Columns

December 2, 2019November 26, 2019

The Healing Power of Laughter

Columns, Life As A Caregiver - a Column By Colleen Steele

It is said that laughter is the best medicine. My son’s battle with pulmonary hypertension (PH) and post-transplant struggles made me a believer. However, the humor behind the ... Read more

November 25, 2019November 21, 2019

Sharing Hope and Expressing Gratitude for Our PHamily

Columns, Life As A Caregiver - a Column By Colleen Steele

As Pulmonary Hypertension Awareness Month draws to a close, the complexities of this disease have been exemplified by the sharing of personal battles. Our community has cried out in ... Read more

November 22, 2019November 19, 2019

I’m Thanking My Body This Thanksgiving

Columns, Recharged and Rewired - a Column by Brittany Foster

I often stare at myself in the mirror and do not recognize the reflection staring back. I see a body that is so different from the one I had ... Read more

November 22, 2019November 20, 2019

Giving Thanks Despite a Curveball

Columns, Worth the PHight - a Column by Jen Cueva

Thanksgiving is almost here, y’all. Scroll through any social media channel and you’ll see people sharing their thoughts on gratitude. Daily reflection on the things I am grateful for ... Read more

November 18, 2019November 14, 2019

Living Life Focused on Quality, Not Quantity

Columns, Life As A Caregiver - a Column By Colleen Steele

Parents sometimes view birthdays, milestones, and even achievements as bittersweet. Witnessing a child mature and grow brings joy, but sentimentality tends to mix with the happiness. Many a parent ... Read more

November 15, 2019November 13, 2019

While Difficult to Share, Here Is My PH Story

Columns, Worth the PHight - a Column by Jen Cueva

November is Pulmonary Hypertension Awareness Month, a good time to share a little more about my journey with y’all. My hope is that you will tell your stories and ... Read more

November 15, 2019November 13, 2019

My Recent Surgery Triggered My PTSD

Columns, Recharged and Rewired - a Column by Brittany Foster

Last week, I scrolled through Pinterest on my phone as I was wheeled into the endoscopy suite for a J-tube placement. I was doing everything I could to distract myself. I have ... Read more

November 11, 2019November 13, 2019

Opening Up About My Diagnosis

Chronically Uncool – a Column by Ellie Bird, Columns

One of the hardest parts for me about having a serious chronic illness is telling people about my condition. I’m always worried that they will look at me differently. ... Read more

November 11, 2019November 13, 2019

Responding to Questions About Transplant as a ‘Cure’ for PH

Columns, Life As A Caregiver - a Column By Colleen Steele

No cure exists for pulmonary hypertension (PH). People often ask, “But isn’t transplant a cure?” PH Awareness Month is an opportunity to explain the frustration that those who are ... Read more

November 8, 2019November 6, 2019

Maintaining a Fluid Balance While Taking Diuretics

Columns, Worth the PHight - a Column by Jen Cueva

When I received my pulmonary hypertension (PH) diagnosis I was in congestive heart failure. Since then, I have been taking diuretics to assist my body in getting rid of ... Read more

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