Columns

November 15, 2019November 13, 2019

While Difficult to Share, Here Is My PH Story

Columns, Worth the PHight - a Column by Jen Cueva

November is Pulmonary Hypertension Awareness Month, a good time to share a little more about my journey with y’all. My hope is that you will tell your stories and ... Read more

November 15, 2019November 13, 2019

My Recent Surgery Triggered My PTSD

Columns, Recharged and Rewired - a Column by Brittany Foster

Last week, I scrolled through Pinterest on my phone as I was wheeled into the endoscopy suite for a J-tube placement. I was doing everything I could to distract myself. I have ... Read more

November 11, 2019November 13, 2019

Opening Up About My Diagnosis

Chronically Uncool – a Column by Ellie Bird, Columns

One of the hardest parts for me about having a serious chronic illness is telling people about my condition. I’m always worried that they will look at me differently. ... Read more

November 11, 2019November 13, 2019

Responding to Questions About Transplant as a ‘Cure’ for PH

Columns, Life As A Caregiver - a Column By Colleen Steele

No cure exists for pulmonary hypertension (PH). People often ask, “But isn’t transplant a cure?” PH Awareness Month is an opportunity to explain the frustration that those who are ... Read more

November 8, 2019November 6, 2019

Maintaining a Fluid Balance While Taking Diuretics

Columns, Worth the PHight - a Column by Jen Cueva

When I received my pulmonary hypertension (PH) diagnosis I was in congestive heart failure. Since then, I have been taking diuretics to assist my body in getting rid of ... Read more

November 8, 2019November 6, 2019

What I Wish My Loved Ones Didn’t See

Columns, Recharged and Rewired - a Column by Brittany Foster

As a child, I always felt uncomfortable when people expressed sadness and fear. I tried to be strong to keep my family from feeling upset. I remember maintaining a ... Read more

November 1, 2019October 30, 2019

It’s Time to Stop Feeling Guilty About Self-care

Columns, Worth the PHight - a Column by Jen Cueva

Do you struggle to prioritize your health when confronted with life’s daily demands? It’s a tough job to balance everything, especially when you’re already exhausted. When living with pulmonary ... Read more

October 28, 2019October 24, 2019

I’m Grateful I’ve Overcome My Fear of Hospitals

Chronically Uncool – a Column by Ellie Bird, Columns

I have little sympathy for those who exclaim that they don’t like hospitals — no one does! But for many of us, they are an unavoidable part of life. ... Read more

October 28, 2019October 25, 2019

Finding Closure in the Gross Lab

Columns, Life As A Caregiver - a Column By Colleen Steele

Happy Halloween! This week, I’m taking you on a journey to a “gross lab.” Yes, that is what it’s called. Four weeks after our son Cullen’s heart and double-lung ... Read more

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