Columns

June 1, 2020May 28, 2020

What People Should Know About Pulmonary Hypertension

Chronically Uncool – a Column by Ellie Bird, Columns

Since I was diagnosed with pulmonary hypertension (PH) in 2017, I have struggled with people in my life who don’t understand what my illness is or how it affects ... Read more

June 1, 2020May 28, 2020

Caring for Aging Parents Is Challenging with My PH Limitations

Columns, Worth the PHight - a Column by Jen Cueva

In life, we often try to control things by trying to predict the future. But no matter how hard we try, we are not in control. There is only ... Read more

June 1, 2020May 28, 2020

Ronald McDonald House Charities Responds to Epidemic Challenges

Columns, Life As A Caregiver - a Column By Colleen Steele

When my son was diagnosed with pulmonary hypertension, we drove from our home in Washington state to California to seek care from a specialist at Lucile Packard Children’s Hospital ... Read more

May 18, 2020May 14, 2020

Finding Love with a Chronic Illness

Chronically Uncool – a Column by Ellie Bird, Columns

I’ve written in previous columns about the difficulties I’ve experienced while navigating romantic relationships with a chronic illness. This week, I wanted to write positively about finding love with ... Read more

May 18, 2020May 15, 2020

Caring for the Caregiver

Columns, Life As A Caregiver - a Column By Colleen Steele

I have heard it said that self-care is not selfish. While I may agree with that consciously, my subconscious still has not quite embraced it. When my son Cullen ... Read more

May 18, 2020May 14, 2020

Opening Up About My Struggles with Mental Health

Columns, Worth the PHight - a Column by Jen Cueva

If you have found yourself standing in a warm shower as tears stream down your face, you are not alone. It is no secret that living with a rare ... Read more

May 15, 2020May 13, 2020

I Need to Be Understood, Not Fixed

Columns, Recharged and Rewired - a Column by Brittany Foster

When a new doctor enters my hospital room and asks for a brief medical history, the best I can offer is a 15-minute overview of the last few years ... Read more

May 11, 2020May 8, 2020

Balancing Positivity and Realism When Facing Chronic Illness

Chronically Uncool – a Column by Ellie Bird, Columns

One thing we hear a lot about while living with a serious chronic illness is the importance of staying positive. But what does that mean? The “importance of positivity” ... Read more

May 11, 2020May 8, 2020

I’m Celebrating a Year with You

Columns, Life As A Caregiver - a Column By Colleen Steele

“There is ebb and flow. Leaving and coming. Flight and fall. Sing and silent. Reaching and reached.” – Ally Condie I am unfamiliar with the author of that quote ... Read more

May 11, 2020May 7, 2020

Celebrating World PH Day and National Nurses Week

Columns, Worth the PHight - a Column by Jen Cueva

When you hear May 5, do you smell warm chips and salsa? Or taste a tangy margarita? Most of us probably think about Cinco de Mayo. No judgment. I, ... Read more

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