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