Columns

February 17, 2020February 13, 2020

Promoting Organ Donation by Sharing My Son’s Good Fortune

Columns, Life As A Caregiver - a Column By Colleen Steele

National Donor Day in the U.S. was on Feb. 14. However, every day when I look at my son, I feel inspired to raise awareness about the lifesaving benefits ... Read more

February 14, 2020February 12, 2020

Celebrating My 15-year PH Diagnosis Anniversary

Columns, Worth the PHight - a Column by Jen Cueva

Today is Valentine’s Day, y’all. I know that some of you are eating fancy chocolates and sipping wine, all the while blowing kisses to your love. But for me, ... Read more

February 14, 2020February 12, 2020

I Will Not Be Silenced in an Emergency Room

Columns, Recharged and Rewired - a Column by Brittany Foster

“Can you keep it down? There are other sick people here.”  These were the words spoken to me in an emergency room last weekend. I was crying and voicing ... Read more

February 10, 2020February 7, 2020

Words of Support for Those Transitioning from Hope to Grief

Columns, Life As A Caregiver - a Column By Colleen Steele

Pulmonary hypertension (PH) is an incurable, life-threatening disease. This reality is a gaping wound that patients and loved ones try to cover and protect with hope. But at some ... Read more

February 7, 2020February 5, 2020

My Smile Is Hiding Chronic Pain

Columns, Worth the PHight - a Column by Jen Cueva

If you saw me you would probably notice my bright blue eyes (thanks, Pawpaw) or my huge smile. You might not realize that behind the smile, I am hiding ... Read more

February 7, 2020February 5, 2020

Demi Lovato Sang About My Struggles

Columns, Recharged and Rewired - a Column by Brittany Foster

A couple of weeks ago, I listened with tears in my eyes as Demi Lovato sang her heart out at the Grammy Awards. I can’t relate to her addiction, ... Read more

February 3, 2020January 30, 2020

Survivor’s Guilt from the Perspective of a Grieving Mother, Part 2

Columns, Life As A Caregiver - a Column By Colleen Steele

Second in a series. Read part one. Grief and guilt are not easy to express or explain. It has been five years since my son’s heart and double-lung transplant after ... Read more

January 31, 2020January 29, 2020

These Life Hacks Help Me While Living with PH

Columns, Worth the PHight - a Column by Jen Cueva

We don’t always have a choice about what life throws our way. But our response to challenges is something we can control. Living with pulmonary hypertension (PH), I don’t ... Read more

January 27, 2020January 23, 2020

Survivor’s Guilt from the Perspective of a Grieving Mother, Part 1

Columns, Life As A Caregiver - a Column By Colleen Steele

First in a series.  Many pulmonary hypertension (PH) patients and caregivers experience survivor’s guilt. During my son’s battle with PH and the five years since his heart and double-lung ... Read more

January 24, 2020January 23, 2020

Remembering that It’s OK to Not Be OK

Columns, Worth the PHight - a Column by Jen Cueva

Since my pulmonary hypertension (PH) diagnosis, others have told me repeatedly how strong I am. But on some days, I don’t feel as strong as they think I am. ... Read more