Columns

January 25, 2021January 21, 2021

Stepping Back From Work Does Not Mean I’m Letting My Illness ‘Win’

Chronically Uncool – a Column by Ellie Bird, Columns

Ever since I was diagnosed with pulmonary hypertension (PH) in 2017, I have been determined to live as normal a life as possible. As soon as I was able, ... Read more

January 25, 2021January 21, 2021

What Is Your Identity Outside of Patient or Caregiver?

Columns, Life As A Caregiver - a Column by Colleen Steele

My son Cullen was 8 when he was diagnosed with pulmonary hypertension (PH). During his pediatric PH years, I had the pleasure of meeting other children just like him. ... Read more

January 18, 2021January 14, 2021

Stress Relievers Make Perfect Gifts for Patients and Caregivers

Columns, Life As A Caregiver - a Column by Colleen Steele

What is the main thing that patients and caregivers have in common? I believe the answer is stress. Therefore, one of the best gifts you can give them is ... Read more

January 13, 2021January 22, 2021

Each PH Journey Is Unique, and It’s Not a Competition

Columns, Worth the PHight - a Column by Jen Cueva

Online support groups for rare diseases like pulmonary hypertension (PH) are essential spaces that offer people comfort. Patient forums and social media groups also can be places of support. ... Read more

January 11, 2021January 7, 2021

Learning to Laugh at Embarrassing Medical Moments

Columns, Life As A Caregiver - a Column by Colleen Steele

Being human makes everyone susceptible to embarrassing moments. Some have learned to deal with them by laughing at themselves. Facepalm-worthy fumbles happen, even when dealing with something as serious ... Read more

January 8, 2021January 5, 2021

After Each Medical Setback, a Greater Comeback Begins

Columns, Recharged and Rewired - a Column by Brittany Foster

Whenever I go through an emotionally difficult or physically painful period in my life, I always take time for reflection. After the crying is done, the tantrum is thrown, ... Read more

January 6, 2021January 22, 2021

I Lived a Christmas Miracle in the Middle of a Pandemic

Columns, Worth the PHight - a Column by Jen Cueva

Christmas has come and gone. Didn’t it seem a bit surreal? For me, and I’m sure for many of you, too, last year was unique in more ways than ... Read more

December 29, 2020December 29, 2020

I’m Working on Accepting the Risks of Imbalance

Columns, Life As A Caregiver - a Column by Colleen Steele

When I look at my Christmas tree, I appreciate its Christian symbolism as much as I do its beauty. There are many meanings passed down throughout history, but ... Read more

December 21, 2020December 17, 2020

PH and Transplant Strengthened a Brotherly Bond

Columns, Life As A Caregiver - a Column by Colleen Steele

My sons are 13 months apart and affectionately referred to as “Irish twins.” Cullen is 21, and Aidan just turned 20. My husband and I hoped that having them ... Read more

December 14, 2020December 10, 2020

Consistent, Small Efforts Can Result in Lifesaving Development

Columns, Life As A Caregiver - a Column by Colleen Steele

“Success is the sum of small efforts, repeated day in and day out.” My son Cullen could have been the poster child for this famous quote by Robert Collier. ... Read more