This forum is a place for those caring for a loved one with pulmonary hypertension to connect. Share tips, ask questions, etc. Veteran parents and caregivers may help those with newly diagnosed children and spouses.
Whether a child or an adult, independence is important to people but it’s not easy to maintain when living with a disease such as pulmonary hypertension. As a caregiver how do you encourage and help your loved one maintain some form of independence? What is the biggest struggle in doing so?
Great topic, Colleen! Although I am an adult with PH, prior to PH, I was a caregiver. I know that for my hubby, it’s often hard as I want to do it all. ( I know, I sound like a toddler). But for me, releasing things that I once could and want to do is tough. I know for my hubby this is a constant battle. I also realize that he’s just trying to help.
As a caregiver and now a patient, I’ve always thought that allowing others to do what they can when they can is best. These tasks can often change from day to day, I’m aware! I know from the perspective of a parent, this can require patience and time. Believe me, my hubby grows impatient with me, too, lol. I’m a strong-willed and determined woman and think personal dignity us important as well. Staying a’s independent as possible has always been my goal.
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