Larger PH registries needed to advance knowledge and improve patient care

  • Larger PH registries needed to advance knowledge and improve patient care

    Posted by Community Member on July 2, 2018 at 5:43 pm

    With internet access now common and worldwide, patient registries are seen as an increasingly important means of gathering information on, and learning more about, a patient population. These registries are particularly helpful in the research of rare diseases such as PH.

    Click here to read more about why larger registries can advance knowledge of PH and improve patient care: PH Patient Registries Across Europe Should Be Combined for Better Data, Study Suggests

    What do you think of this news? Do you know about PH registries in your own country?

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