Columns

February 22, 2021February 18, 2021

‘Phantom PH’ Haunts My Son Long After His Transplant

Columns, Life As A Caregiver - a Column by Colleen Steele

The Mayo Clinic describes phantom pain as pain that feels like it’s coming from a body part that’s no longer there. Experts believe these sensations can be real and ... Read more

February 17, 2021February 15, 2021

My Husband Reflects on Life, 16 Years After My PH Diagnosis

Columns, Worth the PHight - a Column by Jen Cueva

Sixteen years ago, I was lying in a hospital bed, unsure just how much my life and my family’s lives were about to be turned upside down. As a ... Read more

February 15, 2021February 11, 2021

Let’s Learn Something New for Rare Disease Day 2021

Columns, Life As A Caregiver - a Column by Colleen Steele

According to NASA, the number of exoplanets, or planets beyond our solar system, is in the thousands and rising. Rare diseases are kind of like exoplanets. There are many, ... Read more

February 10, 2021February 8, 2021

My Next Step in Recovery Is Taking a ‘Less Is More’ Approach

Columns, Worth the PHight - a Column by Jen Cueva

It’s no secret that the world is tough. When juggling its chaos, we often feel pressured to do more, and we quickly lose sight of what is most important. ... Read more

February 9, 2021February 5, 2021

Let’s Talk About Sex and Chronic Illness, Baby

Columns, Recharged and Rewired - a Column by Brittany Foster

Save the Date: Feb. 11, 2021, at 7 p.m. ET. Join @pulmonaryhypertensionnews on Instagram Live for a live Q&A about sex with chronic illness and PH. The event is ... Read more

February 8, 2021February 4, 2021

How PH Changed My Relationship With My Body

Chronically Uncool – a Column by Ellie Bird, Columns

Having a chronic illness can affect a person’s relationship with their body. It can feel like their body has let them down because it’s not working exactly how it ... Read more

February 8, 2021February 4, 2021

A Positive Perspective on Gaming and Your Health

Columns, Life As A Caregiver - a Column by Colleen Steele

I have read articles claiming that playing video games excessively can increase the risk of health problems. Instead, they encourage children to go outside and play, and adults to ... Read more

February 5, 2021February 3, 2021

Learning to Let Go of the Negativity in My Life

Columns, Recharged and Rewired - a Column by Brittany Foster

As I was watching the timeless movie “Pretty Woman,” I was struck by something Julia Robert’s character, Vivian, said: “People put you down enough you start to believe it. ... Read more

February 1, 2021January 28, 2021

I’m Slowing Down and Learning to Enjoy the Quiet

Chronically Uncool – a Column by Ellie Bird, Columns

I love to keep busy. Ever since I was diagnosed with pulmonary hypertension (PH) in 2017, I have been keen to fill my days and avoid the listless feeling ... Read more

February 1, 2021January 28, 2021

Like the Weather, My Son’s PH Journey Brought Storm Clouds and Sunshine

Columns, Life As A Caregiver - a Column by Colleen Steele

A popular phrase people like to say when discussing the climate is, “If you don’t like the weather, wait a minute and it’ll change.” Living with a serious illness ... Read more