According to Right Diagnosis:
Primary pulmonary hypertension is listed as a “rare disease” by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Primary pulmonary hypertension, or a subtype of Primary pulmonary hypertension, affects less than 200,000 people in the US population.
- Incidence (annual) of Primary pulmonary hypertension: 300 new cases annually.
- Incidence Rate of Primary pulmonary hypertension: approx 1 in 906,666 or 0.00% or 300 people in US.
- Incidence of Primary pulmonary hypertension: In the United States it has been estimated that 300 new cases of PPH are diagnosed each year; the largest numbers are reported in women between the ages of 21 and 40.
- Patient Profile for Primary pulmonary hypertension: Typically women 21-40, but any age is possible.
- Profile for Primary pulmonary hypertension: the greatest number of cases are reported in women between the ages of 21 and 40. Indeed, at one time the disease was thought to occur among young women almost exclusively; researchers now know, however, that men and women in all age ranges, from very young children to elderly people, can develop PPH. Apparently it also affects people of all racial and ethnic origins equally.
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