Wow, another excellent column that patients and caregivers both can relate to, @colleensteele!
This is something that I often find; I tend to focus on my social media is PH updates. Ironically, I find that Manny, my hubby, and my caregiver also tend to stay updated on our PH community. It is often a joke at our house that I may not be active on SM, but he is, and he updates me, so I don’t need to be on, too.
We have to remind each other that we are more than PH, and it is often difficult to do this when we like to stay updated with others. This is something that we must be more “mindful” of. I find that taking time away and not feeling guilty is something you and I have discussed before @colleensteele. Cullen, now as he is older, do you find it easier to be more mindful of this? Do you your hubby have more time now set aside? Or do you find this is still something that you both still need to be mindful of?
My hubby, Manny before, would do his Saturday morning bike rides. But this was pre-COVID. Even then, It was always difficult for him to leave me alone with feeling guilty.