Columns

April 19, 2021April 15, 2021

My Son Wanted More Control Over What He Could Do

Columns, Life As A Caregiver - a Column by Colleen Steele

After receiving a heart and double-lung transplant in 2014, my son Cullen no longer has pulmonary hypertension (PH). Since then, he has been focused on protecting those precious organs. When ... Read more

April 12, 2021April 8, 2021

Our Son’s PH Journey Helped Me Appreciate My Husband More

Columns, Life As A Caregiver - a Column by Colleen Steele

I view marriage in a very spiritual and traditional way. It is one of the seven sacraments of my Catholic faith, and legally, it unites two people as partners in ... Read more

April 9, 2021April 7, 2021

I Need to Stop Apologizing for My Body and Start Connecting to It

Columns, Recharged and Rewired - a Column by Brittany Foster

“Don’t mind the pacemaker on the left side of my chest — it sticks out. I hope you’re not grossed out by the port because you can see the tunneling ... Read more

April 7, 2021April 6, 2021

Let’s Pursue the Workplaces We Deserve Despite Having Chronic Conditions

Columns, Worth the PHight - a Column by Jen Cueva

The last five months have been bumpy for my family. Back in November, my husband, Manny, and I both got COVID-19. I was hospitalized for several weeks and not expected ... Read more

April 5, 2021April 1, 2021

How the Pandemic Made It Easier to Deny the Reality of My PH

Chronically Uncool – a Column by Ellie Bird, Columns

The ongoing pandemic means my normal schedule of hospital appointments has been disrupted for more than a year. I have previously written that this makes me increasingly anxious about my ... Read more

March 29, 2021March 27, 2021

Mothers of Children With PH Share Their Experiences With Transplant Ineligibility

Columns, Life As A Caregiver - a Column by Colleen Steele

Can you imagine being denied something that could prolong your life? In a previous column, I interviewed adult pulmonary hypertension (PH) patients who are ineligible for transplant. Their responses were ... Read more

March 22, 2021March 18, 2021

Adult PH Patients Share Their Experiences With Transplant Ineligibility

Columns, Life As A Caregiver - a Column by Colleen Steele

When my son Cullen was diagnosed with pulmonary hypertension, people often asked, “Can’t he just get a transplant?” As if he could walk into a hospital, request a heart and ... Read more

March 17, 2021March 15, 2021

Amid COVID-19 Anxieties, Remember That Fear and Courage Can Coexist

Columns, Worth the PHight - a Column by Jen Cueva

As I sit down to write my column for BioNews, the parent company of this website, I think about you, my readers. While I strive to write about various topics, ... Read more

March 15, 2021March 11, 2021

Surviving a PH Paradox Is a Tale Worth Telling

Columns, Life As A Caregiver - a Column by Colleen Steele

In 2008, when my son Cullen was diagnosed with pulmonary hypertension, I started a health journal on the website CaringBridge. I compare the pages of his medical journey to the ... Read more

March 12, 2021March 10, 2021

The Week I Discovered What Makes Me Happy

Columns, Recharged and Rewired - a Column by Brittany Foster

I’m often asked, “What is something that makes you happy?” Sometimes it’s by a friend reaching out to support me during a difficult week, or it might be a therapist ... Read more