Columns

August 20, 2019August 15, 2019

Cooking Is Great in Life with PH

Columns, Life After PH – A Column By Kathleen Sheffer

A therapist once asked me what makes me happy, and I said “food” right away. Thankfully, I’ve matured since high school, and food is no longer at the top ... Read more

August 19, 2019August 15, 2019

Celebrating 5 Years of Living After Heart and Double-Lung Transplant

Columns, Life As A Caregiver - a Column By Colleen Steele

My son is celebrating a big transplant anniversary! Five years ago, on Aug. 7, 2014, he received a heart and double-lung transplant. This very rare surgery was completed within ... Read more

August 16, 2019August 14, 2019

Looking Back at My PH Journey and Finding Hope in the Hard Places

Columns, Worth the PHight - a Column by Jen Cueva

My schedule was hectic this week. I had several days of bloodwork and doctors’ appointments scheduled. The heat here in Texas with its suffocating humidity is not ideal weather ... Read more

August 16, 2019August 14, 2019

The Importance of Assembling a Top-notch Medical Team

Columns, Recharged and Rewired - a Column by Brittany Foster

I don’t have control over a lot when it comes to my health. I can’t choose the surgeries I will have, and I can’t predict what my physical symptoms ... Read more

August 12, 2019August 12, 2019

The ‘Healthy’ Sibling’s Struggles with PH

Columns, Life As A Caregiver - a Column By Colleen Steele

The siblings of medically frail children grow up fast because they witness harsh realities at an early age. They experience emergencies, hospital stays, medical equipment, and scary treatments, and ... Read more

August 9, 2019August 13, 2019

The Side of Me Most People Don’t See

Columns, Recharged and Rewired - a Column by Brittany Foster

Living with chronic illness has made me more aware of the complexity of emotions that go along with health management. There are parts of me that I am not ... Read more

August 9, 2019August 22, 2019

Why I Am a ‘Million Dollar Baby’

Columns, Worth the PHight - a Column by Jen Cueva

“Good morning, Mrs. Cueva,” said the young lady on the phone. During our call, she informed me of a change in my medication coverage that would take effect in ... Read more

August 5, 2019August 7, 2019

How PH Changed Me, from Being More Compassionate to Managing PTSD

Columns, Life As A Caregiver - a Column By Colleen Steele

When my son was diagnosed with pulmonary hypertension (PH), I noticed a change in how people interacted with me. They hesitated before sharing personal problems, and if they did ... Read more

August 2, 2019July 31, 2019

Accessibility Issues Didn’t Spoil My Canoe Trip Adventure

Columns, Worth the PHight - a Column by Jen Cueva

Since my previous column was heart-wrenching and vulnerable, I decided to make this one fun. At the end of April, my husband smashed his first MS 150 ride. He ... Read more

July 29, 2019August 5, 2019

My Son’s Transplant Fundraiser Helped to Build a Community

Columns, Life As A Caregiver - a Column By Colleen Steele

Two positives came out of my son’s pulmonary hypertension (PH) diagnosis: It strengthened my belief in the power of prayer and rekindled my faith in people. My family has ... Read more

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