When I was 12, an infection related to my central line landed me in the hospital. I was being treated at a large teaching center and clearly remember waking up one day to find more than 10 people in the room staring at me and discussing my case. This was…
Blooming Hope — Anna Jeter
Anna L. Jeter is an artist and writer living in Excelsior, Minnesota, with her parents and her sweet mini goldendoodle, Luna. Anna was diagnosed with pulmonary hypertension in 1999 at the age of 4. After a 19-year fight, she received a lifesaving heart-lung transplant in 2018. After enduring many complications, Anna was finally discharged home in April 2019. Now, living with a tracheostomy, and dependent on oxygen, she celebrates the time gifted to her by her donor, never taking the joys of everyday life for granted. Anna’s art and writing is centered on grief, survival, and the hope that continues to bloom amidst these circumstances.
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Tomorrow, a surgery is taking place, but for once, I won’t be the person counting back from 10 as they’re put to sleep. Instead, it’s my mother who will be undergoing a minor procedure. Fortunately, it’s low risk, but we’ve still had a lot to consider regarding her recovery, which…
Growing up with a rare, chronic illness can draw a lot of attention. Specifically, it can raise a lot of questions, especially from other kids. I can’t remember an age when I wasn’t required to explain my health situation to others, particularly my peers. Early on, absences from school would…
I’m a ’90s baby, which means medical dramas were at peak popularity during my childhood. Shows like “ER” and “Grey’s Anatomy” were among the big hits, often portraying a fantasy version of healthcare and hospital life. Throughout high school and college, I frequently indulged in this genre. I remember nights…
I first had to use supplemental oxygen outside of a hospital during flights. This change took place when I was in high school, and one of those flights was for a school trip. I still remember sitting in my window seat, a hat pulled low over my head, trying to…
The last time my mom and I flew together was nearly seven years ago, when I took a medical flight home from Stanford Hospital in California to the Mayo Clinic in Minnesota. That journey happened midway through my eight-month recovery from a heart and lung transplant in 2018. We both…
While settling in for a recent clinic appointment, a nurse reviewed my record and praised me for the breadth of my health history, noting how impressive I was for everything I had survived. This response isn’t uncommon when people learn that I had a heart and lung transplant. My nurse was…
Pulmonary hypertension (PH) patients often face a similar issue: wondering where the nearest bathroom is. Since many people with PH take diuretics as a maintenance treatment for heart failure, that means they have to pee. A lot. This can be a funny, frustrating, or sometimes awkward aspect of the…
A week or two before I had a heart and lung transplant seven years ago, my mom and I had lunch with a friend who was a pulmonary hypertension survivor and had received a transplant two years earlier. She shared with us what there was to look forward to…
When you live with a chronic and complex illness, complications and side effects from the medications to treat it are always lurking around the corner — even in the most stable of times. The more dramatic setbacks of living with pulmonary hypertension (PH) have included things like getting sick…
My mom was quick to share her dream with me from the night before when I came downstairs for breakfast on a recent morning. In the dream, I was still living with pulmonary hypertension (PH), and we were sitting with a group of our close PH friends. Everyone seemed…
Pulmonary Hypertension News recently shared a graphic on Instagram illustrating the various symptoms of the disease. Next to the outline of a body are the words “Cough and hoarseness,” with a line pointing to the throat area. This depiction pleased me, because hoarseness was my first indicator of disease…
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