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Hotline For Caregivers

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    • #21944
      Colleen Steele

      There is now a hotline for caregivers. It’s not just for tips on how to handle various responsibilities, but also to provide emotional support.

      You can reach the Caregiver Help Desk by calling 1-855-227-3640, chat with them on caregiveraction.org or email them on that same site.

      Do you think this is something you would use? If you give it a try and feel comfortable with sharing the experience, let us know how valuable or not it was to you.

      Here is a news report about this new hotline.


    • #21959
      V.R. Peterson

      If this had been available four years ago, when my son was first diagnosed with PH, I definitely would have made use of these resource. I think I’ve got a handle on this “being-a-mom-of-a-PH-patient” thing now, but I think I’m going to add the phone number and website to my contacts list (just in case). Thank you so much for this wonderful resource!

    • #21984
      Jen Cueva

      Thanks for sharing, Colleen. I think that this is a great idea, but I do wonder how many caregivers will use it. I think it could be helpful. I think that the fact that it offers emotional support is a much-needed resource for caregivers.

    • #25785
      Jen Cueva

      I wanted to remind all of our caregivers about this resource. The caregiver hotline is available for y’all. As a caregiver before PH, I understand how fast a caregiver can burn out. Too often the caregiver puts their own needs at the bottom of the list.

      Are you guilty of this? If so, what small steps can you take to help prevent caregiver burnout? Taking short mental breaks, even if it is 10-15 minutes per day, is helpful.

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