Hotline For Caregivers

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    • #21944
      Colleen Steele
      Keymaster

      There is now a hotline for caregivers. It’s not just for tips on how to handle various responsibilities, but also to provide emotional support.

      You can reach the Caregiver Help Desk by calling 1-855-227-3640, chat with them on caregiveraction.org or email them on that same site.

      Do you think this is something you would use? If you give it a try and feel comfortable with sharing the experience, let us know how valuable or not it was to you.

      Here is a news report about this new hotline.

      https://www.fox4now.com/news/national/theres-now-a-hotline-specifically-for-caregivers

    • #21959
      V.R. Peterson
      Participant

      If this had been available four years ago, when my son was first diagnosed with PH, I definitely would have made use of these resource. I think I’ve got a handle on this “being-a-mom-of-a-PH-patient” thing now, but I think I’m going to add the phone number and website to my contacts list (just in case). Thank you so much for this wonderful resource!

    • #21984
      Jen Cueva
      Participant

      Thanks for sharing, Colleen. I think that this is a great idea, but I do wonder how many caregivers will use it. I think it could be helpful. I think that the fact that it offers emotional support is a much-needed resource for caregivers.

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